| Literature DB >> 31104207 |
Alejandra Hurtado-de-Mendoza1,2, Kristi D Graves3,4, Sara Gómez-Trillos3,4, Minna Song3, Lyndsay Anderson5, Claudia Campos6, Pilar Carrera7, Nancy Ostrove8, Beth N Peshkin3,4, Marc D Schwartz3,4, Nan Ficca9, Ana-Paula Cupertino10, Nathaly Gonzalez3,11, Andrea Otero12, Elmer Huerta13, Vanessa B Sheppard14.
Abstract
Disparities for genetic cancer risk assessment (GCRA) for hereditary breast and ovarian cancer (HBOC) persist between Latina and non-Hispanic Whites. There are few tested culturally targeted interventions. We developed a culturally targeted video to enhance GCRA uptake in at-risk Latinas. Interviews with healthcare providers (n = 20) and at-risk Latinas (n = 20) were conducted as formative research to inform the development of the video. Findings from the formative research, health behavior conceptual models, and evidence-based risk communication strategies informed the messages for the script. Then, we conducted a focus group with at-risk Latinas (n = 7) to obtain feedback for final refinement of the script. The final video was piloted for acceptability and potential dissemination in a sample of Latino community health workers (CHWs) (n = 31). Providers and at-risk Latinas suggested using simple language and visual aids to facilitate comprehension. Participants in the focus group identified areas for further clarification (e.g., cost). The result was an 18-min video that illustrates "Rosa's" story. Rosa learns about HBOC risk factors and overcomes barriers to attend genetic counseling. CHWs reported high overall satisfaction with the video (M = 9.61, SD = .88, range 1-10). A culturally targeted video has the potential to reach underserved populations with low literacy and English proficiency.Entities:
Keywords: Genetic counseling; Health disparities; Hereditary breast and ovarian cancer; Intervention, translational genomics, health communication; Latinas
Year: 2019 PMID: 31104207 PMCID: PMC6962403 DOI: 10.1007/s12687-019-00423-w
Source DB: PubMed Journal: J Community Genet ISSN: 1868-310X