Literature DB >> 31758958

Advancing patient care through the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR).

Seema Aceves1, Margaret H Collins2, Marc E Rothenberg3, Glenn T Furuta4, Nirmala Gonsalves5.   

Abstract

Recent advances in rare disease research are accelerated by the work of consortia that have been supported by the National Institutes of Health. Development of such consortia rely on multidisciplinary relationships and engagement with patient advocacy groups, as well as the National Institutes of Health and industry and academic partners. In this rostrum we present the development of such a process that focuses on eosinophilic gastrointestinal diseases. Principal investigators, patient advocacy groups, research assistants, and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators, and perform innovative pilot studies.
Copyright © 2019 American Academy of Allergy, Asthma & Immunology. Published by Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Eosinophils; advocacy; allergy; consortium; esophagitis; gastrointestinal

Mesh:

Year:  2019        PMID: 31758958      PMCID: PMC6981250          DOI: 10.1016/j.jaci.2019.11.012

Source DB:  PubMed          Journal:  J Allergy Clin Immunol        ISSN: 0091-6749            Impact factor:   10.793


  74 in total

1.  Alignment of parent- and child-reported outcomes and histology in eosinophilic esophagitis across multiple CEGIR sites.

Authors:  Seema S Aceves; Eileen King; Margaret H Collins; Guang-Yu Yang; Kelley E Capocelli; J Pablo Abonia; Dan Atkins; Peter A Bonis; Christina L Carpenter; Evan S Dellon; Michael D Eby; Gary W Falk; Nirmala Gonsalves; Sandeep K Gupta; Ikuo Hirano; Kendra Kocher; Jeffrey P Krischer; John Leung; Jessi Lipscomb; Paul Menard-Katcher; Vincent A Mukkada; Zhaoxing Pan; Jonathan M Spergel; Qin Sun; Barry K Wershil; Marc E Rothenberg; Glenn T Furuta
Journal:  J Allergy Clin Immunol       Date:  2018-05-29       Impact factor: 10.793

2.  TGF-β1-induced phospholamban expression alters esophageal smooth muscle cell contraction in patients with eosinophilic esophagitis.

Authors:  Lisa Y Beppu; Arjun A Anilkumar; Robert O Newbury; Ranjan Dohil; David H Broide; Seema S Aceves
Journal:  J Allergy Clin Immunol       Date:  2014-05-13       Impact factor: 10.793

Review 3.  Endoscopic Treatment of Eosinophilic Esophagitis.

Authors:  Joel E Richter
Journal:  Gastrointest Endosc Clin N Am       Date:  2018-01

4.  New developments in patients with eosinophilic gastrointestinal diseases presented at the CEGIR/TIGERS Symposium at the 2018 American Academy of Allergy, Asthma & Immunology Meeting.

Authors:  Jonathan M Spergel; Seema S Aceves; Kara Kliewer; Nirmala Gonsalves; Mirna Chehade; Joshua B Wechsler; Marion Groetch; Joshua Friedlander; Evan S Dellon; Wendy Book; Ikuo Hirano; Amanda B Muir; Antonella Cianferoni; Lisa Spencer; Chris A Liacouras; Edaire Cheng; Leah Kottyan; Ting Wen; Thomas Platts-Mills; Marc E Rothenberg
Journal:  J Allergy Clin Immunol       Date:  2018-05-24       Impact factor: 10.793

5.  Delay in diagnosis of eosinophilic esophagitis increases risk for stricture formation in a time-dependent manner.

Authors:  Alain M Schoepfer; Ekaterina Safroneeva; Christian Bussmann; Tanja Kuchen; Susanne Portmann; Hans-Uwe Simon; Alex Straumann
Journal:  Gastroenterology       Date:  2013-08-13       Impact factor: 22.682

6.  The adult eosinophilic oesophagitis quality of life questionnaire: a new measure of health-related quality of life.

Authors:  T H Taft; E Kern; M A Kwiatek; I Hirano; N Gonsalves; L Keefer
Journal:  Aliment Pharmacol Ther       Date:  2011-08-02       Impact factor: 8.171

7.  Esophageal dilation in eosinophilic esophagitis: safety and predictors of clinical response and complications.

Authors:  Evan S Dellon; Wood B Gibbs; Tara C Rubinas; Karen J Fritchie; Ryan D Madanick; John T Woosley; Nicholas J Shaheen
Journal:  Gastrointest Endosc       Date:  2010-02-18       Impact factor: 9.427

8.  Toll-like receptor 2 stimulation augments esophageal barrier integrity.

Authors:  Melanie A Ruffner; Li Song; Kelly Maurer; Lihua Shi; Margaret C Carroll; Joshua X Wang; Amanda B Muir; Jonathan M Spergel; Kathleen E Sullivan
Journal:  Allergy       Date:  2019-07-25       Impact factor: 13.146

9.  Dietary treatment of eosinophilic esophagitis.

Authors:  Nirmala Gonsalves; Amir F Kagalwalla
Journal:  Gastroenterol Clin North Am       Date:  2014-03-21       Impact factor: 3.806

10.  Food allergy testing in eosinophilic esophagitis: what the gastroenterologist needs to know.

Authors:  Seema S Aceves
Journal:  Clin Gastroenterol Hepatol       Date:  2013-09-11       Impact factor: 11.382

View more
  7 in total

1.  British Society of Gastroenterology (BSG) and British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) joint consensus guidelines on the diagnosis and management of eosinophilic oesophagitis in children and adults.

Authors:  Anjan Dhar; Hasan N Haboubi; Stephen E Attwood; Marcus K H Auth; Jason M Dunn; Rami Sweis; Danielle Morris; Jenny Epstein; Marco R Novelli; Hannah Hunter; Amanda Cordell; Sharon Hall; Jamal O Hayat; Kapil Kapur; Andrew Robert Moore; Carol Read; Sarmed S Sami; Paul J Turner; Nigel J Trudgill
Journal:  Gut       Date:  2022-05-23       Impact factor: 31.793

2.  Diagnostic merits of the Eosinophilic Esophagitis Diagnostic Panel from a single esophageal biopsy.

Authors:  Susie Min; Tetsuo Shoda; Ting Wen; Marc E Rothenberg
Journal:  J Allergy Clin Immunol       Date:  2021-08-08       Impact factor: 10.793

3.  Impressions and aspirations from the FDA GREAT VI Workshop on Eosinophilic Gastrointestinal Disorders Beyond Eosinophilic Esophagitis and Perspectives for Progress in the Field.

Authors:  Marc E Rothenberg; Shawna K B Hottinger; Nirmala Gonsalves; Glenn T Furuta; Margaret H Collins; Nicholas J Talley; Kathryn Peterson; Calies Menard-Katcher; Macie Smith; Ikuo Hirano; Robert M Genta; Mirna Chehade; Sandeep K Gupta; Jonathan M Spergel; Seema S Aceves; Evan S Dellon
Journal:  J Allergy Clin Immunol       Date:  2021-12-22       Impact factor: 10.793

4.  Quantification of Mucosal Eosinophils for the Histopathologic Diagnosis of Eosinophilic Gastritis and Duodenitis: A Primer for Practicing Pathologists.

Authors:  Kevin O Turner; Margaret H Collins; Marjorie M Walker; Robert M Genta
Journal:  Am J Surg Pathol       Date:  2022-04-01       Impact factor: 6.394

5.  Improving Care in Eosinophil-Associated Diseases: A Charter.

Authors:  David J Jackson; Praveen Akuthota; Rebeca Andradas; Albert J Bredenoord; Amanda Cordell; Sarah Gray; Joyce Kullman; Sameer K Mathur; Ian Pavord; Florence Roufosse; Christian Rubio; Irena Clisson Rusek; Dagmar Simon; Mary Jo Strobel; Tonya Winders
Journal:  Adv Ther       Date:  2022-04-30       Impact factor: 4.070

6.  Long-Lasting Dissociation of Esophageal Eosinophilia and Symptoms After Dilation in Adults With Eosinophilic Esophagitis.

Authors:  Ekaterina Safroneeva; Zhaoxing Pan; Eileen King; Lisa J Martin; Margaret H Collins; Guang-Yu Yang; Kelley E Capocelli; Nicoleta C Arva; J Pablo Abonia; Dan Atkins; Peter A Bonis; Evan S Dellon; Gary W Falk; Nirmala Gonsalves; Sandeep K Gupta; Ikuo Hirano; John Leung; Paul A Menard-Katcher; Vincent A Mukkada; Alain M Schoepfer; Jonathan M Spergel; Barry K Wershil; Marc E Rothenberg; Seema S Aceves; Glenn T Furuta
Journal:  Clin Gastroenterol Hepatol       Date:  2021-05-29       Impact factor: 11.382

7.  High Patient Disease Burden in a Cross-sectional, Multicenter Contact Registry Study of Eosinophilic Gastrointestinal Diseases.

Authors:  Elizabeth T Jensen; Seema S Aceves; Peter A Bonis; Kimberly Bray; Wendy Book; Mirna Chehade; Margaret H Collins; Evan S Dellon; Gary W Falk; Nirmala Gonsalves; Sandeep K Gupta; Ikuo Hirano; David A Katzka; Shay Kyle; Denise Mack; Ellyn Kodroff; John Leung; Vincent A Mukkada; Melissa Scott; Ally Paliana; Kathleen Sable; Jonathan M Spergel; Mary Jo Strobel; Jeffrey Krischer; Marc E Rothenberg; Pablo Abonia
Journal:  J Pediatr Gastroenterol Nutr       Date:  2020-10       Impact factor: 3.288

  7 in total

北京卡尤迪生物科技股份有限公司 © 2022-2023.