PURPOSE: The Consumer Assessment of Healthcare Providers and Systems (CAHPS) Cancer Care Survey is a systematic assessment of health care experiences of patients with cancer. It supports comparisons among all cancer treatment settings and modalities. METHODS: Formative research included 16 focus groups with patients receiving treatment and family members; advice from a panel of oncology and quality improvement experts; and interviews with stakeholders representing oncology associations, accredited cancer centers, and community oncology practices. We conducted cognitive tests of the instrument and field tests at six cancer centers and four community oncology practices, after which the survey was finalized and obtained the CAHPS trademark. RESULTS: The survey includes 56 questions that form six core composite measures (Getting Timely Care; Supporting Patient Self-Management; Available to Provide Care and Information; Provider Communication; Care Coordination; and Courteous Office Staff); two single-item measures of family participation in care and interpreter services; and two global ratings of cancer care and the treatment team. Sixteen additional items form three supplemental composite measures: Shared Decision-Making, Keeping Patients Informed, and Access to Care. CONCLUSION: Mail-only, mail-telephone mixed-mode, and Web-mail mixed-mode data collection methods are recommended. The questionnaires and instructions for use are free and available in English and Spanish on the CAHPS Website (www.ahrq.gov/cahps).
PURPOSE: The Consumer Assessment of Healthcare Providers and Systems (CAHPS) Cancer Care Survey is a systematic assessment of health care experiences of patients with cancer. It supports comparisons among all cancer treatment settings and modalities. METHODS: Formative research included 16 focus groups with patients receiving treatment and family members; advice from a panel of oncology and quality improvement experts; and interviews with stakeholders representing oncology associations, accredited cancer centers, and community oncology practices. We conducted cognitive tests of the instrument and field tests at six cancer centers and four community oncology practices, after which the survey was finalized and obtained the CAHPS trademark. RESULTS: The survey includes 56 questions that form six core composite measures (Getting Timely Care; Supporting Patient Self-Management; Available to Provide Care and Information; Provider Communication; Care Coordination; and Courteous Office Staff); two single-item measures of family participation in care and interpreter services; and two global ratings of cancer care and the treatment team. Sixteen additional items form three supplemental composite measures: Shared Decision-Making, Keeping Patients Informed, and Access to Care. CONCLUSION: Mail-only, mail-telephone mixed-mode, and Web-mail mixed-mode data collection methods are recommended. The questionnaires and instructions for use are free and available in English and Spanish on the CAHPS Website (www.ahrq.gov/cahps).
Authors: Elizabeth Goldstein; Marybeth Farquhar; Christine Crofton; Charles Darby; Steven Garfinkel Journal: Health Serv Res Date: 2005-12 Impact factor: 3.402
Authors: A B Benson; M A Choti; A M Cohen; J H Doroshow; C Fuchs; K Kiel; E W Martin; C McGinn; N J Petrelli; J A Posey; J M Skibber; A Venook; T J Yeatman Journal: Oncology (Williston Park) Date: 2000-11 Impact factor: 2.990
Authors: John Z Ayanian; Alan M Zaslavsky; Charles S Fuchs; Edward Guadagnoli; Cynthia M Creech; Rosemary D Cress; Lilia C O'Connor; Dee W West; Mark E Allen; Robert E Wolf; William E Wright Journal: J Clin Oncol Date: 2003-04-01 Impact factor: 44.544
Authors: Jennifer L Malin; Eric C Schneider; Arnold M Epstein; John Adams; Ezekiel J Emanuel; Katherine L Kahn Journal: J Clin Oncol Date: 2006-01-09 Impact factor: 44.544
Authors: Kerri-Anne R Mitchell; Kelly J Brassil; Serena A Rodriguez; Edward Tsai; Kayo Fujimoto; Kate J Krause; L Aubree Shay; Andrew E Springer Journal: Psychooncology Date: 2020-08-23 Impact factor: 3.894
Authors: Sofia F Garcia; Justin D Smith; Michael Kallen; Kimberly A Webster; Madison Lyleroehr; Sheetal Kircher; Michael Bass; David Cella; Frank J Penedo Journal: BMJ Open Date: 2022-05-03 Impact factor: 3.006
Authors: Denalee M O'Malley; Catherine M Alfano; Michelle Doose; Anita Y Kinney; Simon J Craddock Lee; Larissa Nekhlyudov; Paul Duberstein; Shawna V Hudson Journal: Transl Behav Med Date: 2021-11-30 Impact factor: 3.046
Authors: Maya Kylén; Ulla-Karin Schön; Hélène Pessah-Rasmussen; Marie Elf Journal: Int J Environ Res Public Health Date: 2022-02-11 Impact factor: 3.390
Authors: Alyssa E Tilly; Grace K Ellis; Jane S Chen; Agness Manda; Ande Salima; Asekanadziwa Mtangwanika; Blessings Tewete; Bongani Kaimila; Edwards Kasonkanji; Ella Kayira; Maria Chikasema; Ruth Nyirenda; Samuel Bingo; Sara Chiyoyola; Ryan Seguin; Satish Gopal; Takondwa Zuze; Tamiwe Tomoka; Katherine D Westmoreland Journal: JCO Glob Oncol Date: 2022-02
Authors: Heidi Turon; Breanne Hobden; Kristy Fakes; Matthew Clapham; Anthony Proietto; Rob Sanson-Fisher Journal: Int J Environ Res Public Health Date: 2022-08-17 Impact factor: 4.614
Authors: Laura M Perry; Victoria Morken; John D Peipert; Betina Yanez; Sofia F Garcia; Cynthia Barnard; Lisa R Hirschhorn; Jeffrey A Linder; Neil Jordan; Ronald T Ackermann; Alexandra Harris; Sheetal Kircher; Nisha Mohindra; Vikram Aggarwal; Rebecca Frazier; Ava Coughlin; Katy Bedjeti; Melissa Weitzel; Eugene C Nelson; Glyn Elwyn; Aricca D Van Citters; Mary O'Connor; David Cella Journal: JMIR Res Protoc Date: 2022-09-21
Authors: Alex Fauer; Sung Won Choi; Lauren P Wallner; Matthew A Davis; Christopher R Friese Journal: Cancer Causes Control Date: 2021-02-10 Impact factor: 2.506