Nana Amankwah1, Maryam Oskoui2,3,4, Rochelle Garner5, Christina Bancej1, Douglas G Manuel5,6,7,8,9,10,11, Ron Wall1, Philippe Finès5, Julie Bernier5, Karen Tu11,12,13, Kim Reimer14. 1. Public Health Agency of Canada, Ottawa, Ontario, Canada. 2. Departments of Pediatrics and Neurology Neurosurgery, McGill University, Montréal, Quebec, Canada. 3. Division of Pediatric Neurology, Montréal Children's Hospital, McGill University Health Centre, Montréal, Quebec, Canada. 4. Department of Epidemiology Biostatistics and Occupational Health, McGill University, Montréal, Quebec, Canada. 5. Health Analysis Division, Statistics Canada, Ottawa, Ontario, Canada. 6. Ottawa Hospital Research Institute, Ottawa, Ontario, Canada. 7. University of Ottawa, Ottawa, Ontario, Canada. 8. Bruyère Research Institute, Ottawa, Ontario, Canada. 9. School of Public and Population Health, University of Ottawa, Ottawa, Ontario, Canada. 10. Institute for Clinical Evaluative Sciences, Ottawa, Ontario, Canada. 11. North York General Hospital, Toronto, Ontario, Canada. 12. Department of Family and Community Medicine, Department of Medicine and Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada. 13. Toronto Western Hospital Family Health Team, University Health Network, Toronto, Ontario, Canada. 14. Population Health Surveillance and Epidemiology, Office of the Provincial Health Officer, British Columbia Ministry of Health, Victoria, British Columbia, Canada.
Abstract
INTRODUCTION: The objective of our study was to present model-based estimates and projections on current and future health and economic impacts of cerebral palsy in Canada over a 20-year time horizon (2011-2031). METHODS: We used Statistics Canada's Population Health Model (POHEM)-Neurological to simulate individuals' disease states, risk factors and health determinants and to describe and project health outcomes, including disease incidence, prevalence, life expectancy, health-adjusted life expectancy, health-related quality of life and health care costs over the life cycle of Canadians. Cerebral palsy cases were identified from British Columbia's health administrative data sources. A population-based cohort was then used to generate the incidence and mortality rates, enabling the projection of future incidence and mortality rates. A utility-based measure (Health Utilities Index Mark 3) was also included in the model to reflect various states of functional health to allow projections of health-related quality of life. Finally, we estimated caregiving parameters and health care costs from Canadian national surveys and health administrative data and included them as model parameters to assess the health and economic impact of cerebral palsy. RESULTS: Although the overall crude incidence rate of cerebral palsy is projected to remain stable, newly diagnosed cases of cerebral palsy will rise from approximately 1800 in 2011 to nearly 2200 in 2031. In addition, the number of people with the condition is expected to increase from more than 75 000 in 2011 to more than 94 000 in 2031. Direct health care costs in constant 2010 Canadian dollars were about $11 700 for children with cerebral palsy aged 1-4 years versus about $600 for those without the condition. In addition, people with cerebral palsy tend to have longer periods in poorer health-related quality of life. CONCLUSION: Individuals with cerebral palsy will continue to face challenges related to an ongoing need for specialized medical care and a rising need for supportive services. Our study offers important insights into future costs and impacts associated with cerebral palsy and provides valuable information that could be used to develop targeted health programs and strategies for Canadians living with this condition.
INTRODUCTION: The objective of our study was to present model-based estimates and projections on current and future health and economic impacts of cerebral palsy in Canada over a 20-year time horizon (2011-2031). METHODS: We used Statistics Canada's Population Health Model (POHEM)-Neurological to simulate individuals' disease states, risk factors and health determinants and to describe and project health outcomes, including disease incidence, prevalence, life expectancy, health-adjusted life expectancy, health-related quality of life and health care costs over the life cycle of Canadians. Cerebral palsy cases were identified from British Columbia's health administrative data sources. A population-based cohort was then used to generate the incidence and mortality rates, enabling the projection of future incidence and mortality rates. A utility-based measure (Health Utilities Index Mark 3) was also included in the model to reflect various states of functional health to allow projections of health-related quality of life. Finally, we estimated caregiving parameters and health care costs from Canadian national surveys and health administrative data and included them as model parameters to assess the health and economic impact of cerebral palsy. RESULTS: Although the overall crude incidence rate of cerebral palsy is projected to remain stable, newly diagnosed cases of cerebral palsy will rise from approximately 1800 in 2011 to nearly 2200 in 2031. In addition, the number of people with the condition is expected to increase from more than 75 000 in 2011 to more than 94 000 in 2031. Direct health care costs in constant 2010 Canadian dollars were about $11 700 for children with cerebral palsy aged 1-4 years versus about $600 for those without the condition. In addition, people with cerebral palsy tend to have longer periods in poorer health-related quality of life. CONCLUSION: Individuals with cerebral palsy will continue to face challenges related to an ongoing need for specialized medical care and a rising need for supportive services. Our study offers important insights into future costs and impacts associated with cerebral palsy and provides valuable information that could be used to develop targeted health programs and strategies for Canadians living with this condition.
Entities:
Keywords:
Canada; cerebral palsy; economic burden; microsimulation modelling; projected incidence and prevalence of cerebral palsy
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