Literature DB >> 32667672

Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality.

Peggye Dilworth-Anderson1, Heehyul Moon2, María P Aranda3,4.   

Abstract

This forum expands and reframes the lens of dementia caregiving research among diverse racial and ethnic groups to better understand the unique needs, stressors, and strengths of multicultural and racial-ethnic family caregivers in the United States. By providing more diverse and inclusive knowledge on caregiving to older adults in the United States, we can create a new path forward with regards to caregiving research. Throughout the article, major questions and answers are supported by critiquing some of the caregiving literature. Discussions are provided to help create inclusive ways of conceptualizing caregiving research and using methodological approaches to reflect the diversity of caregivers and care recipients in the United States. Expanding and reframing the conceptual and methodological lens of diversity, inclusivity and intersectionality can provide evidence to support effective policy, practice, and care in addressing the needs of diverse groups of caregivers and older adults living with dementia.
© The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  Caregiving; Ethnicity; Inclusion; Race; Recruitment

Mesh:

Year:  2020        PMID: 32667672      PMCID: PMC7362616          DOI: 10.1093/geront/gnaa050

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  60 in total

Review 1.  Methodological issues in male caregiver research: an integrative review of the literature.

Authors:  Susan Crocker Houde
Journal:  J Adv Nurs       Date:  2002-12       Impact factor: 3.187

2.  Effect of race on cultural justifications for caregiving.

Authors:  Peggye Dilworth-Anderson; Beverly H Brummett; Paula Goodwin; Sharon Wallace Williams; Redford B Williams; Ilene C Siegler
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2005-09       Impact factor: 4.077

3.  The Meanings African American Caregivers Ascribe to Dementia-Related Changes: The Paradox of Hanging on to Loss.

Authors:  Allison Lindauer; Theresa A Harvath; Patricia H Berry; Peggy Wros
Journal:  Gerontologist       Date:  2015-04-09

4.  Women's health, men's health, and gender and health: implications of intersectionality.

Authors:  Olena Hankivsky
Journal:  Soc Sci Med       Date:  2012-01-25       Impact factor: 4.634

5.  Latent growth models of the longitudinal effects of dementia caregiving: a comparison of African American and White family caregivers.

Authors:  D L Roth; W E Haley; J E Owen; O J Clay; K T Goode
Journal:  Psychol Aging       Date:  2001-09

6.  Relatives of the impaired elderly: correlates of feelings of burden.

Authors:  S H Zarit; K E Reever; J Bach-Peterson
Journal:  Gerontologist       Date:  1980-12

7.  Race, finding meaning, and caregiver distress.

Authors:  C J Farran; B H Miller; J E Kaufman; L Davis
Journal:  J Aging Health       Date:  1997-08

8.  The cost of recruiting Alzheimer's disease caregivers for research.

Authors:  B A Tarlow; D F Mahoney
Journal:  J Aging Health       Date:  2000-11

9.  Cultural construction of disease: a "supernormal" construct of dementia in an American Indian tribe.

Authors:  J Neil Henderson; L Carson Henderson
Journal:  J Cross Cult Gerontol       Date:  2002

10.  Caregiver Well-Being: Intersections of Relationship and Gender.

Authors:  Neena L Chappell; Carren Dujela; André Smith
Journal:  Res Aging       Date:  2014-09-12
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  12 in total

1.  Racial and ethnic disparities in cancer caregiver burden and potential sociocultural mediators.

Authors:  Anny T H R Fenton; Katherine A Ornstein; Peggye Dilworth-Anderson; Nancy L Keating; Erin E Kent; Kristin Litzelman; Andrea C Enzinger; Julia H Rowland; Alexi A Wright
Journal:  Support Care Cancer       Date:  2022-10-03       Impact factor: 3.359

2.  A human factors and ergonomics approach to conceptualizing care work among caregivers of people with dementia.

Authors:  Nicole E Werner; Rachel A Rutkowski; Richard J Holden; Siddarth Ponnala; Andrea Gilmore-Bykovskyi
Journal:  Appl Ergon       Date:  2022-06-08       Impact factor: 3.940

3.  The Role of National Paid Family and Medical Leave Policies in Promoting Health Equity for Older Adults and Their Caregivers.

Authors:  Leah V Estrada; Resendez Jason; G Adriana Perez
Journal:  J Gerontol Nurs       Date:  2022-03-01       Impact factor: 1.436

4.  Promoting Caregiver Mastery in Black American Dementia Caregivers.

Authors:  Kalisha Bonds Johnson; Glenna S Brewster; Ethan Cicero; Kenneth Hepburn; Carolyn K Clevenger; Gaea Daniel; Victoria Pak; Sudeshna Paul; Fayron Epps
Journal:  Gerontologist       Date:  2022-05-26

5.  Stress, Burden, and Well-Being in Dementia and Nondementia Caregivers: Insights From the Caregiving Transitions Study.

Authors:  Orla C Sheehan; William E Haley; Virginia J Howard; Jin Huang; J David Rhodes; David L Roth
Journal:  Gerontologist       Date:  2021-07-13

6.  Dementia Family Caregiving in Rural Appalachia: A Sociocultural Model of Care Decisions and Service Use.

Authors:  Karen A Roberto; Jyoti Savla; Brandy Renee McCann; Rosemary Blieszner; Aubrey L Knight
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2022-06-01       Impact factor: 4.942

7.  The Digital Divide Exacerbates Disparities in Latinx Recruitment for Alzheimer's Disease and Related Dementias Online Education During COVID-19.

Authors:  Ángela Gutiérrez; Rosalba Cain; María P Aranda
Journal:  Gerontol Geriatr Med       Date:  2022-03-01

8.  Family Caregivers in Rural Appalachia Caring for Older Relatives With Dementia: Predictors of Service Use.

Authors:  Jyoti Savla; Karen A Roberto; Rosemary Blieszner; Aubrey L Knight
Journal:  Innov Aging       Date:  2021-12-22

Review 9.  Impact of dementia: Health disparities, population trends, care interventions, and economic costs.

Authors:  María P Aranda; Ian N Kremer; Ladson Hinton; Julie Zissimopoulos; Rachel A Whitmer; Cynthia Huling Hummel; Laura Trejo; Chanee Fabius
Journal:  J Am Geriatr Soc       Date:  2021-07       Impact factor: 7.538

10.  Caregiver Well-Being and Burden: Variations by Race/Ethnicity and Care Recipient Nativity Status.

Authors:  Heehyul E Moon; William E Haley; Sunshine M Rote; Jeanelle S Sears
Journal:  Innov Aging       Date:  2020-09-15
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