Literature DB >> 31219717

Required Sexual Orientation and Gender Identity Reporting by US Health Centers: First-Year Data.

Chris Grasso1, Hilary Goldhammer1, Danielle Funk1, Dana King1, Sari L Reisner1, Kenneth H Mayer1, Alex S Keuroghlian1.   

Abstract

Objectives. To assess the performance of US health centers during the first year of required sexual orientation and gender identity (SOGI) data reporting and to estimate the baseline proportion of lesbian, gay, bisexual, and transgender patients accessing health centers. Methods. We conducted a secondary analysis of SOGI data from 2016. These data were reported by 1367 US health centers caring for 25 860 296 patients in the United States and territories. Results. SOGI data were missing for 77.1% and 62.8% of patients, respectively. Among patients with data, 3.7% identified as lesbian, gay, bisexual, or something else; 0.4% identified as transgender male or female; 27.5% did not disclose their sexual orientation; and 9.3% did not disclose their gender identity. Conclusions. Although health centers had a high percentage of missing SOGI data in the first year of reporting, among those with data, the percentages of lesbian, gay, bisexual, and transgender people were similar to national estimates, and disclosure was more than 70%. Future data collection efforts would benefit from increased training for health centers and improved messaging on the clinical benefits of SOGI data collection and reporting.

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Year:  2019        PMID: 31219717      PMCID: PMC6611113          DOI: 10.2105/AJPH.2019.305130

Source DB:  PubMed          Journal:  Am J Public Health        ISSN: 0090-0036            Impact factor:   9.308


  19 in total

1.  Inclusion of Sexual Orientation and Gender Identity in Stage 3 Meaningful Use Guidelines: A Huge Step Forward for LGBT Health.

Authors:  Sean R Cahill; Kellan Baker; Madeline B Deutsch; Joanne Keatley; Harvey J Makadon
Journal:  LGBT Health       Date:  2015-12-24       Impact factor: 4.151

2.  Sexual orientation and health among U.S. adults: national health interview survey, 2013.

Authors:  Brian W Ward; James M Dahlhamer; Adena M Galinsky; Sarah S Joestl
Journal:  Natl Health Stat Report       Date:  2014-07-15

3.  Sexual orientation in the 2013 national health interview survey: a quality assessment.

Authors:  James M Dahlhamer; Adena M Galinsky; Sarah S Joestl; Brian W Ward
Journal:  Vital Health Stat 2       Date:  2014-12

4.  Data Move Us Closer to Full Equality by Speaking for Those Who Cannot: Advocating for LGBT Older Adults.

Authors:  Laura E Durso
Journal:  Am J Public Health       Date:  2017-06-28       Impact factor: 9.308

5.  Sexual Orientation and Gender Identity Data Collection in Clinical Settings and in Electronic Health Records: A Key to Ending LGBT Health Disparities.

Authors:  Sean Cahill; Harvey Makadon
Journal:  LGBT Health       Date:  2013-08-02       Impact factor: 4.151

6.  Accuracy of race, ethnicity, and language preference in an electronic health record.

Authors:  Elissa V Klinger; Sara V Carlini; Irina Gonzalez; Stella St Hubert; Jeffrey A Linder; Nancy A Rigotti; Emily Z Kontos; Elyse R Park; Lucas X Marinacci; Jennifer S Haas
Journal:  J Gen Intern Med       Date:  2014-12-20       Impact factor: 5.128

7.  Risks, Benefits, and Importance of Collecting Sexual Orientation and Gender Identity Data in Healthcare Settings: A Multi-Method Analysis of Patient and Provider Perspectives.

Authors:  Allysha C Maragh-Bass; Maya Torain; Rachel Adler; Eric Schneider; Anju Ranjit; Lisa M Kodadek; Ryan Shields; Danielle German; Claire Snyder; Susan Peterson; Jeremiah Schuur; Brandyn Lau; Adil H Haider
Journal:  LGBT Health       Date:  2017-02-21       Impact factor: 4.151

8.  Out on the street: a public health and policy agenda for lesbian, gay, bisexual, and transgender youth who are homeless.

Authors:  Alex S Keuroghlian; Derri Shtasel; Ellen L Bassuk
Journal:  Am J Orthopsychiatry       Date:  2014

9.  Electronic medical records and the transgender patient: recommendations from the World Professional Association for Transgender Health EMR Working Group.

Authors:  Madeline B Deutsch; Jamison Green; JoAnne Keatley; Gal Mayer; Jennifer Hastings; Alexandra M Hall
Journal:  J Am Med Inform Assoc       Date:  2013-04-30       Impact factor: 4.497

10.  Do ask, do tell: high levels of acceptability by patients of routine collection of sexual orientation and gender identity data in four diverse American community health centers.

Authors:  Sean Cahill; Robbie Singal; Chris Grasso; Dana King; Kenneth Mayer; Kellan Baker; Harvey Makadon
Journal:  PLoS One       Date:  2014-09-08       Impact factor: 3.240

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  23 in total

1.  Transforming Primary Care for Lesbian, Gay, Bisexual, and Transgender People: A Collaborative Quality Improvement Initiative.

Authors:  Bruce W Furness; Hilary Goldhammer; Wanda Montalvo; Kelly Gagnon; Lauren Bifulco; Daniel Lentine; Daren Anderson
Journal:  Ann Fam Med       Date:  2020-07       Impact factor: 5.166

2.  Transgender data collection in the electronic health record: Current concepts and issues.

Authors:  Clair A Kronk; Avery R Everhart; Florence Ashley; Hale M Thompson; Theodore E Schall; Teddy G Goetz; Laurel Hiatt; Zackary Derrick; Roz Queen; A Ram; E Mae Guthman; Olivia M Danforth; Elle Lett; Emery Potter; Simón E D Sun; Zack Marshall; Ryan Karnoski
Journal:  J Am Med Inform Assoc       Date:  2022-01-12       Impact factor: 7.942

Review 3.  Epidemiological considerations in transgender health: A systematic review with focus on higher quality data.

Authors:  Qi Zhang; Michael Goodman; Noah Adams; Trevor Corneil; Leila Hashemi; Baudewijntje Kreukels; Joz Motmans; Rachel Snyder; Eli Coleman
Journal:  Int J Transgend Health       Date:  2020-04-15

4.  Provider Practices and Perspectives regarding Collection and Documentation of Gender Identity.

Authors:  Lauren E Nadler; Shannon N Ogden; Kathryn L Scheffey; Peter F Cronholm; Melissa E Dichter
Journal:  J Homosex       Date:  2019-09-17

5.  Gender Reference Use in Spirometry for Transgender Patients.

Authors:  Dinah Foer; David Rubins; Anthony Almazan; Paige G Wickner; David W Bates; Ole-Petter R Hamnvik
Journal:  Ann Am Thorac Soc       Date:  2021-03

6.  Initial Clinical Needs Among Transgender and Non-binary Individuals in a Large, Urban Gender Health Program.

Authors:  Thomas W Gaither; Kristen Williams; Christopher Mann; Amy Weimer; Gladys Ng; Mark S Litwin
Journal:  J Gen Intern Med       Date:  2021-04-26       Impact factor: 5.128

Review 7.  Pharmacotherapy considerations in transgender individuals living with human immunodeficiency virus.

Authors:  Melissa E Badowski; Nicholas Britt; Emily C Huesgen; Michelle M Lewis; Misty M Miller; Kathleen Nowak; Elizabeth Sherman; Renata O Smith
Journal:  Pharmacotherapy       Date:  2021-02-27       Impact factor: 4.705

8.  Lesbian, Gay, Bisexual, Transgender, and Queer (LGBTQ+) Communities and the Coronavirus Disease 2019 Pandemic: A Call to Break the Cycle of Structural Barriers.

Authors:  Raul Macias Gil; Tracey L Freeman; Trini Mathew; Ravina Kullar; Thomas Fekete; Anais Ovalle; Don Nguyen; Angélica Kottkamp; Jin Poon; Jasmine R Marcelin; Talia H Swartz
Journal:  J Infect Dis       Date:  2021-12-01       Impact factor: 7.759

9.  Implementation of Gender Identity and Assigned Sex at Birth Data Collection in Electronic Health Records: Where Are We Now?

Authors:  Hale M Thompson; Clair A Kronk; Ketzel Feasley; Paul Pachwicewicz; Niranjan S Karnik
Journal:  Int J Environ Res Public Health       Date:  2021-06-19       Impact factor: 3.390

10.  Optimizing gender-affirming medical care through anatomical inventories, clinical decision support, and population health management in electronic health record systems.

Authors:  Chris Grasso; Hilary Goldhammer; Julie Thompson; Alex S Keuroghlian
Journal:  J Am Med Inform Assoc       Date:  2021-10-12       Impact factor: 7.942

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