Literature DB >> 31548231

Legal Challenges in Genetics, Including Duty to Warn and Genetic Discrimination.

Sonia Suter1.   

Abstract

This review will explore two legal issues in genetic counseling: genetic discrimination and the duty to warn. It emphasizes the complexity and variability of federal and state genetic nondiscrimination protections in the United States and how the many gaps in such protections may affect people pursuing genetic testing. The limited law addressing legal obligations genetic counselors owe at-risk relatives likely does not require counselors to warn relatives directly about genetic risks. Whether it permits them to make such disclosures, however, is more uncertain and may depend on the jurisdiction.
Copyright © 2020 Cold Spring Harbor Laboratory Press; all rights reserved.

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Year:  2020        PMID: 31548231      PMCID: PMC7117950          DOI: 10.1101/cshperspect.a036665

Source DB:  PubMed          Journal:  Cold Spring Harb Perspect Med        ISSN: 2157-1422            Impact factor:   6.915


  10 in total

1.  The allure and peril of genetics exceptionalism: do we need special genetics legislation?

Authors:  S M Suter
Journal:  Wash Univ Law Q       Date:  2001

2.  Legal rules and industry norms: the impact of laws restricting health insurers' use of genetic information.

Authors:  M A Hall
Journal:  Jurimetrics       Date:  1999

3.  Whose genes are these anyway?: familial conflicts over access to genetic information.

Authors:  S M Suter
Journal:  Mich Law Rev       Date:  1993-06

4.  ASHG statement. Professional disclosure of familial genetic information. The American Society of Human Genetics Social Issues Subcommittee on Familial Disclosure.

Authors: 
Journal:  Am J Hum Genet       Date:  1998-02       Impact factor: 11.025

5.  Who Knows What, and When?: A Survey of the Privacy Policies Proffered by U.S. Direct-to-Consumer Genetic Testing Companies.

Authors:  Christopher Slobogin; James W Hazel
Journal:  Cornell J Law Public Policy       Date:  2018

6.  GINA at Ten and the Future of Genetic Nondiscrimination Law.

Authors:  Mark A Rothstein
Journal:  Hastings Cent Rep       Date:  2018-05       Impact factor: 2.683

7.  Disentangling privacy from property: toward a deeper understanding of genetic privacy.

Authors:  Sonia M Suter
Journal:  George Washington Law Rev       Date:  2004-04

8.  American Society of Clinical Oncology policy statement update: genetic testing for cancer susceptibility.

Authors: 
Journal:  J Clin Oncol       Date:  2003-04-11       Impact factor: 44.544

9.  GINA at 10 years: the battle over 'genetic information' continues in court.

Authors:  Sonia M Suter
Journal:  J Law Biosci       Date:  2019-05-25

Review 10.  Reconsidering the duty to warn genetically at-risk relatives.

Authors:  Mark A Rothstein
Journal:  Genet Med       Date:  2018-02-01       Impact factor: 8.822

  10 in total
  1 in total

Review 1.  Predictive Genetic Counseling for Neurodegenerative Diseases: Past, Present, and Future.

Authors:  Jill S Goldman
Journal:  Cold Spring Harb Perspect Med       Date:  2020-07-01       Impact factor: 5.159

  1 in total

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