Literature DB >> 32612848

Ethical research engagement with Indigenous communities.

Jennifer Billan1, Danette Starblanket1, Sadie Anderson1, Marlin Legare1, Mikayla Caroline Hagel1, Nathan Oakes1, Mackenzie Jardine1, Gail Boehme2, Ethel Dubois2, Orval Spencer2, Millie Hotomani2, Betty McKenna1, Carrie Bourassa1.   

Abstract

INTRODUCTION: Canada's colonial policies and practices have led to barriers for Indigenous older adults' access to healthcare and research. As a result, there is a need for Indigenous-led research and culturally safe practices. Morning Star Lodge is developing a training module to assist AgingTech researchers on ethical, culturally safe ways to engage Indigenous communities. This includes exploring Indigenous health research, community-based partnerships, reciprocal learning, and cultural safety; this is presented through a case study on ethically engaged research.
METHODS: Morning Star Lodge developed a research partnership agreement with File Hills Qu'Appelle Tribal Council and established a Community Research Advisory Committee representing the eleven First Nations within the Tribal Council. The work designing the culturally safe training module is in collaboration with the Community Research Advisory Committee.
RESULTS: Building research partnerships and capacities has changed the way the eleven First Nation communities within File Hills Qu'Appelle Tribal Council view research. As a result, they now disseminate the knowledge within their own networks.
CONCLUSIONS: Indigenous Peoples are resilient in ensuring their sustainability and have far more community engagement and direction. Developing culturally safe approaches to care for Indigenous communities leads to self-determined research. Culturally safe training modules can be applied to marginalized demographics.
© The Author(s) 2020.

Entities:  

Keywords:  Ethically engaged research; Indigenous community-based research; ageing; community-based partnerships; cultural safety

Year:  2020        PMID: 32612848      PMCID: PMC7309372          DOI: 10.1177/2055668320922706

Source DB:  PubMed          Journal:  J Rehabil Assist Technol Eng        ISSN: 2055-6683


  10 in total

1.  Views of First Nation elders on memory loss and memory care in later life.

Authors:  Wendy Hulko; Evelyn Camille; Elisabeth Antifeau; Mike Arnouse; Nicole Bachynski; Denise Taylor
Journal:  J Cross Cult Gerontol       Date:  2010-12

2.  Community-based participatory research in practice-based research networks.

Authors:  John M Westfall; Rebecca F VanVorst; Deborah S Main; Carol Herbert
Journal:  Ann Fam Med       Date:  2006 Jan-Feb       Impact factor: 5.166

3.  Knowledge translation in the context of Aboriginal health.

Authors:  Elizabeth Estey; Andrew Kmetic; Jeffrey Reading
Journal:  Can J Nurs Res       Date:  2008-06

4.  Community-based participatory research with indigenous communities: the proximity paradox.

Authors:  Stephen D Ritchie; Mary Jo Wabano; Jackson Beardy; Jeffrey Curran; Aaron Orkin; David VanderBurgh; Nancy L Young
Journal:  Health Place       Date:  2013-10-03       Impact factor: 4.078

Review 5.  Cultural safety in nursing: the New Zealand experience.

Authors:  E Papps; I Ramsden
Journal:  Int J Qual Health Care       Date:  1996-10       Impact factor: 2.038

6.  Self-determination and data control vital to Indigenous health research.

Authors:  Carolyn Brown
Journal:  CMAJ       Date:  2018-07-23       Impact factor: 8.262

7.  Moving toward holistic wellness, empowerment and self-determination for Indigenous peoples in Canada: Can traditional Indigenous health care practices increase ownership over health and health care decisions?

Authors:  Monique Auger; Teresa Howell; Tonya Gomes
Journal:  Can J Public Health       Date:  2016-12-27

8.  Enacting research ethics in partnerships with indigenous communities in Canada: "Do it in a good way".

Authors:  Jessica Ball; Pauline Janyst
Journal:  J Empir Res Hum Res Ethics       Date:  2008-06       Impact factor: 1.742

9.  Community health workers support community-based participatory research ethics: lessons learned along the research-to-practice-to-community continuum.

Authors:  Selina A Smith; Daniel S Blumenthal
Journal:  J Health Care Poor Underserved       Date:  2012-11

Review 10.  Why cultural safety rather than cultural competency is required to achieve health equity: a literature review and recommended definition.

Authors:  Elana Curtis; Rhys Jones; David Tipene-Leach; Curtis Walker; Belinda Loring; Sarah-Jane Paine; Papaarangi Reid
Journal:  Int J Equity Health       Date:  2019-11-14
  10 in total
  2 in total

1.  Perceptions, Beliefs, and Experiences of Asians and Micronesian Islanders on Family Health History Genetic Cancer Screening Community Outreach.

Authors:  Connie Kim Yen Nguyen-Truong; Andra Davis; Vananh Minh Nguyen Vuong; Kim Quy Vo Nguyen; Anthony My Truong; Jacqueline Leung
Journal:  J Cancer Educ       Date:  2021-09-08       Impact factor: 1.771

2.  Essential Engagement as the First Step in Gaining Entrée into the Laotian American Community on Cervical Cancer Screening.

Authors:  Catherine Pravisay-Malmstadt; Connie K Y Nguyen-Truong
Journal:  Asian Pac Isl Nurs J       Date:  2020
  2 in total

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