Literature DB >> 32266684

Supporting Newly Identified or Diagnosed Autistic Adults: An Initial Evaluation of an Autistic-Led Programme.

Laura Crane1,2, Caroline Hearst3, Maria Ashworth4, Jade Davies4, Elisabeth L Hill5.   

Abstract

Sixteen adults (diagnosed or self-identified as autistic) participated in one of two iterations of a ten-week autistic-led programme, aimed at helping autistic adults learn more about autism within a peer group context. Motivations for taking part in the programme included a desire for: (1) exploration of autism; (2) empowerment; and (3) the development of practical strategies and coping mechanisms. Interviews were conducted upon completion of the programme and again 6 months later. Using thematic analysis, three themes were identified: (1) appreciation of the autistic-led nature of the programme; (2) unity in diversity; and (3) developing a positive, practical outlook on autism. These promising initial results highlight the value of autistic-led peer support for those recently diagnosed/identified as autistic.

Entities:  

Keywords:  Adults; Autism; Autistic-led; Diagnosis; Peer support; Post-diagnostic support

Mesh：

Year:  2021        PMID： 32266684      PMCID： PMC7954714          DOI： 10.1007/s10803-020-04486-4

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN： 0162-3257


  20 in total

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2.  Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom.

Authors:  Laura Crane; James W Chester; Lorna Goddard; Lucy A Henry; Elisabeth Hill
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3.  A systematic review of quality of life of adults on the autism spectrum.

Authors:  Michael Ayres; Jeremy R Parr; Jacqui Rodgers; David Mason; Leah Avery; Darren Flynn
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Review 4.  Scoping the evidence for EarlyBird and EarlyBird Plus, two United Kingdom-developed parent education training programmes for autism spectrum disorder.

Authors:  John-Joe Dawson-Squibb; Eugene Lee Davids; Petrus J de Vries
Journal:  Autism       Date:  2018-03-29

5.  The misnomer of 'high functioning autism': Intelligence is an imprecise predictor of functional abilities at diagnosis.

Authors:  Gail A Alvares; Keely Bebbington; Dominique Cleary; Kiah Evans; Emma J Glasson; Murray T Maybery; Sarah Pillar; Mirko Uljarević; Kandice Varcin; John Wray; Andrew Jo Whitehouse
Journal:  Autism       Date:  2019-06-19

6.  'Something needs to change': Mental health experiences of young autistic adults in England.

Authors:  Laura Crane; Fern Adams; Georgia Harper; Jack Welch; Elizabeth Pellicano
Journal:  Autism       Date:  2018-02-07

7.  A randomised controlled trial of PEGASUS, a psychoeducational programme for young people with high-functioning autism spectrum disorder.

Authors:  Kate Gordon; Marianna Murin; Ozlem Baykaner; Laura Roughan; Vaan Livermore-Hardy; David Skuse; Will Mandy
Journal:  J Child Psychol Psychiatry       Date:  2014-08-01       Impact factor: 8.982

8.  Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals.

Authors:  Laura Crane; Richard Batty; Hanna Adeyinka; Lorna Goddard; Lucy A Henry; Elisabeth L Hill
Journal:  J Autism Dev Disord       Date:  2018-11

9.  Making the future together: Shaping autism research through meaningful participation.

Authors:  Sue Fletcher-Watson; Jon Adams; Kabie Brook; Tony Charman; Laura Crane; James Cusack; Susan Leekam; Damian Milton; Jeremy R Parr; Elizabeth Pellicano
Journal:  Autism       Date:  2018-08-10

10.  The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype.

Authors:  Sarah Bargiela; Robyn Steward; William Mandy
Journal:  J Autism Dev Disord       Date:  2016-10
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  8 in total

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2.  "I'm Proud to be a Little Bit Different": The Effects of Autistic Individuals' Perceptions of Autism and Autism Social Identity on Their Collective Self-esteem.

Authors:  Rosalind Cooper; Kate Cooper; Ailsa J Russell; Laura G E Smith
Journal:  J Autism Dev Disord       Date:  2021-02

3.  "A Group of Fellow Travellers Who Understand": Interviews With Autistic People About Post-diagnostic Peer Support in Adulthood.

Authors:  Catherine J Crompton; Sonny Hallett; Christine McAuliffe; Andrew C Stanfield; Sue Fletcher-Watson
Journal:  Front Psychol       Date:  2022-03-07

4.  Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life.

Authors:  Gray Atherton; Emma Edisbury; Andrea Piovesan; Liam Cross
Journal:  J Autism Dev Disord       Date:  2021-09-04

5.  Mapping the Dilemmas Parents Face with Disclosing Autism Diagnosis to their Child.

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Journal:  J Autism Dev Disord       Date:  2022-08-11

Review 6.  A capabilities approach to understanding and supporting autistic adulthood.

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Journal:  Nat Rev Psychol       Date:  2022-09-05

7.  Neurotype-Matching, but Not Being Autistic, Influences Self and Observer Ratings of Interpersonal Rapport.

Authors:  Catherine J Crompton; Martha Sharp; Harriet Axbey; Sue Fletcher-Watson; Emma G Flynn; Danielle Ropar
Journal:  Front Psychol       Date:  2020-10-23

8.  "It's Not Just in My Head, and It's Not Just Irrelevant": Autistic Negotiations of Menopausal Transitions.

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