Literature DB >> 32023156

Forging a New Frontier: Providing Palliative Care to People With Cancer in Rural and Remote Areas.

Marie Bakitas1, Kristen Allen Watts1, Emily Malone1, J Nicholas Dionne-Odom1, Susan McCammon1, Richard Taylor1, Rodney Tucker1, Ronit Elk1.   

Abstract

Mounting evidence supports oncology organizations' recommendations of early palliative care as a cancer care best practice for patients with advanced cancer and/or high symptom burden. However, few trials on which these best practices are based have included rural and remote community-based oncology care. Therefore, little is known about whether early palliative care models are applicable in these low-resource areas. This literature synthesis identifies some of the challenges of integrating palliative care in rural and remote cancer care. Prominent themes include being mindful of rural culture; adapting traditional geographically based specialty care delivery models to under-resourced rural practices; and using novel palliative care education delivery methods to increase community-based health professional, layperson, and family palliative expertise to account for limited local specialty palliative care resources. Although there are many limitations, many rural and remote communities also have strengths in their capacity to provide high-quality care by capitalizing on close-knit, committed community practitioners, especially if there are receptive local palliative and hospice care champions. Hence, adapting palliative care models, using culturally appropriate novel delivery methods, and providing remote education and support to existing community providers are promising advances to aid rural people to manage serious illness and to die in place. Reformulating health policy and nurturing academic-community partnerships that support best practices are critical components of providing early palliative care for everyone everywhere.

Entities:  

Mesh:

Year:  2020        PMID: 32023156      PMCID: PMC7082159          DOI: 10.1200/JCO.18.02432

Source DB:  PubMed          Journal:  J Clin Oncol        ISSN: 0732-183X            Impact factor:   44.544


  72 in total

1.  Barriers to optimum end-of-life care for minority patients.

Authors:  Eric L Krakauer; Christopher Crenner; Ken Fox
Journal:  J Am Geriatr Soc       Date:  2002-01       Impact factor: 5.562

2.  The influence of culture on end-of-life decision making.

Authors:  Karen Bullock
Journal:  J Soc Work End Life Palliat Care       Date:  2011

3.  The End of Life Nursing Education Nursing Consortium project.

Authors:  Betty Ferrell; Pam Malloy; Rose Virani
Journal:  Ann Palliat Med       Date:  2015-04

Review 4.  Closing the Gap on Pediatric Palliative Oncology Disparities.

Authors:  Erin R Currie; Steadman L McPeters; Jennifer W Mack
Journal:  Semin Oncol Nurs       Date:  2018-08-10       Impact factor: 2.315

5.  Improving regional and rural cancer services in Western Australia.

Authors:  Violet Platt; Kathleen O'Connor; Rhonda Coleman
Journal:  Aust J Rural Health       Date:  2015-02       Impact factor: 1.662

6.  Project ECHO: an effective means of increasing palliative care capacity.

Authors:  Sanjeev Arora; Tracy Smith; Jennifer Snead; Sarah Zalud-Cerrato; Lisa Marr; Max Watson; Sriram Yennu; Amy Bruce; Chris Piromalli; Stacy Kelley; Nandini Vallath; Gabriela Píriz; Gabriel Sehabiaga; Alvaro Méndez
Journal:  Am J Manag Care       Date:  2017-06       Impact factor: 2.229

7.  Cultural Factors Influencing Advance Care Planning in Progressive, Incurable Disease: A Systematic Review With Narrative Synthesis.

Authors:  Ella McDermott; Lucy Ellen Selman
Journal:  J Pain Symptom Manage       Date:  2018-07-17       Impact factor: 3.612

8.  "There were more decisions and more options than just yes or no": Evaluating a decision aid for advanced cancer patients and their family caregivers.

Authors:  Marie Bakitas; J Nicholas Dionne-Odom; Lisa Jackson; Jennifer Frost; Margaret F Bishop; Zhongze Li
Journal:  Palliat Support Care       Date:  2016-08-12

9.  Nurse-led navigation to provide early palliative care in rural areas: a pilot study.

Authors:  Barbara Pesut; Brenda Hooper; Marnie Jacobsen; Barbara Nielsen; Miranda Falk; Brian P O 'Connor
Journal:  BMC Palliat Care       Date:  2017-06-05       Impact factor: 3.234

10.  White Paper for Global Palliative Care Advocacy: Recommendations from a PAL-LIFE Expert Advisory Group of the Pontifical Academy for Life, Vatican City.

Authors:  Carlos Centeno; Thomas Sitte; Liliana de Lima; Sami Alsirafy; Eduardo Bruera; Mary Callaway; Kathleen Foley; Emmanuel Luyirika; Daniela Mosoiu; Katherine Pettus; Christina Puchalski; M R Rajagopal; Julianna Yong; Eduardo Garralda; John Y Rhee; Nunziata Comoretto
Journal:  J Palliat Med       Date:  2018-09-26       Impact factor: 2.947

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  3 in total

1.  Developing Successful Palliative Care Teams in Rural Communities: A Facilitated Process.

Authors:  Karla Weng; Janelle Shearer; Laura Grangaard Johnson
Journal:  J Palliat Med       Date:  2021-11-11       Impact factor: 2.947

Review 2.  Can you hear me now?: Improving palliative care access through telehealth.

Authors:  Kristen Allen Watts; Emily Malone; J Nicholas Dionne-Odom; Susan McCammon; Erin Currie; Jennifer Hicks; Rodney O Tucker; Eric Wallace; Ronit Elk; Marie Bakitas
Journal:  Res Nurs Health       Date:  2021-01-04       Impact factor: 2.228

3.  Telemedicine in Otolaryngology in the COVID-19 Era: Initial Lessons Learned.

Authors:  Jason F Ohlstein; Jordan Garner; Masayoshi Takashima
Journal:  Laryngoscope       Date:  2020-08-31       Impact factor: 2.970

  3 in total

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