Literature DB >> 31122948

Meaningful Patient Engagement in Research: Lessons From Retinoblastoma.

Elizabeth White1,2,3, Richelle Baddeliyanage2,3, Furqan Shaikh3,4, Helen Dimaras5,2,3,6,7,8.   

Abstract

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Mesh：

Year:  2019        PMID： 31122948     DOI： 10.1542/peds.2018-2166

Source DB:  PubMed          Journal:  Pediatrics        ISSN： 0031-4005            Impact factor:   7.124


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  7 in total

1.  The top 10 retinoblastoma research priorities in Canada as determined by patients, clinicians and researchers: a patient-oriented priority-setting partnership.

Authors:  Kaitlyn Flegg; Maxwell J Gelkopf; Sarah A Johnson; Helen Dimaras
Journal:  CMAJ Open       Date:  2020-06-09

2.  It takes two to tango: carers' reflections on their participation and the participation of people with dementia in the James Lind Alliance process.

Authors:  Agnete Nygaard; Liv Halvorsrud; Asta Bye; Astrid Bergland
Journal:  BMC Geriatr       Date:  2020-05-14       Impact factor: 3.921

3.  The Canadian retinoblastoma research advisory board: a framework for patient engagement.

Authors:  Maxwell J Gelkopf; Iva Avramov; Richelle Baddeliyanage; Ivana Ristevski; Sarah A Johnson; Kaitlyn Flegg; Helen Dimaras
Journal:  Res Involv Engagem       Date:  2020-02-28

4.  The Research Family Advisory Committee: the patient and family view of implementing a research-focused patient engagement strategy.

Authors:  Francine Buchanan; Amy Peasgood; Megan Easton; Karen Haas; Unni Narayanan
Journal:  Res Involv Engagem       Date:  2022-02-05

5.  Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study.

Authors:  Catherine Moses; Kaitlyn Flegg; Helen Dimaras
Journal:  Health Expect       Date:  2020-02-29       Impact factor: 3.377

6.  Patients, Public and Service Users are Experts by Experience: An Overview from Ophthalmology Research in Canada, UK and Beyond.

Authors:  Andrew M Skilton; Leslie G Low; Helen Dimaras
Journal:  Ophthalmol Ther       Date:  2020-02-29

7.  Lessons for Patient Engagement in Research in Low- and Middle-Income Countries.

Authors:  Ana Janic; Kahaki Kimani; Isabel Olembo; Helen Dimaras
Journal:  Ophthalmol Ther       Date:  2020-03-28
  7 in total

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