Literature DB >> 31993110

Citizen Science Models in Health Research: an Australian Commentary.

Ann Borda1, Kathleen Gray1, Laura Downie2.   

Abstract

This qualitative review explores how established citizen science models can inform and support meaningful engagement of public in health research in Australia. In particular, with the growth in participatory health research approaches and increasing consumer participation in contributing to this research through digital technologies, there are gaps in our understanding of best practice in health and biomedical citizen science research to address these paradigm shifts. Notable gaps are how we might more clearly define the parameters of such research and which citizen science models might best support digitally-enabled participation falling within these. Further work in this area is expected to lead to how established citizen science methods may help improve the quality of and the translation of public engagement in health research. This is an Open Access article. Authors own copyright of their articles appearing in the Journal of Public Health Informatics. Readers may copy articles without permission of the copyright owner(s), as long as the author and OJPHI are acknowledged in the copy and the copy is used for educational, not-for-profit purposes.

Keywords:  citizen science; community based participatory research; crowdsourcing; public health

Year:  2019        PMID: 31993110      PMCID: PMC6975539          DOI: 10.5210/ojphi.v11i3.10358

Source DB:  PubMed          Journal:  Online J Public Health Inform        ISSN: 1947-2579


  30 in total

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Review 2.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

3.  Emerging ICT for Citizens' Veillance: Theoretical and Practical Insights.

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4.  Involving consumers in health research: what do consumers say?

Authors:  Angela L Todd; Don Nutbeam
Journal:  Public Health Res Pract       Date:  2018-06-14

5.  Evaluating community-based participatory research to improve community-partnered science and community health.

Authors:  Sarah Hicks; Bonnie Duran; Nina Wallerstein; Magdalena Avila; Lorenda Belone; Julie Lucero; Maya Magarati; Elana Mainer; Diane Martin; Michael Muhammad; John Oetzel; Cynthia Pearson; Puneet Sahota; Vanessa Simonds; Andrew Sussman; Greg Tafoya; Emily White Hat
Journal:  Prog Community Health Partnersh       Date:  2012

6.  FoodSwitch: A Mobile Phone App to Enable Consumers to Make Healthier Food Choices and Crowdsourcing of National Food Composition Data.

Authors:  Elizabeth Dunford; Helen Trevena; Chester Goodsell; Ka Hung Ng; Jacqui Webster; Audra Millis; Stan Goldstein; Orla Hugueniot; Bruce Neal
Journal:  JMIR Mhealth Uhealth       Date:  2014-08-21       Impact factor: 4.773

7.  Online citizen science games: Opportunities for the biological sciences.

Authors:  Vickie Curtis
Journal:  Appl Transl Genom       Date:  2014-08-09

8.  Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study.

Authors:  Joanna C Crocker; Anne-Marie Boylan; Jennifer Bostock; Louise Locock
Journal:  Health Expect       Date:  2016-06-24       Impact factor: 3.377

9.  Addressing Pollution-Related Global Environmental Health Burdens.

Authors:  Gabriel M Filippelli; Mark P Taylor
Journal:  Geohealth       Date:  2018-02-19

Review 10.  An Integrative Review of the Barriers to Indigenous Peoples Participation in Biobanking and Genomic Research.

Authors:  Jaclyn Aramoana; Jonathan Koea
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4.  Identifying project topics and requirements in a citizen science project in rare diseases: a participative study.

Authors:  Michaela Neff; Holger Storf; Jessica Vasseur; Jörg Scheidt; Thomas Zerr; Andreas Khouri; Jannik Schaaf
Journal:  Orphanet J Rare Dis       Date:  2022-09-14       Impact factor: 4.303

  4 in total

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