Literature DB >> 29806900

GINA at Ten and the Future of Genetic Nondiscrimination Law.

Mark A Rothstein.   

Abstract

May 21, 2018, marks the tenth anniversary of the signing into law of the Genetic Information Nondiscrimination Act. The Congressional deliberations for GINA were long and difficult. The original bill was introduced in 1995, and for many years, it did not look as if the bill would ever emerge from committee. Several of its provisions raised concerns for insurers, employers, and other stakeholders. After thirteen years, the controversial provisions were either deleted, revised, or clarified. At this ten-year mark, it is appropriate to take stock of GINA. In light of GINA's glacial legislative history, it is reasonable to start thinking about the necessity, wisdom, and feasibility of amending GINA or enacting new legislation to address unresolved or emerging issues of genetic discrimination and trends in genetics, genomics, precision medicine, and related technologies.
© 2018 The Hastings Center.

Mesh:

Year:  2018        PMID: 29806900     DOI: 10.1002/hast.847

Source DB:  PubMed          Journal:  Hastings Cent Rep        ISSN: 0093-0334            Impact factor:   2.683


  8 in total

1.  Attitudes toward pharmacogenetics in patients undergoing CYP2C19 testing following percutaneous coronary intervention.

Authors:  Grace Lee; Lisa A Varughese; Laura Conway; Carol Stojinski; Sandhya Ashokkumar; Karen Monono; William Matthai; Daniel M Kolansky; Jay Giri; Sony Tuteja
Journal:  Per Med       Date:  2022-01-05       Impact factor: 2.512

2.  Importance of Participant-Centricity and Trust for a Sustainable Medical Information Commons.

Authors:  Amy L McGuire; Mary A Majumder; Angela G Villanueva; Jessica Bardill; Juli M Bollinger; Eric Boerwinkle; Tania Bubela; Patricia A Deverka; Barbara J Evans; Nanibaa' A Garrison; David Glazer; Melissa M Goldstein; Henry T Greely; Scott D Kahn; Bartha M Knoppers; Barbara A Koenig; J Mark Lambright; John E Mattison; Christopher O'Donnell; Arti K Rai; Laura L Rodriguez; Tania Simoncelli; Sharon F Terry; Adrian M Thorogood; Michael S Watson; John T Wilbanks; Robert Cook-Deegan
Journal:  J Law Med Ethics       Date:  2019-03       Impact factor: 1.718

Review 3.  International data-sharing norms: from the OECD to the General Data Protection Regulation (GDPR).

Authors:  Mark Phillips
Journal:  Hum Genet       Date:  2018-08-01       Impact factor: 4.132

4.  Parent Perspectives Towards Genetic and Epigenetic Testing for Autism Spectrum Disorder.

Authors:  Kayla E Wagner; Jennifer B McCormick; Sarah Barns; Molly Carney; Frank A Middleton; Steven D Hicks
Journal:  J Autism Dev Disord       Date:  2019-03-22

Review 5.  Governing Personalized Health: A Scoping Review.

Authors:  Philipp Trein; Joël Wagner
Journal:  Front Genet       Date:  2021-04-21       Impact factor: 4.599

6.  The New Precision Stewards?

Authors:  Karen M Meagher; Sara Watson; Gina A Suh; Abinash Virk
Journal:  J Pers Med       Date:  2022-08-12

Review 7.  Legal Challenges in Genetics, Including Duty to Warn and Genetic Discrimination.

Authors:  Sonia Suter
Journal:  Cold Spring Harb Perspect Med       Date:  2020-04-01       Impact factor: 6.915

8.  A systematic literature review of individuals' perspectives on privacy and genetic information in the United States.

Authors:  Ellen W Clayton; Colin M Halverson; Nila A Sathe; Bradley A Malin
Journal:  PLoS One       Date:  2018-10-31       Impact factor: 3.240

  8 in total

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