Literature DB >> 35834048

"Peas in a pod": Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.

Rozanna Lilley1,2, Wenn Lawson3,4, Gabrielle Hall3,4, Joanne Mahony3,4, Hayley Clapham5, Melanie Heyworth3, Samuel Arnold4,6, Julian Trollor4,6, Michael Yudell7, Elizabeth Pellicano3,4,8.   

Abstract

In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
© 2022. The Author(s).

Entities:  

Keywords:  Autism; Community; Family; Identity; Late-diagnosed adults; Participatory research

Year:  2022        PMID: 35834048     DOI: 10.1007/s10803-022-05667-z

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  61 in total

1.  Normal for an Asperger: notions of the meanings of diagnoses among adults with Asperger syndrome.

Authors:  Hanna Bertilsdotter Rosqvist
Journal:  Intellect Dev Disabil       Date:  2012-04

2.  Novel insights into patients' life-worlds: the value of qualitative research.

Authors:  Virginia Braun; Victoria Clarke
Journal:  Lancet Psychiatry       Date:  2019-07-23       Impact factor: 27.083

3.  Evidence for broader autism phenotype characteristics in parents from multiple-incidence autism families.

Authors:  Raphael Bernier; Jennifer Gerdts; Jeff Munson; Geraldine Dawson; Annette Estes
Journal:  Autism Res       Date:  2011-09-08       Impact factor: 5.216

4.  'It's being a part of a grand tradition, a grand counter-culture which involves communities': A qualitative investigation of autistic community connectedness.

Authors:  Monique Botha; Bridget Dibb; David M Frost
Journal:  Autism       Date:  2022-03-23

5.  A case-control family history study of autism.

Authors:  P Bolton; H Macdonald; A Pickles; P Rios; S Goode; M Crowson; A Bailey; M Rutter
Journal:  J Child Psychol Psychiatry       Date:  1994-07       Impact factor: 8.982

6.  "It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

Authors:  Simon M Bury; Rachel Jellett; Jennifer R Spoor; Darren Hedley
Journal:  J Autism Dev Disord       Date:  2020-02-28

7.  When the mask comes off: Mothers' experiences of parenting a daughter with autism spectrum condition.

Authors:  James Anderson; Charles Marley; Karri Gillespie-Smith; Leonie Carter; Ken MacMahon
Journal:  Autism       Date:  2020-04-27

8.  Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life.

Authors:  Gray Atherton; Emma Edisbury; Andrea Piovesan; Liam Cross
Journal:  J Autism Dev Disord       Date:  2021-09-04

9.  The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype.

Authors:  Sarah Bargiela; Robyn Steward; William Mandy
Journal:  J Autism Dev Disord       Date:  2016-10

10.  Experiences of Autism Acceptance and Mental Health in Autistic Adults.

Authors:  Eilidh Cage; Jessica Di Monaco; Victoria Newell
Journal:  J Autism Dev Disord       Date:  2018-02
View more

北京卡尤迪生物科技股份有限公司 © 2022-2023.