Nathan Perlis1, Antonio Finelli1, Mike Lovas2, Alejandro Berlin3, Janet Papadakos4, Sangeet Ghai5, Vasiliki Bakas6, Shabbir Alibhai7, Odelia Lee2, Adam Badzynski2, David Wiljer8, Alexis Lund1, Amelia Di Meo1, Joseph Cafazzo9, Masoom Haider10. 1. Department of Surgery, Division of Urology, University Health Network, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada. 2. Healthcare Human Factors, University Health Network, University of Toronto, Toronto, ON, Canada. 3. Radiation Medicine Program, University Health Network, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON, Canada. 4. Cancer Health Literacy Research Centre, Princess Margaret Cancer Centre, Patient Education, Cancer Care Ontario; Institute for Health Policy, Management & Evaluation, University of Toronto, Toronto, ON, Canada. 5. Joint Department of Medical Imaging, University Health Network, University of Toronto, Toronto, ON, Canada. 6. Operations, myUHN Portal, University Health Network, University of Toronto, Toronto, ON, Canada. 7. Division of General Internal Medicine and Geriatrics, University Health Network, University of Toronto, Toronto, ON, Canada. 8. Education Technology and Innovation, University Health Network, University of Toronto, Toronto, ON, Canada. 9. Centre for Global eHealth Innovation, University Health Network, Toronto General Hospital, Toronto, ON, Canada. 10. Joint Department of Medical Imaging, Sinai Health System, University of Toronto, Toronto, ON, Canada.
Abstract
INTRODUCTION: As we progress to an era when patient autonomy and shared decision-making are highly valued, there is a need to also have effective patient-centered communication tools. Radiology reports are designed for clinicians and can be very technical and difficult for patients to understand. It is important for patients to understand their magnetic resonance imaging (MRI) report in order to make an informed treatment decision with their physician. Therefore, we aimed to create a patient-centered prostate MRI report to give our patients a better understanding of their clinical condition. METHODS: A prototype patient-centered radiology report (PACERR) was created by identifying items to include based on opinions sought from a group of patients undergoing prostate MRI and medical experts. Data was collected in semi-structured interviews using a salient belief question. A prototype PACERR was created in collaboration with human factors engineering and design, medical imaging, biomedical informatics, and cancer patient education groups. RESULTS: Fifteen patients and eight experts from urology, radiation oncology, radiology, and nursing participated in this study. Patients were particularly interested to have a report with laymen terms, concise language, contextualization of values, definitions of medical terms, and next course of action. Everyone believed the report should include the risk of MRI findings actually being cancer in the subsequent biopsy. CONCLUSIONS: A prostate MRI PACERR has been developed to communicate the most important findings relevant to decision-making in prostate cancer using patient-oriented design principles. The ability of this tool to improve patient knowledge and communication will be explored.
INTRODUCTION: As we progress to an era when patient autonomy and shared decision-making are highly valued, there is a need to also have effective patient-centered communication tools. Radiology reports are designed for clinicians and can be very technical and difficult for patients to understand. It is important for patients to understand their magnetic resonance imaging (MRI) report in order to make an informed treatment decision with their physician. Therefore, we aimed to create a patient-centered prostate MRI report to give our patients a better understanding of their clinical condition. METHODS: A prototype patient-centered radiology report (PACERR) was created by identifying items to include based on opinions sought from a group of patients undergoing prostate MRI and medical experts. Data was collected in semi-structured interviews using a salient belief question. A prototype PACERR was created in collaboration with human factors engineering and design, medical imaging, biomedical informatics, and cancerpatient education groups. RESULTS: Fifteen patients and eight experts from urology, radiation oncology, radiology, and nursing participated in this study. Patients were particularly interested to have a report with laymen terms, concise language, contextualization of values, definitions of medical terms, and next course of action. Everyone believed the report should include the risk of MRI findings actually being cancer in the subsequent biopsy. CONCLUSIONS: A prostate MRI PACERR has been developed to communicate the most important findings relevant to decision-making in prostate cancer using patient-oriented design principles. The ability of this tool to improve patient knowledge and communication will be explored.
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