Literature DB >> 30353772

Barriers and enablers to meaningful youth participation in mental health research: qualitative interviews with youth mental health researchers.

Sarah Faithfull1, Lisa Brophy1, Kerryn Pennell2,3, Magenta B Simmons2,3.   

Abstract

BACKGROUND: Involving young people in co-designing and conducting youth mental health research is essential to ensure research is relevant and responsive to the needs of young people. Despite this, many barriers exist to meaningful involvement. AIMS: To explore the experiences, barriers and enablers to partnering with young people for mental health research.
METHODS: Semi-structured, qualitative interviews were conducted with 19 researchers employed at a youth mental health research institute in Australia. Thematic analysis was used to analyse these data.
RESULTS: How researchers conceptualise youth participation was related to how confident and competent they felt engaging with young people. Attitudes and beliefs about the impact of youth participation on research quality were related to emotional factors, such as feelings of anxiety or excitement. Whether researchers engaged in youth participation was affected by resources, culture and the structures that their organisation had in place.
CONCLUSION: Researchers generally want to engage young people in their work, but several factors can hinder this. By understanding the challenges facing researchers, and drawing on the factors that encourage and support those already engaging with young people, a framework to support genuine and meaningful youth participation in mental health research can be developed.

Entities:  

Keywords:  Youth mental health; participatory research; lived experience; patients and public involvement; consumer research; service user research

Mesh:

Year:  2018        PMID: 30353772     DOI: 10.1080/09638237.2018.1521926

Source DB:  PubMed          Journal:  J Ment Health        ISSN: 0963-8237


  12 in total

1.  Youth Perspectives on Integrated Youth Services: A Discrete Choice Conjoint Experiment.

Authors:  Joanna Henderson; Lisa D Hawke; Srividya N Iyer; Em Hayes; Karleigh Darnay; Steve Mathias; Lehana Thabane
Journal:  Can J Psychiatry       Date:  2021-12-07       Impact factor: 5.321

2.  Key features of an innovative sub-acute residential service for young people experiencing mental ill health.

Authors:  Rachael Green; Penelope Fay Mitchell; Kira Lee; Ella Svensson; Jia-Wern Toh; Carolyn Barentsen; Michala Copeland; J Richard Newton; Kari Christine Hawke; Lisa Brophy
Journal:  BMC Psychiatry       Date:  2019-10-23       Impact factor: 3.630

3.  INNOVATE Research: Impact of a workshop to develop researcher capacity to engage youth in research.

Authors:  Lisa D Hawke; Karleigh Darnay; Marion Brown; Srividya Iyer; Shelly Ben-David; Mohammad Khaleghi-Moghaddam; Jacqueline Relihan; Skye Barbic; Lisa Lachance; Steve Mathias; Tanya Halsall; Sean A Kidd; Sophie Soklaridis; Joanna Henderson
Journal:  Health Expect       Date:  2020-09-09       Impact factor: 3.377

4.  Developing a post-discharge suicide prevention intervention for children and young people: a qualitative study of integrating the lived-experience of young people, their carers, and mental health clinicians.

Authors:  David P Watling; Megan H W Preece; Jacinta Hawgood; Sharyn Bloomfield; Kairi Kõlves
Journal:  Child Adolesc Psychiatry Ment Health       Date:  2022-03-27       Impact factor: 3.033

5.  Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project.

Authors:  Petter Viksveen; Nicole E Cardenas; Maya Ibenfeldt; Laia G Meldahl; Lou Krijger; Julia R Game; Maren McLean Andvik; Oliver Cuddeford; Samuel Duerto; Murad Mustafa; Mathias Tong
Journal:  Health Expect       Date:  2021-11-10       Impact factor: 3.377

Review 6.  Stakeholder engagement to inform evidence-based treatment implementation for children's mental health: a scoping review.

Authors:  Noah S Triplett; Grace S Woodard; Clara Johnson; Julie K Nguyen; Rashed AlRasheed; Frank Song; Sophia Stoddard; Jules Cesar Mugisha; Kristen Sievert; Shannon Dorsey
Journal:  Implement Sci Commun       Date:  2022-07-29

7.  Enhancing researcher capacity to engage youth in research: Researchers' engagement experiences, barriers and capacity development priorities.

Authors:  Lisa D Hawke; Karleigh Darnay; Jacqueline Relihan; Mohammad Khaleghi-Moghaddam; Skye Barbic; Lisa Lachance; Shelly Ben-David; Marion Brown; Srividya Iyer; Gloria Chaim; Sophie Soklaridis; Sean A Kidd; Tanya Halsall; Steve Mathias; Joanna Henderson
Journal:  Health Expect       Date:  2020-03-14       Impact factor: 3.377

8.  Opening the door: inviting youth and parent perspectives on youth mental health emergency department use.

Authors:  Leslie Anne Campbell; David Lovas; Ellen Withers; Kylie Peacock
Journal:  Res Involv Engagem       Date:  2020-05-27

9.  Introduction to the PLOS ONE collection on 'Understanding and preventing suicide: Towards novel and inclusive approaches'.

Authors:  Jo Robinson; Kairi Kolves; Merike Sisask
Journal:  PLoS One       Date:  2022-03-10       Impact factor: 3.240

Review 10.  Ethical issues in participatory arts methods for young people with adverse childhood experiences.

Authors:  Gabriela Pavarini; Lindsay M Smith; Nicola Shaughnessy; Anna Mankee-Williams; Josita Kavitha Thirumalai; Natalie Russell; Kamaldeep Bhui
Journal:  Health Expect       Date:  2021-07-27       Impact factor: 3.377

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