Literature DB >> 19385744

Enacting research ethics in partnerships with indigenous communities in Canada: "Do it in a good way".

Jessica Ball1, Pauline Janyst.   

Abstract

Two studies conducted through community-campus partnerships demonstrated emerging frameworks for ethical conduct of research involving Indigenous peoples in Canada. Both projects involved multiple Indigenous community partners whose interests in promoting children's development and fathers' involvement motivated the projects. The Indigenous projects were conceived within a broader social agenda of restorative justice and self-determination of Indigenous peoples in Canada following centuries of colonial government interventions. Guiding principles included community relevance, community participation, mutual capacity building, and benefit to Indigenous communities. Memoranda of Understanding negotiated with each community partner specified the roles of community and university partners and research team members in each phase of the research. Testimonials obtained from community representatives before and after the research projects indicated the success of the projects in yielding benefits to the communities in the form of substantive knowledge and strengthened capacities to engage in collaborative research through community-campus partnerships. The larger collaborative research projects in which these two Indigenous projects were embedded created challenges and opportunities due to varying recognition within these networks of the primacy of relationships as a foundation for research and the indeterminacy of outcomes when ownership of data and control over dissemination is in the hands of community partners.

Entities:  

Year:  2008        PMID: 19385744     DOI: 10.1525/jer.2008.3.2.33

Source DB:  PubMed          Journal:  J Empir Res Hum Res Ethics        ISSN: 1556-2646            Impact factor:   1.742


  21 in total

1.  Views of First Nation elders on memory loss and memory care in later life.

Authors:  Wendy Hulko; Evelyn Camille; Elisabeth Antifeau; Mike Arnouse; Nicole Bachynski; Denise Taylor
Journal:  J Cross Cult Gerontol       Date:  2010-12

2.  "I feel safe just coming here because there are other Native brothers and sisters": findings from a community-based evaluation of the Niiwin Wendaanimak Four Winds Wellness Program.

Authors:  Michelle Firestone; Jessica Syrette; Tessa Jourdain; Vivian Recollet; Janet Smylie
Journal:  Can J Public Health       Date:  2019-03-13

3.  Research Done in "A Good Way": The Importance of Indigenous Elder Involvement in HIV Community-Based Research.

Authors:  Sarah Flicker; Patricia O'Campo; Renée Monchalin; Jesse Thistle; Catherine Worthington; Renée Masching; Adrian Guta; Sherri Pooyak; Wanda Whitebird; Cliff Thomas
Journal:  Am J Public Health       Date:  2015-04-16       Impact factor: 9.308

4.  Improving health research among Indigenous Peoples in Canada.

Authors:  Sarah Hyett; Stacey Marjerrison; Chelsea Gabel
Journal:  CMAJ       Date:  2018-05-22       Impact factor: 8.262

5.  Research partnerships between academic institutions and American Indian and Alaska Native Tribes and organizations: effective strategies and lessons learned in a multisite CTN study.

Authors:  Lisa Rey Thomas; Carmen Rosa; Alyssa Forcehimes; Dennis M Donovan
Journal:  Am J Drug Alcohol Abuse       Date:  2011-09       Impact factor: 3.829

6.  Building a Tribal-Academic Partnership to Address PTSD, Substance Misuse, and HIV Among American Indian Women.

Authors:  Cynthia R Pearson; Lucy Smartlowit-Briggs; Annie Belcourt; Michele Bedard-Gilligan; Debra Kaysen
Journal:  Health Promot Pract       Date:  2018-03-05

7.  Research for improved health: variability and impact of structural characteristics in federally funded community engaged research.

Authors:  Cythina R Pearson; Bonnie Duran; John Oetzel; Maya Margarati; Malia Villegas; Julie Lucero; Nina Wallerstein
Journal:  Prog Community Health Partnersh       Date:  2015

8.  Healing of the canoe: preliminary results of a culturally tailored intervention to prevent substance abuse and promote tribal identity for Native youth in two Pacific Northwest tribes.

Authors:  Dennis M Donovan; Lisa Rey Thomas; Robin Little Wing Sigo; Laura Price; Heather Lonczak; Nigel Lawrence; Katie Ahvakana; Lisette Austin; Albie Lawrence; Joseph Price; Abby Purser; Lenora Bagley
Journal:  Am Indian Alsk Native Ment Health Res       Date:  2015

9.  The implementation of a participatory manuscript development process with Native American tribal awardees as part of the CDC Communities Putting Prevention to Work initiative: challenges and opportunities.

Authors:  Valarie Blue Bird Jernigan; Isaiah 'Shaneequa' Brokenleg; Margie Burkhart; Cornell Magdalena; Candace Sibley; Kristyn Yepa
Journal:  Prev Med       Date:  2014-02-07       Impact factor: 4.018

10.  Back to the basics: Identifying and addressing underlying challenges in achieving high quality and relevant health statistics for indigenous populations in Canada.

Authors:  Janet Smylie; Michelle Firestone
Journal:  Stat J IAOS       Date:  2015
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