Literature DB >> 20804112

Development and implementation of an adolescent epilepsy transition clinic.

Laura Jurasek1, Lynne Ray, Daphne Quigley.   

Abstract

This article describes the collaborative development of a nurse-led transition clinic within the Comprehensive Epilepsy Program at the Stollery Children's Hospital and at the University of Alberta Hospital. Developed in 2005, our program has been instrumental in assisting 97 teens and their parents' transition from pediatric to adult epilepsy care. Through our Adolescent Epilepsy Transition Clinic, we address concerns expressed by teens and their parents when shifting from pediatric to adult healthcare services, including fear of the unknown, change in appointment location, loss of established relationships, and anticipated decrease in the quality of care posttransition. We also address concerns of adult and pediatric healthcare providers related to the adolescents' working knowledge of how their particular type of epilepsy and its management interact with typical adolescent developmental challenges and future career and lifestyle choices. The results from a process evaluation are presented and offer new insights for improving adolescent transition.

Entities:  

Mesh:

Year:  2010        PMID: 20804112     DOI: 10.1097/jnn.0b013e3181e26be6

Source DB:  PubMed          Journal:  J Neurosci Nurs        ISSN: 0888-0395            Impact factor:   1.230


  12 in total

1.  Pediatric and adult neurologist perspectives on the challenges of sustaining a transfer clinic.

Authors:  Tadeu A Fantaneanu; Claire S Jacobs; Claudio De Gusmao; Ann M Bergin; Tracey A Milligan; Phillip L Pearl; Barbara A Dworetzky
Journal:  Neurol Clin Pract       Date:  2020-08

Review 2.  Systematic Review of the Impact of Transition Interventions for Adolescents With Chronic Illness on Transfer From Pediatric to Adult Healthcare.

Authors:  Patricia Y Chu; Gary R Maslow; Megan von Isenburg; Richard J Chung
Journal:  J Pediatr Nurs       Date:  2015-07-22       Impact factor: 2.145

3.  Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis.

Authors:  Peter Camfield; Carol Camfield; Bernd Pohlmann-Eden
Journal:  Epilepsy Curr       Date:  2012-07       Impact factor: 7.500

Review 4.  Transition care for children with special health care needs.

Authors:  Alaina M Davis; Rebekah F Brown; Julie Lounds Taylor; Richard A Epstein; Melissa L McPheeters
Journal:  Pediatrics       Date:  2014-10-06       Impact factor: 7.124

Review 5.  The challenges and innovations for therapy in children with epilepsy.

Authors:  Jo M Wilmshurst; Anne T Berg; Lieven Lagae; Charles R Newton; J Helen Cross
Journal:  Nat Rev Neurol       Date:  2014-04-08       Impact factor: 42.937

Review 6.  Epilepsy: addressing the transition from pediatric to adult care.

Authors:  Seetha Rajendran; Anand Iyer
Journal:  Adolesc Health Med Ther       Date:  2016-06-27

Review 7.  Expert Opinion on the Management of Lennox-Gastaut Syndrome: Treatment Algorithms and Practical Considerations.

Authors:  J Helen Cross; Stéphane Auvin; Mercè Falip; Pasquale Striano; Alexis Arzimanoglou
Journal:  Front Neurol       Date:  2017-09-29       Impact factor: 4.003

8.  Longitudinal Evaluation of Transition Services ("LETS Study"): protocol for outcome evaluation.

Authors:  Irina Tsybina; Shauna Kingsnorth; Joanne Maxwell; Mark Bayley; Sally Lindsay; Patricia McKeever; Angela Colantonio; Yani Hamdani; Helen Healy; Colin Macarthur
Journal:  BMC Pediatr       Date:  2012-05-15       Impact factor: 2.125

9.  Evaluating outpatient transition clinics: a mixed-methods study protocol.

Authors:  Jane N T Sattoe; Mariëlle A C Peeters; Sander R Hilberink; Erwin Ista; AnneLoes van Staa
Journal:  BMJ Open       Date:  2016-08-26       Impact factor: 2.692

Review 10.  Healthcare transition from childhood to adulthood in Tuberous Sclerosis Complex.

Authors:  Angela Peron; Maria Paola Canevini; Filippo Ghelma; Fabiano Di Marco; Aglaia Vignoli
Journal:  Am J Med Genet C Semin Med Genet       Date:  2018-09-25       Impact factor: 3.908

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