Literature DB >> 33222045

Autism Spectrum Disorder and Genetic Testing: Parents' Attitudes-Data from Turkish Sample.

Aynur Bütün Ayhan1, Utku Beyazıt2, Şenay Topuz3, Çağla Zeynep Tunay4, Maryam Nazhad Abbas3, Serkan Yılmaz5,6.   

Abstract

We aimed to examine the opinions of parents' having a child with ASD, on genetic testing, in a Turkish sample. 951 parents' attitudes towards genetic testing were included. 89.1% of the parents did not take a genetic test during pregnancy. 87.6% of the parents agreed to take a genetic test if it could explain the cause of ASDs. 93% agreed to take a genetic test, if it would help to have a better treatment in the future. 63.8% of the participants would approve the storage of their DNA samples for the future studies. 94.8% considered being informed about the purpose of taking DNA material for the early diagnosis and 84.2% considered being suggested genetic tests for early diagnosis as important.
© 2020. Springer Science+Business Media, LLC, part of Springer Nature.

Entities:  

Keywords:  Autism spectrum disorder; Genetic testing; Parents’ attitudes; Turkish sample

Year:  2020        PMID： 33222045     DOI： 10.1007/s10803-020-04798-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  23 in total

Review 1.  Specific genetic disorders and autism: clinical contribution towards their identification.

Authors:  David Cohen; Nadège Pichard; Sylvie Tordjman; Clarisse Baumann; Lydie Burglen; Elsa Excoffier; Gabriela Lazar; Philippe Mazet; Clément Pinquier; Alain Verloes; Delphine Héron
Journal:  J Autism Dev Disord       Date:  2005-02

2.  Parental Perception and Participation in Genetic Testing Among Children With Autism Spectrum Disorders.

Authors:  John W Harrington; Leonard Emuren; Kathryn Restaino; Samantha Schrier Vergano
Journal:  Clin Pediatr (Phila)       Date:  2018-09-28       Impact factor: 1.168

Review 3.  Scoping the evidence for EarlyBird and EarlyBird Plus, two United Kingdom-developed parent education training programmes for autism spectrum disorder.

Authors:  John-Joe Dawson-Squibb; Eugene Lee Davids; Petrus J de Vries
Journal:  Autism       Date:  2018-03-29

4.  Feelings of loss and grief in parents of children diagnosed with autism spectrum disorder (ASD).

Authors:  Manuel Fernańdez-Alcántara; M Paz García-Caro; M Nieves Pérez-Marfil; Cesar Hueso-Montoro; Carolina Laynez-Rubio; Francisco Cruz-Quintana
Journal:  Res Dev Disabil       Date:  2016-05-25

5.  Feeling of burden, psychological distress, and anxiety among primary caregivers of children with home enteral nutrition.

Authors:  Caterina Calderón; Lilianne Gómez-López; Cecilia Martínez-Costa; Soraya Borraz; José Manuel Moreno-Villares; Consuelo Pedrón-Giner
Journal:  J Pediatr Psychol       Date:  2010-08-18

6.  Public knowledge of and attitudes toward genetics and genetic testing.

Authors:  Susanne B Haga; William T Barry; Rachel Mills; Geoffrey S Ginsburg; Laura Svetkey; Jennifer Sullivan; Huntington F Willard
Journal:  Genet Test Mol Biomarkers       Date:  2013-02-13

7.  Effect of parent training vs parent education on behavioral problems in children with autism spectrum disorder: a randomized clinical trial.

Authors:  Karen Bearss; Cynthia Johnson; Tristram Smith; Luc Lecavalier; Naomi Swiezy; Michael Aman; David B McAdam; Eric Butter; Charmaine Stillitano; Noha Minshawi; Denis G Sukhodolsky; Daniel W Mruzek; Kylan Turner; Tiffany Neal; Victoria Hallett; James A Mulick; Bryson Green; Benjamin Handen; Yanhong Deng; James Dziura; Lawrence Scahill
Journal:  JAMA       Date:  2015-04-21       Impact factor: 157.335

8.  The Feasibility and Outcomes of Genetic Testing for Autism and Neurodevelopmental Disorders on an Inpatient Child and Adolescent Psychiatry Service.

Authors:  Aaron D Besterman; Joshua Sadik; Michael J Enenbach; Fabiola Quintero-Rivera; Mark DeAntonio; Julian A Martinez-Agosto
Journal:  Autism Res       Date:  2020-07-14       Impact factor: 4.633

9.  Identification of common genetic risk variants for autism spectrum disorder.

Authors:  Jakob Grove; Stephan Ripke; Thomas D Als; Manuel Mattheisen; Raymond K Walters; Hyejung Won; Jonatan Pallesen; Esben Agerbo; Ole A Andreassen; Richard Anney; Swapnil Awashti; Rich Belliveau; Francesco Bettella; Joseph D Buxbaum; Jonas Bybjerg-Grauholm; Marie Bækvad-Hansen; Felecia Cerrato; Kimberly Chambert; Jane H Christensen; Claire Churchhouse; Karin Dellenvall; Ditte Demontis; Silvia De Rubeis; Bernie Devlin; Srdjan Djurovic; Ashley L Dumont; Jacqueline I Goldstein; Christine S Hansen; Mads Engel Hauberg; Mads V Hollegaard; Sigrun Hope; Daniel P Howrigan; Hailiang Huang; Christina M Hultman; Lambertus Klei; Julian Maller; Joanna Martin; Alicia R Martin; Jennifer L Moran; Mette Nyegaard; Terje Nærland; Duncan S Palmer; Aarno Palotie; Carsten Bøcker Pedersen; Marianne Giørtz Pedersen; Timothy dPoterba; Jesper Buchhave Poulsen; Beate St Pourcain; Per Qvist; Karola Rehnström; Abraham Reichenberg; Jennifer Reichert; Elise B Robinson; Kathryn Roeder; Panos Roussos; Evald Saemundsen; Sven Sandin; F Kyle Satterstrom; George Davey Smith; Hreinn Stefansson; Stacy Steinberg; Christine R Stevens; Patrick F Sullivan; Patrick Turley; G Bragi Walters; Xinyi Xu; Kari Stefansson; Daniel H Geschwind; Merete Nordentoft; David M Hougaard; Thomas Werge; Ole Mors; Preben Bo Mortensen; Benjamin M Neale; Mark J Daly; Anders D Børglum
Journal:  Nat Genet       Date:  2019-02-25       Impact factor: 38.330

10.  Autism genetic testing: a qualitative study of awareness, attitudes, and experiences among parents of children with autism spectrum disorders.

Authors:  Lei-Shih Chen; Lei Xu; Tse-Yang Huang; Shweta U Dhar
Journal:  Genet Med       Date:  2013-01-03       Impact factor: 8.822
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  3 in total

1.  Knowledge and Attitudes toward Genetic Testing for Autism Spectrum Disorders among Parents of Affected Children in Taiwan.

Authors:  Ming Li; Shi-Xi Zhao; Wei-Ju Chen; Tse-Yang Huang; Lei-Shih Chen
Journal:  Genes (Basel)       Date:  2022-01-27       Impact factor: 4.096

2.  Attitudes toward Pursuing Genetic Testing among Parents of Children with Autism Spectrum Disorder in Taiwan: A Qualitative Investigation.

Authors:  Zihan Zhang; Justin Kramer; Haocen Wang; Wei-Ju Chen; Tse-Yang Huang; Yann-Jang Chen; Tung-Sung Tseng; Lei-Shih Chen
Journal:  Int J Environ Res Public Health       Date:  2021-12-23       Impact factor: 3.390

Review 3.  Mini-Review: Genetic Literacy and Engagement With Genetic Testing for Autism Spectrum Disorder.

Authors:  India D Little; Chris Gunter
Journal:  Front Genet       Date:  2021-06-29       Impact factor: 4.599
  3 in total

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