| Literature DB >> 32170902 |
Lisa D Hawke1,2, Karleigh Darnay1, Jacqueline Relihan1, Mohammad Khaleghi-Moghaddam3, Skye Barbic3,4,5, Lisa Lachance6,7, Shelly Ben-David4,8, Marion Brown6,7, Srividya Iyer9,10,11, Gloria Chaim1,2, Sophie Soklaridis1,2, Sean A Kidd1,2, Tanya Halsall12,13, Steve Mathias3,4,5, Joanna Henderson1,2.
Abstract
BACKGROUND: There is increasing emphasis on engaging youth in research about youth, their needs, experiences and preferences, notably in health services research. By engaging youth as full partners, research becomes more feasible and relevant, and the validity and richness of findings are enhanced. Consequently, researchers need guidance in engaging youth effectively. This study examines the experiences, needs and knowledge gaps of researchers.Entities:
Keywords: capacity development; patient engagement; youth; youth-adult partnerships
Year: 2020 PMID: 32170902 PMCID: PMC7321719 DOI: 10.1111/hex.13032
Source DB: PubMed Journal: Health Expect ISSN: 1369-6513 Impact factor: 3.377
Figure 1McCain Model of Youth Engagement. Figure licensed under CC‐BY, as presented in Heffernan et al15
Sociodemographic characteristics and professional profiles of participants
| Characteristic | N (%) |
|---|---|
| Age | |
| 20‐29 | 35 (41.7%) |
| 30‐39 | 27 (32.1%) |
| 40‐49 | 14 (16.7%) |
| 50+ | 8 (9.5%) |
| Sex | |
| Male | 10 (11.9%) |
| Female | 73 (86.9%) |
| Other | 1 (1.2%) |
| Primary position | |
| University professor/administrator | 15 (17.9%) |
| Community/hospital‐based researcher | 17 (20.2%) |
| Trainee (PDF, PHD, other, student) | 29 (34.5%) |
| Research staff | 16 (19.0%) |
| Other | 5 (6.0%) |
| Education | |
| Bachelor's or less | 27 (32.1%) |
| Master's | 29 (34.5%) |
| PhD, MD | 27 (32.1%) |
| Primary discipline | |
| Psychology | 27 (32.1%) |
| Social work | 19 (22.6%) |
| Sociology | 13 (15.5%) |
| Medicine (psychiatry or other) | 11 (13.1%) |
| Other health | 16 (19.0%) |
| Other social sciences | 18 (21.4%) |
| Other | 8 (9.5%) |
| Years of experience in youth‐relevant issues | |
| Less than 1 y | 17 (20.2%) |
| 1‐5 y | 41 (48.8%) |
| 6‐10 y | 15 (17.9%) |
| 11+ | 10 (11.9%) |
| Percentage of time spent on research | |
| 0% | 4 (4.8%) |
| 1%‐25% | 26 (31.0%) |
| 26%‐50% | 16 (19.0%) |
| 51%+ | 38 (45.2%) |
Current youth engagement profiles of participants
| Characteristic | N (%) |
|---|---|
| Familiarity with engaged research | |
| Very familiar | 29 (34.5%) |
| Somewhat familiar | 43 (51.2%) |
| Not very familiar | 12 (14.3%) |
| Currently do stakeholder engage research | |
| No | 28 (33.3%) |
| Yes | 56 (66.7%) |
| Currently engage youth | |
| No | 39 (46.4%) |
| Yes | 45 (53.6%) |
| Level of use of youth engagement | |
| Non‐use | 17 (20.2%) |
| Very low use | 21 (25.0%) |
| Low use | 27 (32.1%) |
| Moderate use | 6 (7.1%) |
| High use | 13 (15.5%) |
| Number of projects that include youth engagement | |
| 0 | 32 (38.1%) |
| 1 | 31 (36.9%) |
| 2+ | 20 (23.8%) |
| How youth are engaged | |
| Design (methodology, recruitment strategies, measurement selection) | 37 (44.0%) |
| Identification of target audiences and knowledge translation strategies | 36 (42.9%) |
| Co‐analysing/interpreting findings | 29 (34.5%) |
| Co‐developing knowledge translation materials | 22 (26.2%) |
| Initial planning (identify research question, writing grant) | 19 (22.6%) |
| Co‐presenting at conferences | 19 (22.6%) |
| Co‐authoring manuscripts | 9 (10.7%) |
Figure 2Extent of youth engagement among participants who reported currently engaging youth in research (per cent)
Attitudes towards youth engagement, as a whole and by current youth engagement status
| Subscale | Total | Does not engage youth | Engages youth |
|
|
|---|---|---|---|---|---|
|
|
|
| |||
| Concern | 4.535 (0.615) | 4.462 (0.543) | 4.598 (0.671) | 1.016 | .313 |
| Self‐efficacy | 3.437 (0.653) | 3.353 (0.713) | 3.509 (0.595) | 1.097 | .276 |
| Complexity | 2.938 (0.517) | 2.918 (0.502) | 2.956 (0.534) | 0.331 | .742 |
| Compatibility | 4.024 (0.662) | 3.846 (0.687) | 4.178 (0.604) | 2.353 | .021 |
| Relative advantage | 4.137 (0.733) | 3.930 (0.607) | 4.317 (0.789) | 2.490 | .015 |
Perceived barriers to engaging youth in research among participants, as a whole and by current engagement status
| Barrier | Total | Does not engage youth | Engages youth | χ2(1) |
|
|---|---|---|---|---|---|
| N (%) | N (%) | N (%) | |||
| 1. Not sure how to engage youth on a practical level | 38 (45.2%) | 19 (48.7%) | 19 (42.2%) | 0.356 | .551 |
| 2. Don't know how to prepare youth to engage in research in this way | 37 (44.0%) | 17 (43.6%) | 20 (44.4%) | 0.006 | .937 |
| 3. Don't know how to get a representative group of youth together | 34 (40.5%) | 17 (43.6%) | 17 (37.8%) | 0.293 | .588 |
| 4. Don't have funding to support this | 32 (38.1%) | 11 (28.2%) | 21 (46.7%) | 3.020 | .082 |
| 5. Unsure about the ethical considerations of engaging youth | 28 (33.3%) | 15 (38.5%) | 13 (28.9%) | 0.862 | .353 |
| 6. Don't have time or human resources to support this | 18 (21.4%) | 8 (20.5%) | 10 (22.2%) | 0.036 | .849 |
| 7. Not sure I can appropriately relate to youth or communicate with them effectively | 8 (9.5%) | 4 (10.3%) | 4 (8.9%) | 0.045 | 1.000 |
| 8. Department/university doesn't recognize the value of this type of work | 7 (8.3%) | 3 (7.7%) | 4 (8.9%) | 0.039 | 1.000 |
| 9. Not relevant to the type of research I do | 4 (4.8%) | 4 (10.3%) | 0 (0.0%) | 4.846 | .043 |
| 10. Not interested in working in this way | 1 (1.2%) | 1 (2.6%) | 0 (0.0%) | 1.168 | .464 |
| 11. Other institutional barrier | 9 (10.7%) | 5 (12.8%) | 4 (8.9%) | 0.338 | .727 |
Chi‐square for items 1‐6, Fisher's exact test for items 7‐11 due to small cell sizes.
Youth engagement capacity development needs of participants, as a whole and by current engagement status
| Total | Does not engage youth | Engages youth | χ2(1) |
| |
|---|---|---|---|---|---|
| N (%) | N (%) | N (%) | |||
| Strengthened network of youth‐engaged researcher | 61 (72.6%) | 28 (71.8%) | 33 (73.3%) | 0.025 | .875 |
| Additional training | 58 (69.0%) | 26 (66.7%) | 32 (71.1%) | 0.193 | .660 |
| Greater funder appreciation of youth engagement | 42 (50.0%) | 15 (38.5%) | 27 (60.0%) | 3.877 | .049 |
| On‐going consultation | 38 (45.2%) | 18 (46.2%) | 20 (44.4%) | 0.025 | .875 |
| Greater institutional appreciation of youth engagement | 36 (42.9%) | 11 (28.2%) | 25 (55.6%) | 6.382 | .012 |
| Enhanced curriculum | 35 (41.7%) | 16 (41.0%) | 19 (42.2%) | 0.012 | .912 |
| Online training | 28 (33.3%) | 11 (28.2%) | 17 (37.8%) | 0.862 | .353 |