Literature DB >> 22528615

A new taxonomy for stakeholder engagement in patient-centered outcomes research.

Thomas W Concannon1, Paul Meissner, Jo Anne Grunbaum, Newell McElwee, Jeanne-Marie Guise, John Santa, Patrick H Conway, Denise Daudelin, Elaine H Morrato, Laurel K Leslie.   

Abstract

Despite widespread agreement that stakeholder engagement is needed in patient-centered outcomes research (PCOR), no taxonomy exists to guide researchers and policy makers on how to address this need. We followed an iterative process, including several stages of stakeholder review, to address three questions: (1) Who are the stakeholders in PCOR? (2) What roles and responsibilities can stakeholders have in PCOR? (3) How can researchers start engaging stakeholders? We introduce a flexible taxonomy called the 7Ps of Stakeholder Engagement and Six Stages of Research for identifying stakeholders and developing engagement strategies across the full spectrum of research activities. The path toward engagement will not be uniform across every research program, but this taxonomy offers a common starting point and a flexible approach.

Entities:  

Mesh:

Year:  2012        PMID: 22528615      PMCID: PMC3403141          DOI: 10.1007/s11606-012-2037-1

Source DB:  PubMed          Journal:  J Gen Intern Med        ISSN: 0884-8734            Impact factor:   5.128


  29 in total

1.  Practical clinical trials: increasing the value of clinical research for decision making in clinical and health policy.

Authors:  Sean R Tunis; Daniel B Stryer; Carolyn M Clancy
Journal:  JAMA       Date:  2003-09-24       Impact factor: 56.272

Review 2.  Community based participatory research: a promising approach for increasing epidemiology's relevance in the 21st century.

Authors:  Margaret W Leung; Irene H Yen; Meredith Minkler
Journal:  Int J Epidemiol       Date:  2004-05-20       Impact factor: 7.196

Review 3.  Bridging community intervention and mental health services research.

Authors:  Kenneth Wells; Jeanne Miranda; Martha L Bruce; Margarita Alegria; Nina Wallerstein
Journal:  Am J Psychiatry       Date:  2004-06       Impact factor: 18.112

4.  Treating individuals 2. Subgroup analysis in randomised controlled trials: importance, indications, and interpretation.

Authors:  Peter M Rothwell
Journal:  Lancet       Date:  2005 Jan 8-14       Impact factor: 79.321

Review 5.  Effective recruitment and retention of minority research participants.

Authors:  Antronette K Yancey; Alexander N Ortega; Shiriki K Kumanyika
Journal:  Annu Rev Public Health       Date:  2006       Impact factor: 21.981

Review 6.  Review of community-based research: assessing partnership approaches to improve public health.

Authors:  B A Israel; A J Schulz; E A Parker; A B Becker
Journal:  Annu Rev Public Health       Date:  1998       Impact factor: 21.981

7.  Charting a path from comparative effectiveness funding to improved patient-centered health care.

Authors:  Patrick H Conway; Carolyn Clancy
Journal:  JAMA       Date:  2010-03-10       Impact factor: 56.272

8.  Involving minority and underrepresented women in clinical trials: the National Centers of Excellence in Women's Health.

Authors:  M Killien; J A Bigby; V Champion; E Fernandez-Repollet; R D Jackson; M Kagawa-Singer; K Kidd; M J Naughton; M Prout
Journal:  J Womens Health Gend Based Med       Date:  2000-12

9.  Treating individuals 3: from subgroups to individuals: general principles and the example of carotid endarterectomy.

Authors:  Peter M Rothwell; Ziyah Mehta; Sally C Howard; Sergei A Gutnikov; Charles P Warlow
Journal:  Lancet       Date:  2005 Jan 15-21       Impact factor: 79.321

Review 10.  Clinical trials in children.

Authors:  Patrina H Y Caldwell; Sharon B Murphy; Phyllis N Butow; Jonathan C Craig
Journal:  Lancet       Date:  2004 Aug 28-Sep 3       Impact factor: 79.321

View more
  134 in total

Review 1.  Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report.

Authors:  Jill Arkind; Sonja Likumahuwa-Ackman; Nate Warren; Kay Dickerson; Lynn Robbins; Kathy Norman; Jennifer E DeVoe
Journal:  J Am Board Fam Med       Date:  2015 Sep-Oct       Impact factor: 2.657

2.  IMPACCT Kids' Care: a real-world example of stakeholder involvement in comparative effectiveness research.

Authors:  Sonja Likumahuwa-Ackman; Heather Angier; Aleksandra Sumic; Rose L Harding; Erika K Cottrell; Deborah J Cohen; Christine A Nelson; Timothy E Burdick; Lorraine S Wallace; Charles Gallia; Jennifer E DeVoe
Journal:  J Comp Eff Res       Date:  2015-08       Impact factor: 1.744

3.  PCOR, CER, and CBPR: alphabet soup or complementary fields of health research?

Authors:  Jessica G Burke; Jennifer Jones; Michael Yonas; Lisa Guizzetti; Maria C Virata; Monica Costlow; Sally C Morton; Miller Elizabeth
Journal:  Clin Transl Sci       Date:  2013-05-08       Impact factor: 4.689

Review 4.  Stakeholder assessment of comparative effectiveness research needs for Medicaid populations.

Authors:  Michael A Fischer; Cora Allen-Coleman; Stephen F Farrell; Sebastian Schneeweiss
Journal:  J Comp Eff Res       Date:  2015-09-21       Impact factor: 1.744

5.  Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research.

Authors:  James D Harrison; Wendy G Anderson; Maureen Fagan; Edmondo Robinson; Jeffrey Schnipper; Gina Symczak; Catherine Hanson; Martha B Carnie; Jim Banta; Sherry Chen; Jonathan Duong; Celene Wong; Andrew D Auerbach
Journal:  Patient       Date:  2018-08       Impact factor: 3.883

6.  Building Partnerships and Stakeholder Relationships for HIV Prevention: Longitudinal Cohort Study Focuses on Community Engagement.

Authors:  Rondalya D DeShields; Jonathan Paul Lucas; Melissa Turner; Kemi Amola; Valarie Hunter; Stephanie Lykes; Anne M Rompalo; Sten H Vermund; Suzanne Fischer; Danielle F Haley
Journal:  Prog Community Health Partnersh       Date:  2020

7.  Defining and Rating the Effectiveness of Enabling Services Using a Multi-stakeholder Expert Panel Approach.

Authors:  Anne L Escaron; Rosy Chang Weir; Petra Stanton; Robin M Clarke
Journal:  J Health Care Poor Underserved       Date:  2015-05

8.  Stakeholder involvement in the design of a patient-centered comparative effectiveness trial of the "On the Move" group exercise program in community-dwelling older adults.

Authors:  Jennifer S Brach; Subashan Perera; Sandra Gilmore; Jessie M VanSwearingen; Deborah Brodine; David Wert; Neelesh K Nadkarni; Edmund Ricci
Journal:  Contemp Clin Trials       Date:  2016-08-10       Impact factor: 2.226

9.  High priority future research needs for obstructive sleep apnea diagnosis and treatment.

Authors:  Kamal Patel; Denish Moorthy; Jeffrey A Chan; Thomas W Concannon; Sara J Ratichek; Mei Chung; Ethan M Balk
Journal:  J Clin Sleep Med       Date:  2013-04-15       Impact factor: 4.062

Review 10.  Patient and Other Stakeholder Engagement in Patient-Centered Outcomes Research Institute Funded Studies of Patients with Kidney Diseases.

Authors:  Daniel Cukor; Lewis M Cohen; Elizabeth L Cope; Nasrollah Ghahramani; S Susan Hedayati; Denise M Hynes; Vallabh O Shah; Francesca Tentori; Mark Unruh; Jeanette Bobelu; Scott Cohen; Laura M Dember; Thomas Faber; Michael J Fischer; Rani Gallardo; Michael J Germain; Donica Ghahate; Nancy Grote; Lori Hartwell; Patrick Heagerty; Paul L Kimmel; Nancy Kutner; Susan Lawson; Lisa Marr; Robert G Nelson; Anna C Porter; Phillip Sandy; Bruce B Struminger; Lalita Subramanian; Steve Weisbord; Bessie Young; Rajnish Mehrotra
Journal:  Clin J Am Soc Nephrol       Date:  2016-05-19       Impact factor: 8.237

View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.