| Literature DB >> 32314968 |
Anna Janssen1,2,3, Candice Donnelly1,2,3, Judy Kay4, Peter Thiem5, Aldo Saavedra5,6, Nirmala Pathmanathan7,8, Elisabeth Elder7,8, Phuong Dinh8,9, Masrura Kabir7,8, Kirsten Jackson1,2,3, Paul Harnett2,8,9, Tim Shaw1,3.
Abstract
BACKGROUND: A large quantity of data is collected during the delivery of cancer care. However, once collected, these data are difficult for health professionals to access to support clinical decision making and performance review. There is a need for innovative tools that make clinical data more accessible to support health professionals in these activities. One approach for providing health professionals with access to clinical data is to create the infrastructure and interface for a clinical dashboard to make data accessible in a timely and relevant manner.Entities:
Keywords: clinical informatics; data visualization; eHealth; human-centered design
Mesh:
Year: 2020 PMID: 32314968 PMCID: PMC7201315 DOI: 10.2196/13188
Source DB: PubMed Journal: J Med Internet Res ISSN: 1438-8871 Impact factor: 5.428
Advisory Committee members.
| # | Role |
| 1 | Breast surgeon |
| 2 | Pathologist |
| 3 | Medical oncologist |
| 4 | Data manager |
| 5 | Radiation oncologist |
| 6 | 5 × project team members (data scientists, implementation scientists, and health service researchers) |
The tasks participants were asked to complete and the completion rate for each task.
| ID | Task description | SEQa,b (median) | Noncomplete tasks | ||||
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| 1a | You want to understand the procedures this patient has undergone over the course of their treatment. How do you find that out from this dashboard? | 2 | 0 | |||
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| 1b | Can you please tell me the number of nodes resected in this patient? | 1 | 0 | |||
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| 1c | Can you please tell me the name of the surgeon that performed the first surgical procedure for this patient? | 2 | 0 | |||
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| 2a | How do you find that out from this dashboard? | 1 | 0 | |||
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| 2b | Can you please tell me the BMIc for this patient? | 1 | 0 | |||
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| 2c | Can you please tell me the date the first L-Dexd reading was taken for this patient? | 1 | 0 | |||
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| 3a | How do you assess the progress of a patient that has already developed lymphedema from this dashboard? | 2 | 0 | |||
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| 3b | Can you please tell me whether this patient’s L-Dex readings were on the left or right arm? | 1 | 0 | |||
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| 1 | You want to identify the proportion of patients with lymphedema that had more than 10 nodes resected? How do you find that out from this dashboard? | 1 | 4 | |||
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| 2 | You want to identify the proportion of patients within the organization that currently have or that have had lymphedema. How do you find that out from this dashboard? | 2 | 0 | |||
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| 3 | You want to identify the proportion of patients within the organization that have no data at all. How do you find that out from this dashboard? | 1 | 0 | |||
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| 4 | You want to identify the proportion of patients within the organization that are having ongoing treatment for lymphedema. How do you find that out from this dashboard? | 1 | 0 | |||
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| 5a | You want to identify the proportion of patients within the organization that have recovered from lymphedema. How do you find that out from this dashboard? | 1 | 0 | |||
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| 5b | Can you please tell me how many users these data are based on? | 1 | 0 | |||
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| 6 | You want to identify the proportion of patients within the organization that are having ongoing treatment for lymphedema and have a BMI in the overweight range. How do you find that out from this dashboard? | 3 | —f | |||
aSEQ: Single Ease Question.
bParticipants (n=5) were asked to rank each task after the completion of a 7-point Single Ease Question scale, where 1=very easy and 7=very hard. No participants rated the tasks as hard or very hard, though as indicated in the table some tasks could not be completed for Dashboard 2.
cBMI: body mass index.
dL-Dex: lymphedema index.
eParticipants found it easier to complete tasks on Dashboard 2 as they progressed through the session and became more familiar with the structure of the dashboard.
fThis task was only completed by 3 participants.
Figure 1The final prototype of the individual patient dashboard visualizes data for individual patients who have been screened for lymphedema. The prototype dashboard presents a deidentified patient record populated with clinical data. A pseudonym is used for the patient name and medical record number (MRN). This patient has 5 lymphedema index (L-Dex) readings that were taken between January 2012 and April 2014. All the readings are in the normal range for this patient and have been taken on the right side of the body (indicated with green, as opposed to blue for left). The patient had 1 surgery in April. In this figure, the user has clicked on the expand icon (+) next to Surgery 1 to expand the box and see additional details about this procedure. Radiotherapy 1 shows an unexpanded procedure. BMI: body mass index.
Figure 3A close-up of one chart on the Cohort Data Dashboard: Nodes Resected.