| Literature DB >> 32908677 |
Claire Grant1, Emily Widnall1, Lauren Cross1, Emily Simonoff1,2, Johnny Downs1,2.
Abstract
BACKGROUND: The use of new technologies and methodologies in young people's mental health research is needed to allow more frequent and reliable sampling. Mobile applications and e-platforms create exciting potential for the collection of large-scale cohort data, however there are various feasibility and ethical issues to consider. Consultation with young people is needed to inform the research agenda, and ensure these technologies are engaging, useful and safe. This article describes the process of Public and Patient Involvement (PPI) with a sample of young people in London, with the aim of i) informing the development of a mood-monitoring e-platform, and ii) providing feedback and advice for researchers developing web-based technologies in the mental health field.Entities:
Keywords: Adolescent; Co-design; Mental health; Mobile health; Mood; Patient and public involvement; Smartphones
Year: 2020 PMID: 32908677 PMCID: PMC7470434 DOI: 10.1186/s40900-020-00219-0
Source DB: PubMed Journal: Res Involv Engagem ISSN: 2056-7529
Participating school characteristics
| School A | School B | National average | |
|---|---|---|---|
| Type | Secondary with Sixth form | Secondary with Sixth form | – |
| Selective | Non-selective | Non-selective | – |
| Size | 2070 | 1133 | – |
| PROGRESS 8 score | 0.51 | 0.1 | −0.03 |
| Special Educational Need (%) | 8.1 | 8.9 | 10.8 |
| FREE SCHOOL MEALS (%) | 19.6 | 61.8 | 27.7 |
| English NOT FIRST language (%) | 23.4 | 49.7 | 16.9 |
| Theme | Request | Impact on e-platform |
|---|---|---|
| Young People’s Mental Health | Acknowledge the specific contexts which young people face mental health challenges. | When documenting life-events, the e-platform presents the user with categories, including school, to contextualise their experiences. |
| Allow autonomy in help-seeking and health management. | The platform provides feedback graphs to the user to allow for reflection on mood variation across time and place. It also provides help-seeking resources. | |
| Minimise the focus on ‘mental health’ problems. | The title and icon of the app are not associated with mental health. Questions asked are addressing wellbeing and life-events rather than clinical outcome measures. | |
| Trust | Provide a space to document thoughts and feelings without fear of information being shared. | The platform promises anonymity to the user. The only instances in which this is broken, is if the user was in immediate danger to themselves or others. |
| Clear and concise information on how the data is handled. | The platform has a data privacy policy which is written in lay English terms to allow for complete transparency over the sharing and storing of data. Data sharing preferences are also made flexible, with control given to the user and their account. | |
| Ability to contact the web-developers and others involved. | Contact information for the web-development company and researchers involved are provided to all users, and feedback on app stores regularly checked for queries. | |
| Accessibility | Inclusivity in every character used. | The platform uses an avatar character which is inclusive of race, age and gender. |
| Do not charge for app or in-app features. | The platform is a free service provided for schools, no individual user or school will be charged to access its features. | |
| Make information understandable and digestible. | The platform has tried to minimise ‘words per page’ and has provided a break-down of information on the research which is accessible at all times in an embedded PDF document. | |
| Support | Having a clear safeguarding procedure for at-risk users. | The platform has clinical advisors that will assist in risk screening of any inputting of free-text boxes. |
| Offering support services for those in need. | Embedded as part of the app, there is a ‘support’ tab which lists a range of local and national support resources. Hyperlinks to webpages, phone numbers and app downloads are built in. | |
| Transparency of therapeutic ability and scope. | As part of the sign-up process, the platform outlines the limits of its therapeutic ability – including the frequency of risk screening and the lack of immediate support for users. | |
| Design | Do not box responses into categories. | Most responses on the app are collected through a ‘sliding scale’ to offer flexibility. In sections where this is not possible, an ‘other’ option or free-text box is provided. |
| Avoid using triggering colours. | The app does not use ‘red’ or ‘green’ colours to reflect ‘good’ and ‘bad’. The colour scheme is pastel, and the avatar character is purple, which users felt was gender neutral. | |
| Flexibility in the nature and frequency of notifications. | The app allows the user to determine when notifications are set, with setting preferences at the sign-up process as well as complete flexibility to change this in user settings throughout engagement. |