Rosa Geurtzen1, Arno van Heijst2, Jos Draaisma2, Laura Ouwerkerk2, Hubertina Scheepers3, Marije Hogeveen2, Rosella Hermens4. 1. Amalia Children's Hospital, Radboud university medical center, Nijmegen, the Netherlands. Electronic address: Rosa.Geurtzen@radboudumc.nl. 2. Amalia Children's Hospital, Radboud university medical center, Nijmegen, the Netherlands. 3. Department of Gynecology, Maastricht UMC+, Maastricht, the Netherlands. 4. Scientific Institute for Quality of Care, Radboud university medical center, Nijmegen, the Netherlands.
Abstract
OBJECTIVE: In-depth analysis of parental preferences in prenatal counseling in extreme prematurity. METHODS: A nationwide qualitative interview study among experienced parents of extremely premature babies born at 24+0/7 - 24+6/7 weeks of gestation. Semi-structured interviews were held until saturation, transcribed and qualitatively analyzed to search for parental counseling preferences. RESULTS: Thirteen parents were included, most parents decided on active care. Organisation: Parents wanted counseling as soon as possible, and for various reasons they wanted more than one conversation. Supportive material to help visualize complex information was suggested to be helpful, preferably with adjustable levels of detail. An empathetic, honest style with commitment of the counselor was regarded important. CONTENT: Understandable statistics should be used for those who want it. Parents needed different information with respect to the decision-making as opposed to being prepared for future situations. Decision-making: The preferred share of parents' and doctors' input in decision-making varied among parents and among situations. Parents expressed that their roles were to take responsibility for and protect their infant. CONCLUSIONS: Various parental preferences for prenatal counseling were found. PRACTICE IMPLICATIONS: Common parental preferences for the organisation, content and decision-making elements can provide a starting point for personalized prenatal counseling.
OBJECTIVE: In-depth analysis of parental preferences in prenatal counseling in extreme prematurity. METHODS: A nationwide qualitative interview study among experienced parents of extremely premature babies born at 24+0/7 - 24+6/7 weeks of gestation. Semi-structured interviews were held until saturation, transcribed and qualitatively analyzed to search for parental counseling preferences. RESULTS: Thirteen parents were included, most parents decided on active care. Organisation: Parents wanted counseling as soon as possible, and for various reasons they wanted more than one conversation. Supportive material to help visualize complex information was suggested to be helpful, preferably with adjustable levels of detail. An empathetic, honest style with commitment of the counselor was regarded important. CONTENT: Understandable statistics should be used for those who want it. Parents needed different information with respect to the decision-making as opposed to being prepared for future situations. Decision-making: The preferred share of parents' and doctors' input in decision-making varied among parents and among situations. Parents expressed that their roles were to take responsibility for and protect their infant. CONCLUSIONS: Various parental preferences for prenatal counseling were found. PRACTICE IMPLICATIONS: Common parental preferences for the organisation, content and decision-making elements can provide a starting point for personalized prenatal counseling.
Authors: R Geurtzen; J F M van den Heuvel; J J Huisman; E M Lutke Holzik; M N Bekker; M Hogeveen Journal: J Perinatol Date: 2021-07-20 Impact factor: 2.521
Authors: Josephus F M van den Heuvel; Marije Hogeveen; Margo Lutke Holzik; Arno F J van Heijst; Mireille N Bekker; Rosa Geurtzen Journal: BMC Med Inform Decis Mak Date: 2022-01-06 Impact factor: 2.796
Authors: Kiki Ruhe; Agnes van den Hoogen; Tinka Bröring-Starre; Joke M Wielenga; Mirjam M van Weissenbruch Journal: Acta Paediatr Date: 2022-04-22 Impact factor: 4.056
Authors: Ilse H Zaal-Schuller; Rosa Geurtzen; Dick L Willems; Mirjam A de Vos; Marije Hogeveen Journal: Acta Paediatr Date: 2022-01-31 Impact factor: 4.056