Literature DB >> 27466477

The neurologist's role in supporting transition to adult health care: A consensus statement.

Lawrence W Brown1, Peter Camfield2, Melissa Capers2, Greg Cascino2, Mary Ciccarelli2, Claudio M de Gusmao2, Stephen M Downs2, Annette Majnemer2, Amy Brin Miller2, Christina SanInocencio2, Rebecca Schultz2, Anne Tilton2, Annick Winokur2, Mary Zupanc2.   

Abstract

The child neurologist has a critical role in planning and coordinating the successful transition from the pediatric to adult health care system for youth with neurologic conditions. Leadership in appropriately planning a youth's transition and in care coordination among health care, educational, vocational, and community services providers may assist in preventing gaps in care, delayed entry into the adult care system, and/or health crises for their adolescent patients. Youth whose neurologic conditions result in cognitive or physical disability and their families may need additional support during this transition, given the legal and financial considerations that may be required. Eight common principles that define the child neurologist's role in a successful transition process have been outlined by a multidisciplinary panel convened by the Child Neurology Foundation are introduced and described. The authors of this consensus statement recognize the current paucity of evidence for successful transition models and outline areas for future consideration.
© 2016 American Academy of Neurology.

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Year:  2016        PMID: 27466477     DOI: 10.1212/WNL.0000000000002965

Source DB:  PubMed          Journal:  Neurology        ISSN: 0028-3878            Impact factor:   9.910


  7 in total

1.  Pediatric and adult neurologist perspectives on the challenges of sustaining a transfer clinic.

Authors:  Tadeu A Fantaneanu; Claire S Jacobs; Claudio De Gusmao; Ann M Bergin; Tracey A Milligan; Phillip L Pearl; Barbara A Dworetzky
Journal:  Neurol Clin Pract       Date:  2020-08

Review 2.  Transition of Children with Neurological Disorders.

Authors:  Ann H Tilton
Journal:  Curr Neurol Neurosci Rep       Date:  2018-03-10       Impact factor: 5.081

Review 3.  Neurogenetics in Child Neurology: Redefining a Discipline in the Twenty-first Century.

Authors:  Walter E Kaufmann
Journal:  Curr Neurol Neurosci Rep       Date:  2016-12       Impact factor: 5.081

4.  Validation of EpiTRAQ, a transition readiness assessment tool for adolescents and young adults with epilepsy.

Authors:  Sarah J Clark; Nicholas J Beimer; Acham Gebremariam; Linda L Fletcher; Anup D Patel; Lorrie Carbone; Jamie A Guyot; Sucheta M Joshi
Journal:  Epilepsia Open       Date:  2020-08-12

5.  Pediatric residents' attitudes and practice patterns regarding transition to adult-oriented care.

Authors:  Laura C Hart; Reed Van Deusen; Alda Maria Gonzaga
Journal:  J Commun Healthc       Date:  2017-04-15

6.  Transition Services for Children and Young Adults with Movement Disorders: A Survey by the MDS Task Force on Pediatrics.

Authors:  Amit Batla; Jean-Pierre Lin; Jitendra K Sahu; Jonathan W Mink; Tamara Pringsheim; Emmanuel Roze; Manju Kurian; Victor Fung
Journal:  Mov Disord Clin Pract       Date:  2022-09-28

Review 7.  Healthcare transition from childhood to adulthood in Tuberous Sclerosis Complex.

Authors:  Angela Peron; Maria Paola Canevini; Filippo Ghelma; Fabiano Di Marco; Aglaia Vignoli
Journal:  Am J Med Genet C Semin Med Genet       Date:  2018-09-25       Impact factor: 3.908

  7 in total

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