Literature DB >> 31305222

Caring for Unbefriended Older Adults and Adult Orphans: A Clinician Survey.

Timothy W Farrell1,2,3, Casey Catlin4, Anna H Chodos5, Aanand D Naik6, Eric Widera5, Jennifer Moye7.   

Abstract

Objectives: Unbefriended older adults are those who lack the capacity to make medical decisions and do not have a completed advance directive that can guide treatment decisions or a surrogate decision maker. Adult orphans are those who retain medical decision-making capacity but are at risk of becoming unbefriended due to lack of a completed advance health care directive and lack of a surrogate decision maker. In a follow-up to the 2016 American Geriatrics Society (AGS) position statement on unbefriended older adults, we examined clinicians' experiences in caring for unbefriended older adults and adult orphans.
Methods: Clinicians recruited through the AGS (N = 122) completed an online survey about their experiences with unbefriended older adults regarding the perceived frequency of contact, clinical concerns, practice strategies, and terminology; and also with adult orphans regarding the perceived frequency of contact, methods of identification, and terminology.
Results: Almost all inpatient (95.9%) and outpatient (86.4%) clinicians in this sample encounter unbefriended older adults at least quarterly and 92.2% of outpatient clinicians encounter adult orphans at least quarterly. Concerns about safety (95.9%), medication self-management (90.4%), and advance care planning (86.3%) bring unbefriended older adults to outpatient clinicians' attention "sometimes" to "frequently." Prolonged hospital stays (87.7%) and delays in transitioning to end-of-life care (85.7%) bring unbefriended older adults to inpatient clinicians' attention "sometimes" to "frequently." Clinicians apply a wide range of practice strategies to these populations. Participants suggested alternative terminology to replace "unbefriended" and "adult orphan."Conclusions: This study suggests that unbefriended older adults are frequently encountered in geriatrics practice, both in the inpatient and outpatient settings, and that there is widespread awareness of adult orphans in the outpatient setting. Clinicians' awareness of both groups suggests avenues for intervention and prevention.Clinical Implications: Health care professionals in geriatric settings will likely encounter older adults in need of advocates. Clinicians, attorneys, and policymakers should collaborate to improve early detection and to meet the needs of this vulnerable population.

Entities:  

Keywords:  Aging; adult orphan; guardianship; social; surrogate decision maker; unbefriended

Mesh:

Year:  2019        PMID: 31305222      PMCID: PMC6960369          DOI: 10.1080/07317115.2019.1640332

Source DB:  PubMed          Journal:  Clin Gerontol        ISSN: 0731-7115            Impact factor:   2.871


  12 in total

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Authors:  Giulia Lamiani; Lidia Borghi; Piergiorgio Argentero
Journal:  J Health Psychol       Date:  2016-07-10

2.  Ethical Concerns and Procedural Pathways for Patients Who are Incapacitated and Alone: Implications from a Qualitative Study for Advancing Ethical Practice.

Authors:  Jennifer Moye; Casey Catlin; Jennifer Kwak; Erica Wood; Pamela B Teaster
Journal:  HEC Forum       Date:  2017-06

3.  The Role of a Hospital Ethics Consultation Service in Decision-Making for Unrepresented Patients.

Authors:  Andrew M Courtwright; Joshua Abrams; Ellen M Robinson
Journal:  J Bioeth Inq       Date:  2017-03-06       Impact factor: 1.352

4.  The Burden of Guardianship: A Matched Cohort Study.

Authors:  Daniel N Ricotta; James J Parris; Ritika S Parris; David N Sontag; Kenneth J Mukamal
Journal:  J Hosp Med       Date:  2018-02-05       Impact factor: 2.960

5.  Discharge Delays for Patients Requiring In-Hospital Guardianship: A Cohort Analysis.

Authors:  Jasper J Chen; Christine T Finn; Karen Homa; Kenneth P St Onge; Tracie A Caller
Journal:  J Healthc Qual       Date:  2016 Jul-Aug       Impact factor: 1.095

6.  Wishard Volunteer Advocates Program: an intervention for at-risk, incapacitated, unbefriended adults.

Authors:  Robin Bandy; Greg A Sachs; Kianna Montz; Lev Inger; Robert W Bandy; Alexia M Torke
Journal:  J Am Geriatr Soc       Date:  2014-10-30       Impact factor: 5.562

7.  AGS Position Statement: Making Medical Treatment Decisions for Unbefriended Older Adults.

Authors:  Timothy W Farrell; Eric Widera; Lisa Rosenberg; Craig D Rubin; Aanand D Naik; Ursula Braun; Alexia Torke; Ina Li; Caroline Vitale; Joseph Shega
Journal:  J Am Geriatr Soc       Date:  2016-11-22       Impact factor: 5.562

8.  Medical decision-making during the guardianship process for incapacitated, hospitalized adults: a descriptive cohort study.

Authors:  Robin J Bandy; Paul R Helft; Robert W Bandy; Alexia M Torke
Journal:  J Gen Intern Med       Date:  2010-04-27       Impact factor: 5.128

9.  Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers.

Authors:  Douglas B White; J Randall Curtis; Bernard Lo; John M Luce
Journal:  Crit Care Med       Date:  2006-08       Impact factor: 7.598

10.  Determinants of moral distress in daily nursing practice: a cross sectional correlational questionnaire survey.

Authors:  Anke J E de Veer; Anneke L Francke; Alies Struijs; Dick L Willems
Journal:  Int J Nurs Stud       Date:  2012-09-16       Impact factor: 5.837

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  3 in total

1.  "I worry about this patient EVERY day": Geriatrics Clinicians' Challenges in Caring for Unrepresented Older Adults.

Authors:  Kara B Dassel; Linda S Edelman; Jennifer Moye; Casey Catlin; Timothy W Farrell
Journal:  J Appl Gerontol       Date:  2021-08-31

2.  The Cost of Medically Unnecessary Days Due to Waiting for Guardianship in a State Acute Hospital System.

Authors:  Patricia Brierley-Bowers; Heather Connors; Joanne Tompkins; Peter M Macy
Journal:  Inquiry       Date:  2022 Jan-Dec       Impact factor: 1.730

3.  End-of-Life Care for Persons Under Guardianship.

Authors:  Jennifer Moye; Kelly Stolzmann; Elizabeth J Auguste; Andrew B Cohen; Casey C Catlin; Zachary S Sager; Rachel E Weiskittle; Cindy B Woolverton; Heather L Connors; Jennifer L Sullivan
Journal:  J Pain Symptom Manage       Date:  2020-11-16       Impact factor: 5.576

  3 in total

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