R Geurtzen1, J F M van den Heuvel2, J J Huisman2, E M Lutke Holzik3, M N Bekker2, M Hogeveen4. 1. Amalia Children's Hospital, department of neonatology, Radboud university medical center, Nijmegen, The Netherlands. Rosa.Geurtzen@radboudumc.nl. 2. Department of Obstetrics and Gynecology, University Medical Centre, Wilhelmina Children's Hospital, Utrecht, The Netherlands. 3. Department of Obstetrics and Gynecology, Leiden University Medical Center, Leiden, The Netherlands. 4. Amalia Children's Hospital, department of neonatology, Radboud university medical center, Nijmegen, The Netherlands.
Abstract
OBJECTIVE: To describe levels of perceived shared decision making (SDM), decisional conflict (DC), and decision regret (DR) in prenatal counseling by pregnant women, partners, neonatologists, and obstetricians regarding decision-making around imminent extreme premature birth in which a decision about palliative comfort care versus early intensive care had to be made. STUDY DESIGN: Multicenter, cross-sectional study using surveys to determine perceived SDM at imminent extreme premature birth in parents and physicians, and to determine DC and DR in parents. RESULTS: In total, 73 participants from 22 prenatal counseling sessions were included (21 pregnant women, 20 partners, 14 obstetricians, 18 neonatologists). High perceived levels of SDM were found (median 82,2), and low levels of DC (median 23,4) and DR at one month (median 12, 5). CONCLUSIONS: Reported levels of self-perceived SDM in the setting of prenatal counseling in extreme prematurity were high, by both the parents and the physicians. Levels of DC and DR were low.
OBJECTIVE: To describe levels of perceived shared decision making (SDM), decisional conflict (DC), and decision regret (DR) in prenatal counseling by pregnant women, partners, neonatologists, and obstetricians regarding decision-making around imminent extreme premature birth in which a decision about palliative comfort care versus early intensive care had to be made. STUDY DESIGN: Multicenter, cross-sectional study using surveys to determine perceived SDM at imminent extreme premature birth in parents and physicians, and to determine DC and DR in parents. RESULTS: In total, 73 participants from 22 prenatal counseling sessions were included (21 pregnant women, 20 partners, 14 obstetricians, 18 neonatologists). High perceived levels of SDM were found (median 82,2), and low levels of DC (median 23,4) and DR at one month (median 12, 5). CONCLUSIONS: Reported levels of self-perceived SDM in the setting of prenatal counseling in extreme prematurity were high, by both the parents and the physicians. Levels of DC and DR were low.
Authors: Úrsula Guillén; Elliott M Weiss; David Munson; Pierre Maton; Ann Jefferies; Mikael Norman; Gunnar Naulaers; Joana Mendes; Lincoln Justo da Silva; Petr Zoban; Thor W R Hansen; Mikko Hallman; Maria Delivoria-Papadopoulos; Shigeharu Hosono; Susan G Albersheim; Constance Williams; Elaine Boyle; Kei Lui; Brian Darlow; Haresh Kirpalani Journal: Pediatrics Date: 2015-07-13 Impact factor: 7.124