Literature DB >> 31728328

Collaboration and new data in ACTION: a learning health care system to improve pediatric heart failure and ventricular assist device outcomes.

David M Peng1, David N Rosenthal2, Farhan Zafar3, Lauren Smyth3, Christina J VanderPluym4, Angela Lorts3.   

Abstract

Outcomes in pediatric heart failure and ventricular assist devices (VADs) remain suboptimal. Given the complexity and limited numbers, centers cannot be expected to acquire mastery and generalizable knowledge independently. Recognizing this problem, the community has formed Advanced Cardiac Therapies Improving Outcomes Network (ACTION), a collaborative learning health care system committed to unrelenting collaboration and continuous learning to improve critical outcomes in pediatric heart failure. ACTION is inclusive of all interested parties and believes the fastest and most effective way to make progress is through working together. ACTION's approaches to collaboration and data sharing will be highlighted. 2019 Translational Pediatrics. All rights reserved.

Entities:  

Keywords:  Pediatric heart failure; learning health care system; quality improvement; real world evidence; ventricular assist devices (VADs)

Year:  2019        PMID: 31728328      PMCID: PMC6825965          DOI: 10.21037/tp.2019.07.12

Source DB:  PubMed          Journal:  Transl Pediatr        ISSN: 2224-4336


  15 in total

1.  Cardiac Networks United: an integrated paediatric and congenital cardiovascular research and improvement network.

Authors:  Michael Gaies; Jeffrey Anderson; Alaina Kipps; Angela Lorts; Nicolas Madsen; Bradley Marino; John M Costello; David Brown; Jeffrey P Jacobs; David Kasnic; Stacey Lihn; Carole Lannon; Peter Margolis; Gail D Pearson; Jonathan Kaltman; John R Charpie; Andrew N Redington; Sara K Pasquali
Journal:  Cardiol Young       Date:  2018-12-20       Impact factor: 1.093

2.  Third Annual Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs) Report: Preimplant Characteristics and Outcomes.

Authors:  David L S Morales; Joseph W Rossano; Christina VanderPluym; Angela Lorts; Ryan Cantor; James D St Louis; Devin Koeh; David L Sutcliffe; Iki Adachi; James K Kirklin; David N Rosenthal; Elizabeth D Blume
Journal:  Ann Thorac Surg       Date:  2019-02-26       Impact factor: 4.330

3.  Use of ventricular assist devices in children across the United States: analysis of 7.5 million pediatric hospitalizations.

Authors:  David L S Morales; Farhan Zafar; Joseph W Rossano; Jorge D Salazar; John L Jefferies; Daniel E Graves; Jeffrey S Heinle; Charles D Fraser
Journal:  Ann Thorac Surg       Date:  2010-10       Impact factor: 4.330

4.  Significant mortality, morbidity and resource utilization associated with advanced heart failure in congenital heart disease in children and young adults.

Authors:  Danielle S Burstein; Pirouz Shamszad; Dingwei Dai; Christopher S Almond; Jack F Price; Kimberly Y Lin; Matthew J O'Connor; Robert E Shaddy; Christopher E Mascio; Joseph W Rossano
Journal:  Am Heart J       Date:  2018-12-05       Impact factor: 4.749

5.  Prevalence, morbidity, and mortality of heart failure-related hospitalizations in children in the United States: a population-based study.

Authors:  Joseph W Rossano; Jeffrey J Kim; Jamie A Decker; Jack F Price; Farhan Zafar; Daniel E Graves; David L S Morales; Jeffrey S Heinle; Biykem Bozkurt; Jeffrey A Towbin; Susan W Denfield; William J Dreyer; John L Jefferies
Journal:  J Card Fail       Date:  2012-04-10       Impact factor: 5.712

6.  Hospital Charges for Pediatric Heart Failure-Related Hospitalizations from 2000 to 2009.

Authors:  Deipanjan Nandi; Kimberly Y Lin; Matthew J O'Connor; Okan U Elci; Jeffrey J Kim; Jamie A Decker; Jack F Price; Farhan Zafar; David L S Morales; Susan W Denfield; William J Dreyer; John L Jefferies; Joseph W Rossano
Journal:  Pediatr Cardiol       Date:  2015-12-08       Impact factor: 1.655

7.  Standardization in patient safety: the WHO High 5s project.

Authors:  Agnès Leotsakos; Hao Zheng; Rick Croteau; Jerod M Loeb; Heather Sherman; Carolyn Hoffman; Louise Morganstein; Dennis O'Leary; Charles Bruneau; Peter Lee; Margaret Duguid; Christian Thomeczek; Erica van der Schrieck-De Loos; Bill Munier
Journal:  Int J Qual Health Care       Date:  2014-04       Impact factor: 2.038

Review 8.  Systematic Literature Review on the Incidence and Prevalence of Heart Failure in Children and Adolescents.

Authors:  Robert E Shaddy; Aneesh Thomas George; Thomas Jaecklin; Eimear Nic Lochlainn; Lalit Thakur; Rumjhum Agrawal; Susan Solar-Yohay; Fabian Chen; Joseph W Rossano; Thomas Severin; Michael Burch
Journal:  Pediatr Cardiol       Date:  2017-12-20       Impact factor: 1.655

9.  Resource Utilization in Pediatric Patients Supported With Ventricular Assist Devices in the United States: A Multicenter Study From the Pediatric Interagency Registry for Mechanically Assisted Circulatory Support and the Pediatric Health Information System.

Authors:  Joseph W Rossano; Ryan S Cantor; Dingwei Dai; Pirouz Shamszad; Yuan-Shung Huang; Matthew Hall; Kimberly Y Lin; R Erik Edens; P Eugene Parrino; James K Kirklin
Journal:  J Am Heart Assoc       Date:  2018-06-01       Impact factor: 5.501

Review 10.  Using a network organisational architecture to support the development of Learning Healthcare Systems.

Authors:  Maria T Britto; Sandra C Fuller; Heather C Kaplan; Uma Kotagal; Carole Lannon; Peter A Margolis; Stephen E Muething; Pamela J Schoettker; Michael Seid
Journal:  BMJ Qual Saf       Date:  2018-02-05       Impact factor: 7.035

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  5 in total

1.  Psychosocial outcomes in pediatric patients with ventricular assist devices and their families: A systematic review.

Authors:  Kelly E Rea; Amanda M McCormick; Heang M Lim; Melissa K Cousino
Journal:  Pediatr Transplant       Date:  2021-03-11

2.  Medicine-Based Evidence in Congenital Heart Disease: How Artificial Intelligence Can Guide Treatment Decisions for Individual Patients.

Authors:  Jef Van den Eynde; Cedric Manlhiot; Alexander Van De Bruaene; Gerhard-Paul Diller; Alejandro F Frangi; Werner Budts; Shelby Kutty
Journal:  Front Cardiovasc Med       Date:  2021-12-02

Review 3.  Identifying requisite learning health system competencies: a scoping review.

Authors:  Paige L McDonald; Jessica Phillips; Kenneth Harwood; Joyce Maring; Philip J van der Wees
Journal:  BMJ Open       Date:  2022-08-23       Impact factor: 3.006

4.  Pediatric Ventricular Assist Device Support in the Netherlands.

Authors:  Sofie Rohde; Christiaan F J Antonides; Rahatullah Muslem; Pieter C van de Woestijne; Marijke H van der Meulen; Ulrike S Kraemer; Michiel Dalinghaus; Ad J J C Bogers
Journal:  World J Pediatr Congenit Heart Surg       Date:  2020-05

Review 5.  Pediatric Cardio-Oncology Medicine: A New Approach in Cardiovascular Care.

Authors:  Hugo R Martinez; Gary S Beasley; Jason F Goldberg; Mohammed Absi; Kaitlin A Ryan; Karine Guerrier; Vijaya M Joshi; Jason N Johnson; Cara E Morin; Caitlin Hurley; Ronald Ray Morrison; Parul Rai; Jane S Hankins; Michael W Bishop; Brandon M Triplett; Matthew J Ehrhardt; Ching-Hon Pui; Hiroto Inaba; Jeffrey A Towbin
Journal:  Children (Basel)       Date:  2021-12-18
  5 in total

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