Literature DB >> 18275404

A multidimensional conceptual framework for analysing public involvement in health services research.

Sandy R Oliver1, Rebecca W Rees, Lorna Clarke-Jones, Ruairidh Milne, Ann R Oakley, John Gabbay, Ken Stein, Phyll Buchanan, Gill Gyte.   

Abstract

OBJECTIVE: To describe the development of a multidimensional conceptual framework capable of drawing out the implications for policy and practice of what is known about public involvement in research agenda setting.
BACKGROUND: Public involvement in research is growing in western and developing countries. There is a need to learn from collective experience and a diverse literature of research, policy documents and reflective reports.
METHODS: Systematic searches of research literature, policy and lay networks identified reports of public involvement in research agenda setting. Framework analysis, previously described for primary research, was used to develop the framework, which was then applied to reports of public involvement in order to analyse and compare these.
FINDINGS: The conceptual framework takes into account the people involved; the people initiating the involvement; the degree of public involvement; the forum for exchange; and methods used for decision making. It also considers context (in terms of the research focus and the historical, geographical or institutional setting), and theoretical basis.
CONCLUSIONS: The framework facilitates learning across diverse experiences, whether reported in policy documents, reflections or formal research, to generate a policy- and practice-relevant overview. A further advantage is that it identifies gaps in the literature which need to be filled in order to inform future research about public involvement.

Entities:  

Mesh:

Year:  2008        PMID: 18275404      PMCID: PMC5060424          DOI: 10.1111/j.1369-7625.2007.00476.x

Source DB:  PubMed          Journal:  Health Expect        ISSN: 1369-6513            Impact factor:   3.377


  25 in total

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Authors:  C Pope; S Ziebland; N Mays
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2.  Relation between agendas of the research community and the research consumer.

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3.  The voice of the customer: consumers define the ideal battery charger.

Authors:  J P Lane; D J Usiak; V I Stone; M J Scherer
Journal:  Assist Technol       Date:  1997

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Journal:  Health Policy       Date:  2002-08       Impact factor: 2.980

5.  Consulting consumers. A manager's guide to consumers.

Authors:  C Williamson
Journal:  Health Serv J       Date:  1995-11-30

6.  Developing an assessment tool for evaluating community involvement.

Authors:  Jane South; Pat Fairfax; Eleanor Green
Journal:  Health Expect       Date:  2005-03       Impact factor: 3.377

7.  Major new survey to identify and prioritise research issues for midwifery practice.

Authors:  J Sleep; E Clark
Journal:  Midwives Chron       Date:  1993-06

8.  What does it mean to involve consumers successfully in NHS research? A consensus study.

Authors:  Rosemary Telford; Jonathan D Boote; Cindy L Cooper
Journal:  Health Expect       Date:  2004-09       Impact factor: 3.377

9.  Perception of risks and benefits of in vitro fertilization, genetic engineering and biotechnology.

Authors:  D R Macer
Journal:  Soc Sci Med       Date:  1994-01       Impact factor: 4.634

10.  Operationalising a model framework for consumer and community participation in health and medical research.

Authors:  Carla Saunders; Sally Crossing; Afaf Girgis; Phyllis Butow; Andrew Penman
Journal:  Aust New Zealand Health Policy       Date:  2007-06-26
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  109 in total

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2.  Increasing the relevance of research to underserved communities: lessons learned from a retreat to engage community health workers with researchers.

Authors:  Heather Angier; Noelle Wiggins; Jessica Gregg; Rachel Gold; Jennifer DeVoe
Journal:  J Health Care Poor Underserved       Date:  2013-05

3.  Can research development bursaries for patient and public involvement have a positive impact on grant applications? A UK-based, small-scale service evaluation.

Authors:  Dawn-Marie Walker; Raksha Pandya-Wood
Journal:  Health Expect       Date:  2013-09-19       Impact factor: 3.377

4.  Nutrition and nurture in infancy and childhood. Abstracts of the Fourth International Interdisciplinary Conference Organized by Maternal & Infant Nutrition & Nurture Unit (MAINN), School of Health, University of Central Lancashire. June 10-12, 2013. Cumbria, United Kingdom.

Authors: 
Journal:  Matern Child Nutr       Date:  2013-11       Impact factor: 3.092

5.  What is involvement in research and what does it achieve? Reflections on a pilot study of the personal costs of stroke.

Authors:  Christopher McKevitt; Nina Fudge; Charles Wolfe
Journal:  Health Expect       Date:  2009-08-19       Impact factor: 3.377

6.  Why involve consumers in eye health research?

Authors:  K Twamley; J Evans; R Wormald
Journal:  Eye (Lond)       Date:  2011-08       Impact factor: 3.775

7.  Public participation: more than a method?: Comment on "Harnessing the potential to quantify public preferences for healthcare priorities through citizens' juries".

Authors:  Annette Boaz; Mary Chambers; Maria Stuttaford
Journal:  Int J Health Policy Manag       Date:  2014-10-15

8.  How can qualitative research be utilised in the NHS when re-designing and commissioning services?

Authors:  Karen L Barker
Journal:  Br J Pain       Date:  2015-02

9.  Assessing Patient Participation in Health Policy Decision-Making in Cyprus.

Authors:  Kyriakos Souliotis; Eirini Agapidaki; Lily Evangelia Peppou; Chara Tzavara; George Samoutis; Mamas Theodorou
Journal:  Int J Health Policy Manag       Date:  2016-08-01

10.  Community-based knowledge transfer and exchange: helping community-based organizations link research to action.

Authors:  Michael G Wilson; John N Lavis; Robb Travers; Sean B Rourke
Journal:  Implement Sci       Date:  2010-04-27       Impact factor: 7.327

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