Shrestha Archana1, Biraj Man Karmacharya2, Maharjan Rashmi3, Vaidya Abhinav4, Dhimal Meghnath5, Oli Natalia4, Shrestha Rajeev6, Pyakurel Prajjwal7, Fitzpatrick Annette8, Citrin David9, Bajracharya Swornim3, Xu Dong Roman10, Spiegelman Donna11, Koju Rajendra12. 1. Department of Community Programs, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal; Department of Epidemiology, Harvard T.H. Chan School of Public Health, Boston, MA, USA. Electronic address: deararchana@gmail.com. 2. Department of Community Programs, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal; Department of Community Medicine, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal. 3. Department of Community Programs, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal. 4. Department of Community Medicine, Kathmandu Medical College, Kathmandu, Nepal. 5. Nepal Health Research Council, Kathmandu, Nepal. 6. Department of Pharmacology, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal. 7. Department of Community Medicine, B.P. Koirala Institute of Health Sciences, Dharan, Nepal. 8. Department of Family Medicine, School of Public Health, University of Washington, Seattle, WA, USA; Department of Epidemiology, School of Public Health, University of Washington, Seattle, WA, USA; Department of Global Health, School of Public Health, University of Washington, Seattle, WA, USA. 9. Department of Global Health, School of Public Health, University of Washington, Seattle, WA, USA; Nyaya Health Nepal/Possible, Kathmandu, Nepal; Department of Anthropology, University of Washington, Seattle, WA, USA; Henry M. Jackson School of International Studies, University of Washington, Seattle, WA, USA. 10. Global Health Institute, Sun Yat-Sen University, Guangzhou, China. 11. Department of Epidemiology, Harvard T.H. Chan School of Public Health, Boston, MA, USA; Department of Biostatistics and Center for Methods on Implementation and Prevention Sciences, Yale School of Public Health, New Haven, CT, USA. 12. Department of Cardiology, Dhulikhel Hospital-Kathmandu University Hospital, Kavrepalanchwok, Nepal.
Abstract
BACKGROUND: There is growing support for stakeholder engagement in health research, but the actual impact of such engagement has not been well established. OBJECTIVES: This paper describes the stakeholder engagement process and evaluation during the planning of the national needs assessment for cardiovascular disease in Nepal. METHODS: We used personal and professional networks to identify relevant stakeholders within the 7Ps framework (Patients and the Public, Providers, Purchasers, Payers, Public Policy Makers and Policy Advocates, Product Makers and the Principal Investigators) to develop a plan for assessing cardiovascular health needs in Nepal. We consulted 40 stakeholders through 2 meetings in small groups and a workshop in a large group to develop the study methods, conceptual framework, and stakeholder engagement process. We interviewed 33 stakeholders to receive feedback on the stakeholder engagement process. RESULTS: We engaged 80% of the targeted stakeholders through small group discussions and a workshop. Three of 5 recommendations from the small group discussion were aimed at improving the stakeholder engagement process and 2 were aimed to improve the research methods. Eleven of 27 recommendations from the workshop aimed to improve the research methods, 4 aimed to improve stakeholder engagement, and 2 helped to expand the scope of dissemination. Ten were irrelevant or could not be incorporated due to resource limitation. Most stakeholders noted that the workshop provided an open platform for a multisectoral group to colearn from one another and share ideas. Others highlighted that the discussion generated insights to enhance research by incorporating expertise and ideas from different perspectives. The major challenges discussed were about committing the time for engagement. CONCLUSIONS: The stakeholder engagement process positively affected the design of our research. This study provides important insights for future researchers that aim to engage stakeholders in national-level assessment programs in the health care system in the context of Nepal.
BACKGROUND: There is growing support for stakeholder engagement in health research, but the actual impact of such engagement has not been well established. OBJECTIVES: This paper describes the stakeholder engagement process and evaluation during the planning of the national needs assessment for cardiovascular disease in Nepal. METHODS: We used personal and professional networks to identify relevant stakeholders within the 7Ps framework (Patients and the Public, Providers, Purchasers, Payers, Public Policy Makers and Policy Advocates, Product Makers and the Principal Investigators) to develop a plan for assessing cardiovascular health needs in Nepal. We consulted 40 stakeholders through 2 meetings in small groups and a workshop in a large group to develop the study methods, conceptual framework, and stakeholder engagement process. We interviewed 33 stakeholders to receive feedback on the stakeholder engagement process. RESULTS: We engaged 80% of the targeted stakeholders through small group discussions and a workshop. Three of 5 recommendations from the small group discussion were aimed at improving the stakeholder engagement process and 2 were aimed to improve the research methods. Eleven of 27 recommendations from the workshop aimed to improve the research methods, 4 aimed to improve stakeholder engagement, and 2 helped to expand the scope of dissemination. Ten were irrelevant or could not be incorporated due to resource limitation. Most stakeholders noted that the workshop provided an open platform for a multisectoral group to colearn from one another and share ideas. Others highlighted that the discussion generated insights to enhance research by incorporating expertise and ideas from different perspectives. The major challenges discussed were about committing the time for engagement. CONCLUSIONS: The stakeholder engagement process positively affected the design of our research. This study provides important insights for future researchers that aim to engage stakeholders in national-level assessment programs in the health care system in the context of Nepal.
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