Literature DB >> 32674024

Moving towards home-based community-centred integrated care in Parkinson's disease.

Margherita Fabbri1, Ana Castro Caldas2, Joana B Ramos3, Álvaro Sanchez-Ferro4, Angelo Antonini5, Evžen Růžička6, Timothy Lynch7, Oliver Rascol8, David Grimes9, Carsten Eggers10, Tiago A Mestre9, Joaquim J Ferreira11.   

Abstract

People living with Parkinson's disease (PwP) experience a wide range of motor and non-motor symptoms associated with increasing complexity of care delivery. A multispecialty approach has been presented as an intuitive solution for tailored and comprehensive care delivery. Nevertheless, past trials of both multidisciplinary or interdisciplinary care models in PD suggested no measurable change to a small benefit in quality of life (QoL) and failed to show economic sustainability. We propose a home-based community-centred integrated care (iCARE-PD) for PwP as a pragmatic solution to harness the potential of existing care resources using an integrated care strategy, enable self-management support and implement technology-enabled care. The iCARE-PD model is based on Freeman's concept of continuity of care and the expanded Chronic Care Model for organization of care strategies. A home-based community-centred integrated care has immediate implications for clinical practice, with potential benefits in rural areas or lower-income countries, by enhancing access to care with optimized costs. There is a need to establish which and how interventions may be used as an instrument of care in each local deployment of the iCARE-PD model. We put forward a multidisciplinary framework to generate the evidence supportive of its implementation as the standard of care in the future and delineate the core strategies to secure the implementation of this care approach across different health care systems to ensure feasibility and economic sustainability. We envision this model becoming a paradigm of personalized care transferable to people with atypical forms of neurodegenerative parkinsonism. Crown
Copyright © 2020. Published by Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Caregiver; Home care; Integrated care; Parkinson's disease; Technology-enabled care

Year:  2020        PMID: 32674024     DOI: 10.1016/j.parkreldis.2020.07.001

Source DB:  PubMed          Journal:  Parkinsonism Relat Disord        ISSN: 1353-8020            Impact factor:   4.891


  9 in total

1.  Coping Styles in Patients with Parkinson's Disease: Consideration in the Co-Designing of Integrated Care Concepts.

Authors:  Johanne Stümpel; Marlena van Munster; Sylvie Grosjean; David J Pedrosa; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-01

2.  Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.

Authors:  Amélie Gauthier-Beaupré; Emely Poitras; Sylvie Grosjean; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-19

3.  Trends in Health Service Use for Canadian Adults With Dementia and Parkinson Disease During the First Wave of the COVID-19 Pandemic.

Authors:  Susan E Bronskill; Laura C Maclagan; Colleen J Maxwell; Andrea Iaboni; R Liisa Jaakkimainen; Connie Marras; Xuesong Wang; Jun Guan; Daniel A Harris; Abby Emdin; Aaron Jones; Nadia Sourial; Claire Godard-Sebillotte; Isabelle Vedel; Peter C Austin; Richard H Swartz
Journal:  JAMA Health Forum       Date:  2022-01-21

4.  Measuring Quality of Life in Parkinson's Disease-A Call to Rethink Conceptualizations and Assessments.

Authors:  Maria Stührenberg; Carolin S Berghäuser; Marlena van Munster; Anna J Pedrosa Carrasco; David J Pedrosa
Journal:  J Pers Med       Date:  2022-05-16

5.  Co-designing an Integrated Care Network With People Living With Parkinson's Disease: From Patients' Narratives to Trajectory Analysis.

Authors:  Grosjean Sylvie; Jordi Farré Coma; Gal Ota; Laffan Aoife; Sendra Anna; Stuempel Johanne; Mestre Tiago
Journal:  Qual Health Res       Date:  2021-10-11

6.  Telemedicine as an Untapped Opportunity for Parkinson's Nurses Training in Personalized Care Approaches.

Authors:  Marlena van Munster; Johanne Stümpel; Timo Clemens; Katarzyna Czabanowska; David J Pedrosa; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-28

7.  Caring Needs of Cancer Patients from the Perspective of Home Care Nurses: A Qualitative Study.

Authors:  Hadi Hassankhani; Javad Dehghannezhad; Azad Rahmani; Mansour Ghafourifard; Amin Soheili; Mojgan Lotfi
Journal:  Asian Pac J Cancer Prev       Date:  2022-01-01

8.  Smartphone Applications in the Management of Parkinson's Disease in a Family Setting: An Opinion Article.

Authors:  Ting Zhang; Li Dong; Hua Jing; Song Gao
Journal:  Front Neurol       Date:  2021-05-21       Impact factor: 4.003

Review 9.  Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses.

Authors:  Marlena van Munster; Johanne Stümpel; Franziska Thieken; David J Pedrosa; Angelo Antonini; Diane Côté; Margherita Fabbri; Joaquim J Ferreira; Evžen Růžička; David Grimes; Tiago A Mestre
Journal:  J Pers Med       Date:  2021-06-30
  9 in total

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