Literature DB >> 16763515

Decisions to limit life-sustaining treatment for critically ill patients who lack both decision-making capacity and surrogate decision-makers.

Douglas B White1, J Randall Curtis, Bernard Lo, John M Luce.   

Abstract

OBJECTIVE: Many intensive care unit (ICU) physicians have withdrawn life-support from a patient who lacked decision-making capacity and a surrogate decision-maker, yet little is known about the decision-making practices for these patients. We sought to determine how often such patients are admitted to the ICU of a metropolitan hospital and how end-of-life decisions are made for them.
DESIGN: Prospective, observational cohort study. PATIENTS AND
SETTING: Consecutive adult patients admitted to the medical ICU of a metropolitan West Coast hospital during a 7-month period in 2003 to 2004. MEASUREMENTS: Attending physicians completed a questionnaire about the decision-making process for each patient for whom they considered limiting life-support who lacked decisional capacity and a legally recognized surrogate decision-maker. MAIN
RESULTS: Of the 303 patients admitted during the study period, 49 (16%; 95% confidence interval [CI], 12-21%) lacked decision-making capacity and a surrogate during the entire ICU stay. Compared with all other ICU patients, these patients were more likely to be male (88% vs. 69%; p = .002), white (42% vs. 23%; p = .028), and > or =65 yrs old (29% vs. 13%; p = .007). Physicians considered withholding or withdrawing treatment from 37% (18) of the 49 patients who lacked both decision-making capacity and a surrogate decision-maker. For 56% (10) of these 18 patients, the opinion of another attending physician was obtained; for 33% (6 of 18), the ICU team made the decision independently, and for 11% (2 of 18), the input of the courts or the hospital ethics committee was obtained. Overall, 27% of deaths (13 of 49) during the study period were in incapacitated patients who lacked a surrogate (95% CI, 15-41%).
CONCLUSIONS: Sixteen percent of patients admitted to the medical ICU of this hospital lacked both decision-making capacity and a surrogate decision-maker. Decisions to limit life support were generally made by physicians without judicial or institutional review. Further research and debate are needed to develop optimal decision-making strategies for these difficult cases.

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Mesh:

Year:  2006        PMID: 16763515     DOI: 10.1097/01.CCM.0000227654.38708.C1

Source DB:  PubMed          Journal:  Crit Care Med        ISSN: 0090-3493            Impact factor:   7.598


  37 in total

1.  Ethical Concerns and Procedural Pathways for Patients Who are Incapacitated and Alone: Implications from a Qualitative Study for Advancing Ethical Practice.

Authors:  Jennifer Moye; Casey Catlin; Jennifer Kwak; Erica Wood; Pamela B Teaster
Journal:  HEC Forum       Date:  2017-06

2.  The Role of a Hospital Ethics Consultation Service in Decision-Making for Unrepresented Patients.

Authors:  Andrew M Courtwright; Joshua Abrams; Ellen M Robinson
Journal:  J Bioeth Inq       Date:  2017-03-06       Impact factor: 1.352

3.  Alterations during medical interpretation of ICU family conferences that interfere with or enhance communication.

Authors:  Kiemanh Pham; J Daryl Thornton; Ruth A Engelberg; J Carey Jackson; J Randall Curtis
Journal:  Chest       Date:  2008-03-17       Impact factor: 9.410

Review 4.  [Ethical aspects of dealing with coma patients].

Authors:  Karl Ungersböck
Journal:  Wien Med Wochenschr       Date:  2009

Review 5.  Global variability in withholding and withdrawal of life-sustaining treatment in the intensive care unit: a systematic review.

Authors:  N M Mark; S G Rayner; N J Lee; J R Curtis
Journal:  Intensive Care Med       Date:  2015-04-23       Impact factor: 17.440

Review 6.  Patient Preferences and Surrogate Decision Making in Neuroscience Intensive Care Units.

Authors:  Xuemei Cai; Jennifer Robinson; Susanne Muehlschlegel; Douglas B White; Robert G Holloway; Kevin N Sheth; Liana Fraenkel; David Y Hwang
Journal:  Neurocrit Care       Date:  2015-08       Impact factor: 3.210

7.  Ethical Challenges in Caring for Unrepresented Adults: A Qualitative Study of Key Stakeholders.

Authors:  Aradhana Verma; Alexander K Smith; Krista L Harrison; Anna H Chodos
Journal:  J Am Geriatr Soc       Date:  2019-05-06       Impact factor: 5.562

8.  Guardianship and End-of-Life Decision Making.

Authors:  Andrew B Cohen; Megan S Wright; Leo Cooney; Terri Fried
Journal:  JAMA Intern Med       Date:  2015-10       Impact factor: 21.873

9.  A prospective determination of the incidence of perceived inappropriate care in critically ill patients.

Authors:  Rohit K Singal; Robert Sibbald; Brenda Morgan; Mel Quinlan; Neil Parry; Michael Radford; Claudio M Martin
Journal:  Can Respir J       Date:  2013-12-23       Impact factor: 2.409

10.  Potential for response bias in family surveys about end-of-life care in the ICU.

Authors:  Erin K Kross; Ruth A Engelberg; Sarah E Shannon; J Randall Curtis
Journal:  Chest       Date:  2009-07-17       Impact factor: 9.410

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