Literature DB >> 28240211

[Toward dynamic informed consent].

Henri-Corto Stoeklé1, Jean-François Deleuze2, Guillaume Vogt3, Christian Hervé1.   

Abstract

"Personalized medicine" or "data medicine" should make it possible to use mass data to tailor patient treatment. These data are collected from analyses of biological samples, combined with clinical data. At a time when all sorts of information are instantly available via the Internet, the protection of genetic data, in particular, raises new issues with regard to the nature, means, status and usage of these data. Solutions to these problems are required, together with a clear, unambiguous legal, moral and ethical stance, to facilitate the spatial and temporal development of personalized medicine. At the forefront of these issues is the model of informed consent, which consent that has not been modified, despite many advances in technology. Medicine is now much more dynamic, and the possibilities for the real-time exchange and sharing of information, genetic data, or even biological samples, between patients, clinicians, researchers and industrial partners, must now be considered. We describe herein the particular advantages of a so-called "dynamic" and "enriched" consent, given via electronic means, in the context of the development of personalized medicine.
© 2017 médecine/sciences – Inserm.

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Year:  2017        PMID: 28240211     DOI: 10.1051/medsci/20173302015

Source DB:  PubMed          Journal:  Med Sci (Paris)        ISSN: 0767-0974            Impact factor:   0.818


  2 in total

1.  Genetic Data, Two-Sided Markets and Dynamic Consent: United States Versus France.

Authors:  Henri-Corto Stoeklé; Mauro Turrini; Philipe Charlier; Jean-François Deleuze; Christian Hervé; Guillaume Vogt
Journal:  Sci Eng Ethics       Date:  2019-03-12       Impact factor: 3.525

2.  French-style genetics v. 2.0: The "e-CohortE" project.

Authors:  Henri-Corto Stoeklé; Marc Bollet; Aurélie Cobat; Philippe Charlier; Oudy Ch Bloch; Jérôme Flatot; Clément Draghi; Valérie Tolyan; Christian Hervé; Pierre Desvaux; Laurent Uzan; Michaël Grynberg; Alexandre Alcaïs; Alain Tolédano; Guillaume Vogt
Journal:  Clin Genet       Date:  2019-07-11       Impact factor: 4.438

  2 in total

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