Literature DB >> 34610111

Promoting Caregiver Mastery in Black American Dementia Caregivers.

Kalisha Bonds Johnson1, Glenna S Brewster1, Ethan Cicero1, Kenneth Hepburn1, Carolyn K Clevenger1, Gaea Daniel1, Victoria Pak1, Sudeshna Paul1, Fayron Epps1.   

Abstract

Over 6 million older Americans live with Alzheimer's disease and related dementias; Black American older adults' prevalence is more than twice that of non-Hispanic White older adults. The Black American dementia caregiving experience can be encapsulated within the Black Family Socioecological Context Model, which provides a conceptual basis for examining social determinants of health at individual, family, community, and societal levels with careful consideration for how the intersection of race, gender, and class of Black American dementia caregivers influences the multiple dimensions of their caregiving experiences. Family dynamics, community setting, and health care systems have a potentially bidirectional influence on these caregivers, which is shaped by historical and ongoing systemic and institutional racism and general disenfranchisement. This Forum article outlines how the Social Cognitive Theory offers ways for Black American dementia caregivers to achieve a sense of mastery within the complicated and fraught ecology within which their caregiving occurs. We propose a research agenda to create programs and interventions for enhancing a sense of mastery among Black American dementia caregivers. Two concepts in particular, "constraints" and "efficacy expectations," provide ways to create a systematic approach to developing successful coping strategies for the constraints perceived by individuals as they undertake and function in the caregiving role. The recognition of the complexity of the caregiving ecosystem and intersectionality of caregivers' experience and identity emphasize the importance of individualization: Each caregiver's experience of this ecosystem-and therefore each Black American dementia caregiver's way to mastery within it-will be uniquely shaped and experienced.
© The Author(s) 2021. Published by Oxford University Press on behalf of The Gerontological Society of America. All rights reserved. For permissions, please e-mail: journals.permissions@oup.com.

Entities:  

Keywords:  African American; Caregiving; Ecosystems; Intervention; Socioecological

Mesh:

Year:  2022        PMID: 34610111      PMCID: PMC9154278          DOI: 10.1093/geront/gnab147

Source DB:  PubMed          Journal:  Gerontologist        ISSN: 0016-9013


  52 in total

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2.  Family caregiving to elderly African Americans: caregiver types and structures.

Authors:  P Dilworth-Anderson; S W Williams; T Cooper
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  1999-07       Impact factor: 4.077

3.  Retail redlining in New York City: racialized access to day-to-day retail resources.

Authors:  Naa Oyo A Kwate; Ji Meng Loh; Kellee White; Nelson Saldana
Journal:  J Urban Health       Date:  2013-08       Impact factor: 3.671

4.  Reliability and validity of self-care and mobility accommodations measures in the National Health and Aging Trends Study.

Authors:  Vicki A Freedman; Emily M Agree; Jennifer C Cornman; Brenda C Spillman; Judith D Kasper
Journal:  Gerontologist       Date:  2013-09-19

5.  Decisions, Decisions.

Authors:  Emma C Potter; Karen A Roberto; Nancy Brossoie; Rosemary Blieszner
Journal:  Res Aging       Date:  2017-04

Review 6.  Formal Service Use by African American Individuals With Dementia and Their Caregivers: An Integrative Review.

Authors:  Kalisha Bonds; Karen S Lyons
Journal:  J Gerontol Nurs       Date:  2018-06-01       Impact factor: 1.254

7.  Structural Racism and Health Disparities: Reconfiguring the Social Determinants of Health Framework to Include the Root Cause.

Authors:  Ruqaiijah Yearby
Journal:  J Law Med Ethics       Date:  2020-09       Impact factor: 1.718

8.  Tele-Savvy: An Online Program for Dementia Caregivers.

Authors:  Patricia C Griffiths; Mariya Kovaleva; Melinda Higgins; Ashley H Langston; Kenneth Hepburn
Journal:  Am J Alzheimers Dis Other Demen       Date:  2018-03-16       Impact factor: 2.035

9.  Promoting dementia awareness in African-American faith communities.

Authors:  Fayron Epps; Karah Alexander; Glenna S Brewster; Lauren J Parker; Mia Chester; Audrey Tomlinson; Aisha Adkins; Sabrina Zingg; Jacque Thornton
Journal:  Public Health Nurs       Date:  2020-06-18       Impact factor: 1.462

10.  'Walk a mile in my shoes:' African American caregiver perceptions of caregiving and self-care.

Authors:  Fawn A Cothran; Olimpia Paun; Shaila Strayhorn; Lisa L Barnes
Journal:  Ethn Health       Date:  2020-03-01       Impact factor: 2.732

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  1 in total

1.  Active Engagement, Protective Buffering, and Depressive Symptoms in Young-Midlife Couples Surviving Cancer: The Roles of Age and Sex.

Authors:  Karen S Lyons; Jessica R Gorman; Brandon S Larkin; Grace Duncan; Brandon Hayes-Lattin
Journal:  Front Psychol       Date:  2022-02-17
  1 in total

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