Literature DB >> 34463148

"I worry about this patient EVERY day": Geriatrics Clinicians' Challenges in Caring for Unrepresented Older Adults.

Kara B Dassel1, Linda S Edelman1, Jennifer Moye2,3,4,5, Casey Catlin2, Timothy W Farrell1,6.   

Abstract

Unrepresented older adults are at risk for adverse outcomes, and clinicians who care for them may face ethical dilemmas and unique challenges when making person-centered care recommendations. However, little is known about their perspectives on clinical challenges in caring for this population. An online survey was used to assess issues around providing care for unrepresented patients. Ninety-two American Geriatrics Society members working with older adults in inpatient and/or outpatient settings completed the survey. Descriptive qualitative analysis of narrative survey responses identified five broad themes: (a) health risk characteristics of patients, (b) care decisions facing the team, (c) psychosocial considerations by the team, (d) patient outcomes, and (e) burden of the provider and/or health system. These findings demonstrate that geriatrics clinicians face challenges in working with unrepresented adults in both inpatient and outpatient settings. We interpret these results in light of existing literature and propose collaborative approaches that may improve outcomes.

Entities:  

Keywords:  advance care planning/directives; health outcomes; qualitative methods

Mesh:

Year:  2021        PMID: 34463148      PMCID: PMC8978333          DOI: 10.1177/07334648211041261

Source DB:  PubMed          Journal:  J Appl Gerontol        ISSN: 0733-4648


  34 in total

1.  Five wishes.

Authors:  E Paul Amundson
Journal:  S D Med       Date:  2008

Review 2.  Informal caregivers: communication and decision making.

Authors:  Carol Whitlatch
Journal:  Am J Nurs       Date:  2008-09       Impact factor: 2.220

3.  AGS Position Statement: Making Medical Treatment Decisions for Unbefriended Older Adults.

Authors:  Timothy W Farrell; Eric Widera; Lisa Rosenberg; Craig D Rubin; Aanand D Naik; Ursula Braun; Alexia Torke; Ina Li; Caroline Vitale; Joseph Shega
Journal:  J Am Geriatr Soc       Date:  2016-11-22       Impact factor: 5.562

4.  Moving Toward a Global Age-Friendly Ecosystem.

Authors:  Terry Fulmer; Pinkey Patel; Nicole Levy; Kedar Mate; Amy Berman; Leslie Pelton; John Beard; Alexandre Kalache; John Auerbach
Journal:  J Am Geriatr Soc       Date:  2020-07-23       Impact factor: 5.562

5.  Advance Directives for Dementia: Meeting a Unique Challenge.

Authors:  Barak Gaster; Eric B Larson; J Randall Curtis
Journal:  JAMA       Date:  2017-12-12       Impact factor: 56.272

6.  Medical decision-making during the guardianship process for incapacitated, hospitalized adults: a descriptive cohort study.

Authors:  Robin J Bandy; Paul R Helft; Robert W Bandy; Alexia M Torke
Journal:  J Gen Intern Med       Date:  2010-04-27       Impact factor: 5.128

Review 7.  Loneliness matters: a theoretical and empirical review of consequences and mechanisms.

Authors:  Louise C Hawkley; John T Cacioppo
Journal:  Ann Behav Med       Date:  2010-10

8.  Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers.

Authors:  Douglas B White; J Randall Curtis; Bernard Lo; John M Luce
Journal:  Crit Care Med       Date:  2006-08       Impact factor: 7.598

9.  A Comparison of the Influence of Anticipated Death Trajectory and Personal Values on End-of-Life Care Preferences: A Qualitative Analysis.

Authors:  Katherine P Supiano; Nancy McGee; Kara B Dassel; Rebecca Utz
Journal:  Clin Gerontol       Date:  2017-10-09       Impact factor: 2.619

10.  Development of a Dementia-Focused End-of-Life Planning Tool: The LEAD Guide (Life-Planning in Early Alzheimer's and Dementia).

Authors:  Kara Dassel; Rebecca Utz; Katherine Supiano; Sara Bybee; Eli Iacob
Journal:  Innov Aging       Date:  2019-08-02
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