Literature DB >> 29415558

'Something needs to change': Mental health experiences of young autistic adults in England.

Laura Crane1, Fern Adams2, Georgia Harper2, Jack Welch2, Elizabeth Pellicano1,3.   

Abstract

There is a high incidence and prevalence of mental health problems among young people, with several barriers to help-seeking noted in this group. High rates of mental health problems have also been reported in children and adults on the autism spectrum. Taken together, young autistic people may be a particularly vulnerable group when it comes to mental health. Yet, there has been remarkably little work on the mental health needs and experiences of young autistic adults (16-25 years). Adopting a community-based participatory research (CBPR) approach - in which academic researchers and young autistic adults collaborated in an equitable research partnership - we explored young autistic people's experiences of mental health problems and their perspectives on the support they sought, if any, for these problems. A total of 130 young autistic adults took part in the research: 109 completed an online survey and 21 took part in detailed interviews. The results highlight how young autistic people find it difficult to evaluate their mental health, experience high levels of stigma and often face severe obstacles when trying to access mental health support. The findings also demonstrate how listening to - and learning from - young autistic people is crucial in ensuring that their mental health needs are met.

Entities:  

Keywords:  anxiety; autism; community-based participatory research; depression; mental health; support; youth

Mesh:

Year:  2018        PMID: 29415558     DOI: 10.1177/1362361318757048

Source DB:  PubMed          Journal:  Autism        ISSN: 1362-3613


  29 in total

1.  The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants.

Authors:  Christina Nicolaidis; Dora Raymaker; Steven K Kapp; Amelia Baggs; E Ashkenazy; Katherine McDonald; Michael Weiner; Joelle Maslak; Morrigan Hunter; Andrea Joyce
Journal:  Autism       Date:  2019-04-03

2.  "You Feel Like You Kind of Walk Between the Two Worlds": A Participatory Study Exploring How Technology Can Support Emotion Regulation for Autistic People.

Authors:  Lauren Gillies-Walker; Naeem Ramzan; Jean Rankin; Emy Nimbley; Karri Gillespie-Smith
Journal:  J Autism Dev Disord       Date:  2022-01-11

3.  Parent Perspectives on Supports and Barriers for Autistic Youth Transitioning to Adulthood.

Authors:  Jenna M Hoffman; Anne V Kirby
Journal:  J Autism Dev Disord       Date:  2021-09-15

4.  Clinician Knowledge, Confidence, and Treatment Practices in Their Provision of Psychotherapy to Autistic Youth and Youth with ADHD.

Authors:  Caitlyn Gallant; Flora Roudbarani; Alaa Ibrahim; Brenna B Maddox; Jonathan A Weiss
Journal:  J Autism Dev Disord       Date:  2022-09-09

5.  Autistic adults have poorer quality healthcare and worse health based on self-report data.

Authors:  Elizabeth Weir; Carrie Allison; Simon Baron-Cohen
Journal:  Mol Autism       Date:  2022-05-26       Impact factor: 6.476

6.  Longitudinal Analysis of Mental Health in Autistic University Students Across an Academic Year.

Authors:  Matthew Scott; Jenni Leppanen; Melissa Allen; Chris Jarrold; Felicity Sedgewick
Journal:  J Autism Dev Disord       Date:  2022-07-08

7.  "I wouldn't know where to start": Perspectives from clinicians, agency leaders, and autistic adults on improving community mental health services for autistic adults.

Authors:  Brenna B Maddox; Samantha Crabbe; Rinad S Beidas; Lauren Brookman-Frazee; Carolyn C Cannuscio; Judith S Miller; Christina Nicolaidis; David S Mandell
Journal:  Autism       Date:  2019-11-01

8.  Dysregulation in Children and Adolescents Presenting to a Multidisciplinary Autism Clinic.

Authors:  Roma A Vasa; Vini Singh; Rachel G McDonald; Carla Mazefsky; Ji Su Hong; Amy Keefer
Journal:  J Autism Dev Disord       Date:  2021-05-19

9.  Investigating the structure of trait rumination in autistic adults: A network analysis.

Authors:  Zachary J Williams; Erin E McKenney; Katherine O Gotham
Journal:  Autism       Date:  2021-05-31

10.  Children and Young People Presenting in a Pediatric Emergency Department in North-West England in Suicidal Crisis: An Exploratory Case Series Study.

Authors:  Emma Ashworth; Serena Provazza; Molly McCarthy; Pooja Saini
Journal:  Front Psychiatry       Date:  2022-04-25       Impact factor: 5.435

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