Literature DB >> 31428815

Informational needs for participation in bioequivalence studies: the perspectives of experienced volunteers.

Nut Koonrungsesomboon1,2, Saranyapin Potikanond3, Mingkwan Na Takuathung3, Wutigri Nimlamool3, Juntra Karbwang4.   

Abstract

PURPOSE: The present study aimed to determine the extent of information that healthy volunteers need in an informed consent form (ICF) to support their decision whether to participate in a bioequivalence study, a type of clinical studies involving the testing of pharmacokinetic equivalence of a generic drug with a brand-name drug in volunteer subjects.
METHODS: This cross-sectional, descriptive study determined the perspectives of individuals who used to participate in bioequivalence studies, using an electronic-based questionnaire. A 5-point modified Likert scale was used to indicate the importance of each element of the ICF content, with an anchored rating scale from 1 (not important) to 5 (very important) for each item.
RESULTS: Of 300 questionnaires distributed, all (100%) were returned. The respondents considered most items to be necessary for their decision, with the score ranging from 3.25 to 4.60 (mean overall score = 4.16 ± 0.30). The four top-rated items were the "major foreseeable risk" (4.60 ± 0.72), "participant's responsibility during participation" (4.52 ± 0.72), "confidentiality and the limit of confidentiality" (4.52 ± 0.82), and "all possible adverse effects of the drug" (4.47 ± 0.74), while the relatively less concerned items were related to general information.
CONCLUSIONS: Most elements of the ICF content required were considered as important by the previously experienced volunteers in bioequivalence studies, notwithstanding that some elements were perceived as more important than others. The data from this study could be used to better tailor relevant information in an ICF to the needs of research participants in bioequivalence studies.

Entities:  

Keywords:  Disclosure; Ethics; Healthy volunteers; Information; Informed consent; Informed consent form

Mesh:

Year:  2019        PMID: 31428815     DOI: 10.1007/s00228-019-02738-6

Source DB:  PubMed          Journal:  Eur J Clin Pharmacol        ISSN: 0031-6970            Impact factor:   2.953


  34 in total

Review 1.  Beyond informed consent.

Authors:  Zulfiqar A Bhutta
Journal:  Bull World Health Organ       Date:  2004-10       Impact factor: 9.408

Review 2.  Bioequivalence; its history, practice, and future.

Authors:  Kamal K Midha; Gordon McKay
Journal:  AAPS J       Date:  2009-10-06       Impact factor: 4.009

3.  Likert scales, levels of measurement and the "laws" of statistics.

Authors:  Geoff Norman
Journal:  Adv Health Sci Educ Theory Pract       Date:  2010-02-10       Impact factor: 3.853

4.  Ethical issues in recruitment of "healthy volunteers": study of a clinical research organisation in Hyderabad.

Authors:  Shilpa Krishna; N Purendra Prasad
Journal:  Indian J Med Ethics       Date:  2014 Oct-Dec

5.  Discrepancy between participants' understanding and desire to know in informed consent: are they informed about what they really want to know?

Authors:  Jiwon Koh; Eurah Goh; Kyung-Sang Yu; Belong Cho; Jeong Hee Yang
Journal:  J Med Ethics       Date:  2011-06-27       Impact factor: 2.903

6.  What Do Our Respondents Think We're Asking? Using Cognitive Interviewing to Improve Medical Education Surveys.

Authors:  Gordon B Willis; Anthony R Artino
Journal:  J Grad Med Educ       Date:  2013-09

Review 7.  Reading Level and Comprehension of Research Consent Forms: An Integrative Review.

Authors:  Gabriella Foe; Elaine L Larson
Journal:  J Empir Res Hum Res Ethics       Date:  2016-02       Impact factor: 1.742

8.  Patients' perceptions of information provided in clinical trials.

Authors:  P R Ferguson
Journal:  J Med Ethics       Date:  2002-02       Impact factor: 2.903

9.  What information and the extent of information research participants need in informed consent forms: a multi-country survey.

Authors:  Juntra Karbwang; Nut Koonrungsesomboon; Cristina E Torres; Edlyn B Jimenez; Gurpreet Kaur; Roli Mathur; Eti N Sholikhah; Chandanie Wanigatunge; Chih-Shung Wong; Kwanchanok Yimtae; Murnilina Abdul Malek; Liyana Ahamad Fouzi; Aisyah Ali; Beng Z Chan; Madawa Chandratilake; Shoen C Chiew; Melvyn Y C Chin; Manori Gamage; Irene Gitek; Mohammad Hakimi; Narwani Hussin; Mohd F A Jamil; Pavithra Janarsan; Madarina Julia; Suman Kanungo; Panduka Karunanayake; Sattian Kollanthavelu; Kian K Kong; Bing-Ling Kueh; Ragini Kulkarni; Paul P Kumaran; Ranjith Kumarasiri; Wei H Lim; Xin J Lim; Fatihah Mahmud; Jacinto B V Mantaring; Siti M Md Ali; Nurain Mohd Noor; Kopalasuntharam Muhunthan; Elanngovan Nagandran; Maisarah Noor; Kim H Ooi; Jebananthy A Pradeepan; Ahmad H Sadewa; Nilakshi Samaranayake; Shalini Sri Ranganathan; Wasanthi Subasingha; Sivasangari Subramaniam; Nadirah Sulaiman; Ju F Tay; Leh H Teng; Mei M Tew; Thipaporn Tharavanij; Peter S K Tok; Jayanie Weeratna; Tri Wibawa; Renu Wickremasinghe; Phanthipha Wongwai; Subhash Yadav
Journal:  BMC Med Ethics       Date:  2018-09-15       Impact factor: 2.652

10.  Informing potential participants about research: observational study with an embedded randomized controlled trial.

Authors:  Helen M Kirkby; Melanie Calvert; Richard J McManus; Heather Draper
Journal:  PLoS One       Date:  2013-10-03       Impact factor: 3.240

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  1 in total

1.  Bioequivalence Common Deficiencies in Generic Products Submitted for Registration to the South African Health Products Regulatory Authority (SAHPRA).

Authors:  Lerato Moeti; Madira Litedu; Jacques Joubert
Journal:  Ther Innov Regul Sci       Date:  2022-07-27       Impact factor: 1.337

  1 in total

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