Literature DB >> 33372275

Ready or not? Greater readiness for independent self-care predicts better self-management but not HbA1c in teens with type 1 diabetes.

Eveline R Goethals1,2, Lisa K Volkening1, Liane Tinsley1, Lori M Laffel1.   

Abstract

OBJECTIVE: Prior to the transfer from paediatric to adult health care transition, teens with type 1 diabetes seek increasing independence in diabetes self-care while parent involvement in care decreases. Yet, few teens attain glycaemic targets. This study aimed to assess changes in perceived readiness for independent self-care in teens with type 1 diabetes over 18 months, from both teens' and parents' perspectives, and to evaluate its predictive value for diabetes self-management and haemoglobin A1c (HbA1c ). RESEARCH DESIGN AND METHODS: At baseline, 6, 12 and 18 months, 178 teens with type 1 diabetes (mean ± SD age 14.9±1.3 years; HbA1c 8.5 ± 1.0% (69 ± 11 mmol/mol); 48% female) and their parents completed the Readiness for Independent Self-Care Questionnaire (RISQ-T and RISQ-P, respectively) and a measure of self-management. Chart review provided HbA1c values. Statistical analyses encompassed bivariate correlations, paired t-tests and multivariable longitudinal mixed models.
RESULTS: Teens perceived greater self-care readiness than their parents at baseline and over 18 months of follow-up. Both teen and parent perceptions of teen readiness for independent self-care increased over time, and significantly predicted higher teen self- and parent proxy-reported teen diabetes self-management, respectively, but not improved HbA1c .
CONCLUSIONS: The current findings may point to a disconnect between how increased readiness for independent self-care may translate into better perceived diabetes self-management, but not into better HbA1c . In an effort to optimize HbA1c in teens with type 1 diabetes, future research is needed to design interventions that align perceived readiness for independent self-care with self-care behaviours that improve HbA1c .
© 2021 Diabetes UK.

Entities:  

Keywords:  adolescents; glycaemic control; readiness; self-management; transition; type 1 diabetes

Mesh:

Substances:

Year:  2021        PMID: 33372275      PMCID: PMC8990383          DOI: 10.1111/dme.14507

Source DB:  PubMed          Journal:  Diabet Med        ISSN: 0742-3071            Impact factor:   4.359


  21 in total

1.  Health Care Transition in Type 1 Diabetes: Perspectives of Diabetes Care and Education Specialists Caring for Young Adults.

Authors:  Eveline R Goethals; Rebecca O La Banca; Peter W Forbes; Gabriela H Telo; Lori M Laffel; Katharine C Garvey
Journal:  Diabetes Educ       Date:  2020-06       Impact factor: 2.140

2.  Six-Month Randomized, Multicenter Trial of Closed-Loop Control in Type 1 Diabetes.

Authors:  Sue A Brown; Boris P Kovatchev; Dan Raghinaru; John W Lum; Bruce A Buckingham; Yogish C Kudva; Lori M Laffel; Carol J Levy; Jordan E Pinsker; R Paul Wadwa; Eyal Dassau; Francis J Doyle; Stacey M Anderson; Mei Mei Church; Vikash Dadlani; Laya Ekhlaspour; Gregory P Forlenza; Elvira Isganaitis; David W Lam; Craig Kollman; Roy W Beck
Journal:  N Engl J Med       Date:  2019-10-16       Impact factor: 91.245

3.  Responsibility sharing between adolescents with type 1 diabetes and their caregivers: importance of adolescent perceptions on diabetes management and control.

Authors:  Anthony T Vesco; Barbara J Anderson; Lori M B Laffel; Lawrence M Dolan; Lisa M Ingerski; Korey K Hood
Journal:  J Pediatr Psychol       Date:  2010-05-05

4.  Current state of type 1 diabetes treatment in the U.S.: updated data from the T1D Exchange clinic registry.

Authors:  Kellee M Miller; Nicole C Foster; Roy W Beck; Richard M Bergenstal; Stephanie N DuBose; Linda A DiMeglio; David M Maahs; William V Tamborlane
Journal:  Diabetes Care       Date:  2015-06       Impact factor: 19.112

5.  Developmental processes associated with longitudinal declines in parental responsibility and adherence to type 1 diabetes management across adolescence.

Authors:  Deborah J Wiebe; Chong Man Chow; Debra L Palmer; Jonathan Butner; Jorie M Butler; Peter Osborn; Cynthia A Berg
Journal:  J Pediatr Psychol       Date:  2014-03-06

6.  State of Type 1 Diabetes Management and Outcomes from the T1D Exchange in 2016-2018.

Authors:  Nicole C Foster; Roy W Beck; Kellee M Miller; Mark A Clements; Michael R Rickels; Linda A DiMeglio; David M Maahs; William V Tamborlane; Richard Bergenstal; Elizabeth Smith; Beth A Olson; Satish K Garg
Journal:  Diabetes Technol Ther       Date:  2019-01-18       Impact factor: 6.118

7.  Validation of a contemporary adherence measure for children with Type 1 diabetes: the Diabetes Management Questionnaire.

Authors:  S N Mehta; T R Nansel; L K Volkening; D A Butler; D L Haynie; L M B Laffel
Journal:  Diabet Med       Date:  2015-01-30       Impact factor: 4.359

8.  Patient-Reported and Parent Proxy-Reported Outcomes in Pediatric Medical Specialty Clinical Settings: A Systematic Review of Implementation.

Authors:  Lindsay M Anderson; Jaclyn L Papadakis; Anthony T Vesco; Jenna B Shapiro; Marissa A Feldman; Meredyth A Evans; Jill Weissberg-Benchell
Journal:  J Pediatr Psychol       Date:  2020-04-01

9.  Effect of Continuous Glucose Monitoring on Glycemic Control in Adolescents and Young Adults With Type 1 Diabetes: A Randomized Clinical Trial.

Authors:  Lori M Laffel; Lauren G Kanapka; Roy W Beck; Katherine Bergamo; Mark A Clements; Amy Criego; Daniel J DeSalvo; Robin Goland; Korey Hood; David Liljenquist; Laurel H Messer; Roshanak Monzavi; Thomas J Mouse; Priya Prahalad; Jennifer Sherr; Jill H Simmons; R Paul Wadwa; Ruth S Weinstock; Steven M Willi; Kellee M Miller
Journal:  JAMA       Date:  2020-06-16       Impact factor: 56.272

Review 10.  Using Person-Reported Outcomes (PROs) to Motivate Young People with Diabetes.

Authors:  Maartje de Wit; Judith Versloot; Ian Zenlea; Eveline R Goethals
Journal:  Curr Diab Rep       Date:  2020-05-16       Impact factor: 4.810

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  2 in total

1.  Opportunities for Enhanced Transition of Care Preparation for Adolescents and Emerging Adults With Type 1 Diabetes: Use of the READDY Transition Tool.

Authors:  Camilia Kamoun; Jane C Khoury; Sarah J Beal; Nancy Crimmins; Sarah D Corathers
Journal:  Diabetes Spectr       Date:  2022-02-08

2.  Acquisition of Self-Care Responsibility in Youth With Type 1 Diabetes: Opportunities for Improving Tailored Diabetes Education and Support Programs.

Authors:  Rebecca Ortiz La Banca; Lisa K Volkening; Lori M Laffel
Journal:  Diabetes Spectr       Date:  2022-03-09
  2 in total

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