Literature DB >> 32983616

Pediatric and adult neurologist perspectives on the challenges of sustaining a transfer clinic.

Tadeu A Fantaneanu1, Claire S Jacobs1, Claudio De Gusmao1, Ann M Bergin1, Tracey A Milligan1, Phillip L Pearl1, Barbara A Dworetzky1.   

Abstract

We present a novel epilepsy fellow-driven transfer clinic model and discuss the challenges experienced in finding sustainability; this is timely as many pioneering transition clinics are dissolving across North America. The goal of this clinic was to improve patient care and satisfaction, as measured by a post-visit telephone survey. Unfortunately, our transfer clinic model proved unsustainable due to several factors, broadly categorized as (1) cultural-societal differences between the pediatric and adult health care environments, (2) staffing issues, (3) lack of an established standardized process for transfer of care, and (4) financial and administrative barriers. We suggest potential solutions to these challenges, but the fate of transition and transfer of care clinics may ultimately depend on implementation of practice, policy, and/or financial guidelines.
© 2019 American Academy of Neurology.

Entities:  

Year:  2020        PMID: 32983616      PMCID: PMC7508345          DOI: 10.1212/CPJ.0000000000000727

Source DB:  PubMed          Journal:  Neurol Clin Pract        ISSN: 2163-0402


  14 in total

1.  Measuring the transition readiness of youth with special healthcare needs: validation of the TRAQ--Transition Readiness Assessment Questionnaire.

Authors:  Gregory S Sawicki; Katryne Lukens-Bull; Xiaoping Yin; Nathan Demars; I-Chan Huang; William Livingood; John Reiss; David Wood
Journal:  J Pediatr Psychol       Date:  2009-12-29

Review 2.  How can transition to adult care be best orchestrated for adolescents with epilepsy?

Authors:  Peter R Camfield; Danielle Andrade; Carole S Camfield; Jaime Carrizosa-Moog; Richard Appleton; Michel Baulac; Lawrence Brown; Eleonor Ben Menachem; Helen Cross; Isabelle Desguerre; Christina Grant; Hassan Hosny; Laura Jurasek; Marco Mula; Margarete Pfäfflin; Sylvain Rheims; Howard Ring; Renée A Shellhaas; K P Vinayan; Elaine Wirrell; Rima Nabbout
Journal:  Epilepsy Behav       Date:  2019-01-12       Impact factor: 2.937

Review 3.  Models for transition clinics.

Authors:  Jaime Carrizosa; Isabelle An; Richard Appleton; Peter Camfield; Arpad Von Moers
Journal:  Epilepsia       Date:  2014-08       Impact factor: 5.864

4.  Quality improvement in neurology: Child neurology quality measure set: Executive summary.

Authors:  Anup D Patel; Anne T Berg; Lori Billinghurst; Daniel Fain; Erin Fecske; Tim Feyma; Zachary Grinspan; Amy Houtrow; Sanjeev Kothare; Gogi Kumar; Erin Lee; Migvis Monduy; Diego Morita; Christina L Szperka; M Cristina Victorio; Ann Yeh; Jeffrey R Buchhalter
Journal:  Neurology       Date:  2017-12-15       Impact factor: 9.910

5.  The epilepsy transition care gap in young adults with childhood-onset epilepsy.

Authors:  Christine M Baca; Frances Barry; Anne T Berg
Journal:  Epilepsy Behav       Date:  2018-08-25       Impact factor: 2.937

6.  Transition from pediatric to adult health care for young adults with neurological disorders: parental perspectives.

Authors:  Heather Davies; Janet Rennick; Annette Majnemer
Journal:  Can J Neurosci Nurs       Date:  2011

7.  Development and implementation of an adolescent epilepsy transition clinic.

Authors:  Laura Jurasek; Lynne Ray; Daphne Quigley
Journal:  J Neurosci Nurs       Date:  2010-08       Impact factor: 1.230

8.  The neurologist's role in supporting transition to adult health care: A consensus statement.

Authors:  Lawrence W Brown; Peter Camfield; Melissa Capers; Greg Cascino; Mary Ciccarelli; Claudio M de Gusmao; Stephen M Downs; Annette Majnemer; Amy Brin Miller; Christina SanInocencio; Rebecca Schultz; Anne Tilton; Annick Winokur; Mary Zupanc
Journal:  Neurology       Date:  2016-07-27       Impact factor: 9.910

9.  Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis.

Authors:  Peter Camfield; Carol Camfield; Bernd Pohlmann-Eden
Journal:  Epilepsy Curr       Date:  2012-07       Impact factor: 7.500

10.  Transition and transfer from pediatric to adult health care in epilepsy: a families' survey on Dravet syndrome.

Authors:  Mathieu Kuchenbuch; Nicole Chemaly; Catherine Chiron; Olivier Dulac; Rima Nabbout
Journal:  Epilepsy Behav       Date:  2013-08-22       Impact factor: 2.937

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