| Literature DB >> 30864046 |
Henri-Corto Stoeklé1,2, Mauro Turrini3, Philipe Charlier4,5, Jean-François Deleuze2,6,7, Christian Hervé8, Guillaume Vogt9,10,11.
Abstract
Networks for the exchange and/or sharing of genetic data are developing in many countries. We focus here on the situations in the US and France. We highlight some recent and remarkable differences between these two countries concerning the mode of access to, and the storage and use of genetic data, particularly as concerns two-sided markets and dynamic consent or dynamic electronic informed consent (e-IC). This brief overview suggests that, even though the organization and function of these two-sided markets remain open to criticism, dynamic e-IC should be more widely used, especially in France, if only to determine its real effectiveness.Keywords: Dynamic e-IC; Genetic data; Two-sided market
Mesh:
Year: 2019 PMID: 30864046 DOI: 10.1007/s11948-019-00085-4
Source DB: PubMed Journal: Sci Eng Ethics ISSN: 1353-3452 Impact factor: 3.525