Literature DB >> 32804103

Novel Outreach Program and Practical Strategies for Patients with Parkinsonism in the COVID-19 Pandemic.

Brianna Sennott1, Katheryn Woo1, Serena Hess2, Daniela Mitchem2, Ellen C Klostermann2, Erica Myrick2, Rodolfo Savica3, Jori E Fleisher2.   

Abstract

The coronavirus disease 2019 (COVID-19) pandemic has upended daily life and neurologic care for most patients, including those with Parkinson's disease and parkinsonism. Disruptions to routine care, high volumes of patient and caregiver calls, and our patients' risk of infection and complications inspired a proactive COVID-19 outreach program. This program targets patients with advanced Parkinson's disease and related disorders, specifically those who are homebound, receiving or eligible for palliative care, and/or lacking support networks. We describe the program and practical strategies providers can implement to support wellbeing and successful telehealth uptake during this time of social isolation and gradual reopening.

Entities:  

Keywords:  COVID-19; Parkinson’s disease; coronavirus; outreach; patient education; telemedicine; well-being

Mesh:

Year:  2020        PMID: 32804103      PMCID: PMC7606485          DOI: 10.3233/JPD-202156

Source DB:  PubMed          Journal:  J Parkinsons Dis        ISSN: 1877-7171            Impact factor:   5.568


  37 in total

1.  Exploring the uptake and implementation of tele-monitored home-exercise programmes in adults with Parkinson's disease: A mixed-methods pilot study.

Authors:  Byron Lai; Kristina Bond; Yumi Kim; Beth Barstow; Emil Jovanov; C Scott Bickel
Journal:  J Telemed Telecare       Date:  2018-08-22       Impact factor: 6.184

2.  Systematic rapid living review on rehabilitation needs due to COVID-19: update as of April 30th, 2020.

Authors:  Alessandro de Sire; Elisa Andrenelli; Francesco Negrini; Stefano Negrini; Maria G Ceravolo
Journal:  Eur J Phys Rehabil Med       Date:  2020-05-15       Impact factor: 2.874

3.  Interdisciplinary palliative care for people with advanced Parkinson's disease: a view from the home.

Authors:  Jori E Fleisher; Ellen C Klostermann; Serena P Hess; Jeanette Lee; Erica Myrick; Joshua Chodosh
Journal:  Ann Palliat Med       Date:  2019-10-14

4.  Epidemiology of the Homebound Population in the United States.

Authors:  Katherine A Ornstein; Bruce Leff; Kenneth E Covinsky; Christine S Ritchie; Alex D Federman; Laken Roberts; Amy S Kelley; Albert L Siu; Sarah L Szanton
Journal:  JAMA Intern Med       Date:  2015-07       Impact factor: 21.873

5.  Co-morbidity and polypharmacy in Parkinson's disease: insights from a large Scottish primary care database.

Authors:  Gary McLean; John V Hindle; Bruce Guthrie; Stewart W Mercer
Journal:  BMC Neurol       Date:  2017-07-01       Impact factor: 2.474

6.  Mental Health, Physical Activity, and Quality of Life in Parkinson's Disease During COVID-19 Pandemic.

Authors:  Ali Shalash; Tamer Roushdy; Mohamed Essam; Mai Fathy; Noha L Dawood; Eman M Abushady; Hanan Elrassas; Asmaa Helmi; Eman Hamid
Journal:  Mov Disord       Date:  2020-06-07       Impact factor: 10.338

7.  Telehealth transformation: COVID-19 and the rise of virtual care.

Authors:  Jedrek Wosik; Marat Fudim; Blake Cameron; Ziad F Gellad; Alex Cho; Donna Phinney; Simon Curtis; Matthew Roman; Eric G Poon; Jeffrey Ferranti; Jason N Katz; James Tcheng
Journal:  J Am Med Inform Assoc       Date:  2020-06-01       Impact factor: 4.497

8.  Disease severity and quality of life in homebound people with advanced Parkinson disease: A pilot study.

Authors:  Jori E Fleisher; Meghan M Sweeney; Sarah Oyler; Talia Meisel; Naomi Friede; Alessandro Di Rocco; Joshua Chodosh
Journal:  Neurol Clin Pract       Date:  2020-08

9.  Virtual Reality Telerehabilitation for Postural Instability in Parkinson's Disease: A Multicenter, Single-Blind, Randomized, Controlled Trial.

Authors:  Marialuisa Gandolfi; Christian Geroin; Eleonora Dimitrova; Paolo Boldrini; Andreas Waldner; Silvia Bonadiman; Alessandro Picelli; Sara Regazzo; Elena Stirbu; Daniela Primon; Christian Bosello; Aristide Roberto Gravina; Luca Peron; Monica Trevisan; Alberto Carreño Garcia; Alessia Menel; Laura Bloccari; Nicola Valè; Leopold Saltuari; Michele Tinazzi; Nicola Smania
Journal:  Biomed Res Int       Date:  2017-11-26       Impact factor: 3.411

10.  Neurologic Features in Severe SARS-CoV-2 Infection.

Authors:  Julie Helms; Stéphane Kremer; Hamid Merdji; Raphaël Clere-Jehl; Malika Schenck; Christine Kummerlen; Olivier Collange; Clotilde Boulay; Samira Fafi-Kremer; Mickaël Ohana; Mathieu Anheim; Ferhat Meziani
Journal:  N Engl J Med       Date:  2020-04-15       Impact factor: 91.245

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  7 in total

1.  IN-HOME-PD: The effects of longitudinal telehealth-enhanced interdisciplinary home visits on care and quality of life for homebound individuals with Parkinson's disease.

Authors:  Jori E Fleisher; Serena P Hess; Ellen C Klostermann; Jeanette Lee; Erica Myrick; Daniela Mitchem; Claire Niemet; Katheryn Woo; Brianna J Sennott; Maya Sanghvi; Natalie Witek; James C Beck; Jayne R Wilkinson; Bichun Ouyang; Deborah A Hall; Joshua Chodosh
Journal:  Parkinsonism Relat Disord       Date:  2022-08-07       Impact factor: 4.402

Review 2.  The state of telemedicine for persons with Parkinson's disease.

Authors:  Robin van den Bergh; Bastiaan R Bloem; Marjan J Meinders; Luc J W Evers
Journal:  Curr Opin Neurol       Date:  2021-08-01       Impact factor: 6.283

3.  Influence of the COVID-19 Pandemic on Quality of Life of Patients with Parkinson's Disease.

Authors:  Dengjun Guo; Bing Han; Yuqiang Lu; Chenling Lv; Xiaoling Fang; Zhenzhong Zhang; Zhenguo Liu; Xiaoping Wang
Journal:  Parkinsons Dis       Date:  2020-10-05

Review 4.  Social and psychological impact of the COVID-19 pandemic on people with Parkinson's disease: a scoping review.

Authors:  S K Brooks; D Weston; N Greenberg
Journal:  Public Health       Date:  2021-09-01       Impact factor: 4.984

Review 5.  Physical Activity, Sedentary Behavior and Well-Being of Adults with Physical Disabilities and/or Chronic Diseases during the First Wave of the COVID-19 Pandemic: A Rapid Review.

Authors:  Diederik R de Boer; Femke Hoekstra; Kimberley I M Huetink; Trynke Hoekstra; Leonie A Krops; Florentina J Hettinga
Journal:  Int J Environ Res Public Health       Date:  2021-06-11       Impact factor: 3.390

6.  Secondary Impact of COVID-19 Pandemic on People with Parkinson's Disease-Results of a Polish Online Survey.

Authors:  Karolina Krzysztoń; Beata Mielańczuk-Lubecka; Jakub Stolarski; Anna Poznańska; Katarzyna Kępczyńska; Agata Zdrowowicz; Izabela Domitrz; Jan Kochanowski
Journal:  Brain Sci       Date:  2021-12-26

Review 7.  Moving Forward from the COVID-19 Pandemic: Needed Changes in Movement Disorders Care and Research.

Authors:  B Y Valdovinos; J S Modica; R B Schneider
Journal:  Curr Neurol Neurosci Rep       Date:  2022-02-02       Impact factor: 6.030

  7 in total

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