Literature DB >> 34209024

Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses.

Marlena van Munster1, Johanne Stümpel2,3, Franziska Thieken1, David J Pedrosa1, Angelo Antonini4, Diane Côté5, Margherita Fabbri6, Joaquim J Ferreira7,8,9, Evžen Růžička10, David Grimes11, Tiago A Mestre11.   

Abstract

Delivering healthcare to people living with Parkinson's disease (PD) may be challenging in face of differentiated care needs during a PD journey and a growing complexity. In this regard, integrative care models may foster flexible solutions on patients' care needs whereas Parkinson Nurses (PN) may be pivotal facilitators. However, at present hardly any training opportunities tailored to the care priorities of PD-patients are to be found for nurses. Following a conceptual approach, this article aims at setting a framework for training PN by reviewing existing literature on care priorities for PD. As a result, six prerequisites were formulated concerning a framework for training PN. The proposed training framework consist of three modules covering topics of PD: (i) comprehensive care, (ii) self-management support and (iii) health coaching. A fourth module on telemedicine may be added if applicable. The framework streamlines important theoretical concepts of professional PD management and may enable the development of novel, personalized care approaches.

Entities:  

Keywords:  Parkinson nurse; Parkinson’s disease; integrated care; multidisciplinary care; nursing training; personalized care

Year:  2021        PMID: 34209024     DOI: 10.3390/jpm11070623

Source DB:  PubMed          Journal:  J Pers Med        ISSN: 2075-4426


  81 in total

1.  Cost of disorders of the brain in Europe 2010.

Authors:  Anders Gustavsson; Mikael Svensson; Frank Jacobi; Christer Allgulander; Jordi Alonso; Ettore Beghi; Richard Dodel; Mattias Ekman; Carlo Faravelli; Laura Fratiglioni; Brenda Gannon; David Hilton Jones; Poul Jennum; Albena Jordanova; Linus Jönsson; Korinna Karampampa; Martin Knapp; Gisela Kobelt; Tobias Kurth; Roselind Lieb; Mattias Linde; Christina Ljungcrantz; Andreas Maercker; Beatrice Melin; Massimo Moscarelli; Amir Musayev; Fiona Norwood; Martin Preisig; Maura Pugliatti; Juergen Rehm; Luis Salvador-Carulla; Brigitte Schlehofer; Roland Simon; Hans-Christoph Steinhausen; Lars Jacob Stovner; Jean-Michel Vallat; Peter Van den Bergh; Peter Van den Bergh; Jim van Os; Pieter Vos; Weili Xu; Hans-Ulrich Wittchen; Bengt Jönsson; Jes Olesen
Journal:  Eur Neuropsychopharmacol       Date:  2011-09-15       Impact factor: 4.600

2.  Patients' experiences with hospital care in five countries.

Authors:  A Coulter; P D Cleary
Journal:  Health Aff (Millwood)       Date:  2001 May-Jun       Impact factor: 6.301

3.  Evaluation of the role of the Parkinson's disease nurse specialist.

Authors:  H Reynolds; J Wilson-Barnett; G Richardson
Journal:  Int J Nurs Stud       Date:  2000-08       Impact factor: 5.837

4.  Moving towards patient-centered healthcare for patients with Parkinson's disease.

Authors:  Martijn van der Eijk; Marjan J Faber; Sara Al Shamma; Marten Munneke; Bastiaan R Bloem
Journal:  Parkinsonism Relat Disord       Date:  2011-03-10       Impact factor: 4.891

5.  Home and community care services: a major opportunity for preventive health care.

Authors:  Louisa R Jorm; Scott R Walter; Sanja Lujic; Julie E Byles; Hal L Kendig
Journal:  BMC Geriatr       Date:  2010-05-22       Impact factor: 3.921

Review 6.  How to organize multispecialty care for patients with Parkinson's disease.

Authors:  Marjolein A van der Marck; Bastiaan R Bloem
Journal:  Parkinsonism Relat Disord       Date:  2014-01       Impact factor: 4.891

7.  Introduction of Network-Based Healthcare at Kaiser Permanente.

Authors:  Lonneke Rompen; Nienke M de Vries; Marten Munneke; Carolyn Neff; Todd Sachs; Steve Cedrone; Jason Cheves; Bastiaan R Bloem
Journal:  J Parkinsons Dis       Date:  2020       Impact factor: 5.568

Review 8.  Patient-Centric Care for Parkinson's Disease: From Hospital to the Community.

Authors:  Yin Minn Aye; Sylvia Liew; Shermyn Xiumin Neo; Wei Li; Hwee-Lan Ng; Shu-Ting Chua; Wen-Tao Zhou; Wing-Lok Au; Eng-King Tan; Kay-Yaw Tay; Louis Chew-Seng Tan; Zheyu Xu
Journal:  Front Neurol       Date:  2020-06-09       Impact factor: 4.003

9.  Promoting Self-Care in Nursing Encounters with Persons Affected by Long-Term Conditions-A Proposed Model to Guide Clinical Care.

Authors:  Carina Hellqvist
Journal:  Int J Environ Res Public Health       Date:  2021-02-24       Impact factor: 3.390

Review 10.  Active aging for individuals with Parkinson's disease: definitions, literature review, and models.

Authors:  Seyed-Mohammad Fereshtehnejad; Johan Lökk
Journal:  Parkinsons Dis       Date:  2014-08-25
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  6 in total

1.  The Role of Parkinson Nurses for Personalizing Care in Parkinson's Disease: A Systematic Review and Meta-Analysis.

Authors:  Marlena van Munster; Johanne Stümpel; Franziska Thieken; Florin Ratajczak; Olivier Rascol; Margherita Fabbri; Timo Clemens; Katarzyna Czabanowska; Tiago A Mestre; David J Pedrosa
Journal:  J Parkinsons Dis       Date:  2022       Impact factor: 5.520

2.  Parkinson's disease and Covid-19: The effect and use of telemedicine.

Authors:  Aleksandra M Podlewska; Daniel J van Wamelen
Journal:  Int Rev Neurobiol       Date:  2022-07-14       Impact factor: 4.280

3.  Co-Designing an Integrated Care Network with People Living with Parkinson's Disease: A Heterogeneous Social Network of People, Resources and Technologies.

Authors:  Amélie Gauthier-Beaupré; Emely Poitras; Sylvie Grosjean; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-19

Review 4.  Caregiver Burden in Partners of Parkinsonian Patients with Deep Brain Stimulation.

Authors:  Eileen Gülke; Monika Pötter-Nerger
Journal:  Brain Sci       Date:  2022-02-09

5.  The Impact of Triangle Hierarchical Management on Self-Management Behavior and Quality of Survival in Parkinson's Patients.

Authors:  Yahua Zeng; Jianghua Huang; Xuan Tang; Ting Wang; Shuangqin Chen
Journal:  Front Surg       Date:  2022-04-15

6.  Telemedicine as an Untapped Opportunity for Parkinson's Nurses Training in Personalized Care Approaches.

Authors:  Marlena van Munster; Johanne Stümpel; Timo Clemens; Katarzyna Czabanowska; David J Pedrosa; Tiago A Mestre
Journal:  J Pers Med       Date:  2022-06-28
  6 in total

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