Literature DB >> 31272287

Data as promise: Reconfiguring Danish public health through personalized medicine.

Klaus Hoeyer1.   

Abstract

'Personalized medicine' might sound like the very antithesis of population science and public health, with the individual taking the place of the population. However, in practice, personalized medicine generates heavy investments in the population sciences - particularly in data-sourcing initiatives. Intensified data sourcing implies new roles and responsibilities for patients and health professionals, who become responsible not only for data contributions, but also for responding to new uses of data in personalized prevention, drawing upon detailed mapping of risk distribution in the population. Although this population-based 'personalization' of prevention and treatment is said to be about making the health services 'data-driven', the policies and plans themselves use existing data and evidence in a very selective manner. It is as if data-driven decision-making is a promise for an unspecified future, not a demand on its planning in the present. I therefore suggest interrogating how 'promissory data' interact with ideas about accountability in public health policies, and also with the data initiatives that the promises bring about. Intensified data collection might not just be interesting for what it allows authorities to do and know, but also for how its promises of future evidence can be used to postpone action and sidestep uncomfortable knowledge in the present.

Entities:  

Keywords:  Denmark; accountability; big data; datafication; personalized medicine; public health

Mesh:

Year:  2019        PMID: 31272287     DOI: 10.1177/0306312719858697

Source DB:  PubMed          Journal:  Soc Stud Sci        ISSN: 0306-3127            Impact factor:   3.885


  8 in total

1.  'You should see a doctor', said the robot: Reflections on a digital diagnostic device in a pandemic age.

Authors:  Christoffer Bjerre Haase; Margaret Bearman; John Brodersen; Klaus Hoeyer; Torsten Risor
Journal:  Scand J Public Health       Date:  2020-12-18       Impact factor: 3.021

2.  Austria's Digital Vaccination Registry: Stakeholder Views and Implications for Governance.

Authors:  Katharina T Paul; Anna Janny; Katharina Riesinger
Journal:  Vaccines (Basel)       Date:  2021-12-17

3.  Value-creation in the health data domain: a typology of what health data help us do.

Authors:  Amelia Fiske; Alexander Degelsegger-Márquez; Brigitte Marsteurer; Barbara Prainsack
Journal:  Biosocieties       Date:  2022-04-12

4.  Medical students' intention to integrate digital health into their medical practice: A pre-peri COVID-19 survey study in Canada.

Authors:  Guy Paré; Louis Raymond; Marie-Pascale Pomey; Geneviève Grégoire; Alexandre Castonguay; Antoine Grenier Ouimet
Journal:  Digit Health       Date:  2022-07-21

5.  Personalising clinical pathways in a London breast cancer service.

Authors:  William Viney; Sophie Day; Jane Bruton; Kelly Gleason; Charlotte Ion; Saima Nazir; Helen Ward
Journal:  Sociol Health Illn       Date:  2022-02-10

6.  Datafication and accountability in public health: Introduction to a special issue.

Authors:  Klaus Hoeyer; Susanne Bauer; Martyn Pickersgill
Journal:  Soc Stud Sci       Date:  2019-08       Impact factor: 3.885

7.  Weak Data: The Social Biography of a Measurement Instrument and How It Failed to Ensure Accountability in Home Care.

Authors:  Klaus Hoeyer; Malene Bødker
Journal:  Med Anthropol Q       Date:  2020-08-05

8.  Plastic diagnostics: The remaking of disease and evidence in personalized medicine.

Authors:  Sara Green; Annamaria Carusi; Klaus Hoeyer
Journal:  Soc Sci Med       Date:  2019-05-18       Impact factor: 5.379

  8 in total

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