| Literature DB >> 35834048 |
Rozanna Lilley1,2, Wenn Lawson3,4, Gabrielle Hall3,4, Joanne Mahony3,4, Hayley Clapham5, Melanie Heyworth3, Samuel Arnold4,6, Julian Trollor4,6, Michael Yudell7, Elizabeth Pellicano3,4,8.
Abstract
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.Entities:
Keywords: Autism; Community; Family; Identity; Late-diagnosed adults; Participatory research
Year: 2022 PMID: 35834048 DOI: 10.1007/s10803-022-05667-z
Source DB: PubMed Journal: J Autism Dev Disord ISSN: 0162-3257