Literature DB >> 31158008

Home Health Care For Children With Medical Complexity: Workforce Gaps, Policy, And Future Directions.

Carolyn C Foster1, Rishi K Agrawal2, Matthew M Davis3.   

Abstract

With the medical and surgical advances of recent decades, a growing proportion of children rely on home-based care for daily health monitoring and care tasks. However, a dearth of available home health care providers with pediatric training to serve children and youth with medical complexity markedly limits the current capacity of home health care to meet the needs of patients and their families. In this article we analyze the workforce gaps, payment models, and policy challenges unique to home health care for children and youth with medical complexity, including legal challenges brought by families because of home nursing shortages. We propose a portfolio of solutions to address the current failures, including payment reform, improved coordination of services and pediatric home health training through partnerships with child-focused health systems, telehealth-enabled opportunities to bridge current workforce gaps, and the better alignment of pediatric care with the needs of adult-focused long-term services and supports.

Entities:  

Keywords:  Home Health Care; children with medical complexity; children with special health care needs; long term care services and supports; private duty nursing

Year:  2019        PMID: 31158008     DOI: 10.1377/hlthaff.2018.05531

Source DB:  PubMed          Journal:  Health Aff (Millwood)        ISSN: 0278-2715            Impact factor:   6.301


  17 in total

1.  State Variation in Posthospital Home Nursing for Commercially Insured Medically Complex Children.

Authors:  Irit R Rasooly; Justine Shults; James P Guevara; Chris Feudtner
Journal:  Pediatrics       Date:  2020-07-08       Impact factor: 7.124

2.  Home nursing for children with home mechanical ventilation in the United States: Key informant perspectives.

Authors:  Sarah A Sobotka; Ayesha Dholakia; Jay G Berry; Maria Brenner; Robert J Graham; Denise M Goodman; Rishi K Agrawal
Journal:  Pediatr Pulmonol       Date:  2020-10-06

3.  Home Health Care Utilization in Children With Medicaid.

Authors:  Sarah A Sobotka; David E Hall; Cary Thurm; James Gay; Jay G Berry
Journal:  Pediatrics       Date:  2022-02-01       Impact factor: 7.124

4.  Trends in Health Care Use and Spending for Young Children With Neurologic Impairment.

Authors:  Nathaniel D Bayer; Matthew Hall; Yue Li; James A Feinstein; Joanna Thomson; Jay G Berry
Journal:  Pediatrics       Date:  2022-01-01       Impact factor: 7.124

5.  Children With Special Health Care Needs and Forgone Family Employment.

Authors:  Carolyn C Foster; Anna Chorniy; Soyang Kwon; Kristin Kan; Nia Heard-Garris; Matthew M Davis
Journal:  Pediatrics       Date:  2021-09       Impact factor: 9.703

6.  Employing Family Caregivers: An Innovative Health Care Model.

Authors:  Kristin Carter; Christy Blakely; Jeannie Zuk; Mark Brittan; Carolyn Foster
Journal:  Pediatrics       Date:  2022-06-01       Impact factor: 9.703

7.  "This Is How Hard It Is". Family Experience of Hospital-to-Home Transition with a Tracheostomy.

Authors:  Laura G Amar-Dolan; Mary H Horn; Brianna O'Connell; Susan K Parsons; Christopher J Roussin; Peter H Weinstock; Robert J Graham
Journal:  Ann Am Thorac Soc       Date:  2020-07

8.  Readmission drivers for children with medical complexity: Home nursing shortages cause health crises.

Authors:  Sarah A Sobotka; Emma Lynch; Monica E Peek; Robert J Graham
Journal:  Pediatr Pulmonol       Date:  2020-03-25

9.  Multiple Roles of Parental Caregivers of Children with Complex Life-Threatening Conditions: A Qualitative Descriptive Analysis.

Authors:  Amie Koch; Arthi S Kozhumam; Erika Seeler; Sharron L Docherty; Debra Brandon
Journal:  J Pediatr Nurs       Date:  2021-03-26       Impact factor: 2.145

10.  Exploring the Experiences of Family Caregivers of Children With Special Health Care Needs to Inform the Design of Digital Health Systems: Formative Qualitative Study.

Authors:  Ryan Tennant; Sana Allana; Kate Mercer; Catherine M Burns
Journal:  JMIR Form Res       Date:  2022-01-05
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