Literature DB >> 30858224

You Are Just Now Telling Us About This? African American Perspectives of Testing for Genetic Susceptibility to Kidney Disease.

Ebele M Umeukeje1, Bessie A Young2, Stephanie M Fullerton3, Kerri Cavanaugh1, Delia Owens4, James G Wilson5, Wylie Burke3, Erika Blacksher6.   

Abstract

Entities:  

Keywords:  APOL1 testing; African American; community engagement; ethnicity; racial disparities

Mesh：

Substances：

Year:  2019        PMID： 30858224      PMCID： PMC6442335          DOI： 10.1681/ASN.2018111091

Source DB:  PubMed          Journal:  J Am Soc Nephrol        ISSN： 1046-6673            Impact factor:   10.121


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  13 in total

Review 1.  Deliberations about deliberative methods: issues in the design and evaluation of public participation processes.

Authors:  Julia Abelson; Pierre-Gerlier Forest; John Eyles; Patricia Smith; Elisabeth Martin; Francois-Pierre Gauvin
Journal:  Soc Sci Med       Date:  2003-07       Impact factor: 4.634

2.  What is public deliberation?

Authors:  Erika Blacksher; Alice Diebel; Pierre-Gerlier Forest; Susan Dorr Goold; Julia Abelson
Journal:  Hastings Cent Rep       Date:  2012 Mar-Apr       Impact factor: 2.683

3.  Association of trypanolytic ApoL1 variants with kidney disease in African Americans.

Authors:  Giulio Genovese; David J Friedman; Michael D Ross; Laurence Lecordier; Pierrick Uzureau; Barry I Freedman; Donald W Bowden; Carl D Langefeld; Taras K Oleksyk; Andrea L Uscinski Knob; Andrea J Bernhardy; Pamela J Hicks; George W Nelson; Benoit Vanhollebeke; Cheryl A Winkler; Jeffrey B Kopp; Etienne Pays; Martin R Pollak
Journal:  Science       Date:  2010-07-15       Impact factor: 47.728

4.  APOL1 variants associate with increased risk of CKD among African Americans.

Authors:  Meredith C Foster; Josef Coresh; Myriam Fornage; Brad C Astor; Morgan Grams; Nora Franceschini; Eric Boerwinkle; Rulan S Parekh; W H Linda Kao
Journal:  J Am Soc Nephrol       Date:  2013-06-13       Impact factor: 10.121

5.  APOL1 risk variants, race, and progression of chronic kidney disease.

Authors:  Afshin Parsa; W H Linda Kao; Dawei Xie; Brad C Astor; Man Li; Chi-yuan Hsu; Harold I Feldman; Rulan S Parekh; John W Kusek; Tom H Greene; Jeffrey C Fink; Amanda H Anderson; Michael J Choi; Jackson T Wright; James P Lash; Barry I Freedman; Akinlolu Ojo; Cheryl A Winkler; Dominic S Raj; Jeffrey B Kopp; Jiang He; Nancy G Jensvold; Kaixiang Tao; Michael S Lipkowitz; Lawrence J Appel
Journal:  N Engl J Med       Date:  2013-11-09       Impact factor: 91.245

6.  Return of Research Results to Study Participants: Uncharted and Untested.

Authors:  Charlene A Wong; Adrian F Hernandez; Robert M Califf
Journal:  JAMA       Date:  2018-08-07       Impact factor: 56.272

7.  Strict blood pressure control associates with decreased mortality risk by APOL1 genotype.

Authors:  Elaine Ku; Michael S Lipkowitz; Lawrence J Appel; Afshin Parsa; Jennifer Gassman; David V Glidden; Miroslaw Smogorzewski; Chi-Yuan Hsu
Journal:  Kidney Int       Date:  2016-12-04       Impact factor: 10.612

8.  Effectiveness of public deliberation methods for gathering input on issues in healthcare: Results from a randomized trial.

Authors:  Kristin L Carman; Coretta Mallery; Maureen Maurer; Grace Wang; Steve Garfinkel; Manshu Yang; Dierdre Gilmore; Amy Windham; Marjorie Ginsburg; Shoshanna Sofaer; Marthe Gold; Ela Pathak-Sen; Todd Davies; Joanna Siegel; Rikki Mangrum; Jessica Fernandez; Jennifer Richmond; James Fishkin; Alice Siu Chao
Journal:  Soc Sci Med       Date:  2015-03-14       Impact factor: 4.634

9.  Apolipoprotein L1 gene variants in deceased organ donors are associated with renal allograft failure.

Authors:  B I Freedman; B A Julian; S O Pastan; A K Israni; D Schladt; M D Gautreaux; V Hauptfeld; R A Bray; H M Gebel; A D Kirk; R S Gaston; J Rogers; A C Farney; G Orlando; R J Stratta; S Mohan; L Ma; C D Langefeld; P J Hicks; N D Palmer; P L Adams; A Palanisamy; A M Reeves-Daniel; J Divers
Journal:  Am J Transplant       Date:  2015-03-24       Impact factor: 8.086

10.  Race, Genomics and Chronic Disease: What Patients with African Ancestry Have to Say.

Authors:  Carol R Horowitz; Kadija Ferryman; Rennie Negron; Tatiana Sabin; Mayra Rodriguez; Randi F Zinberg; Erwin Böttinger; Mimsie Robinson
Journal:  J Health Care Poor Underserved       Date:  2017
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  18 in total

Review 1.  Practical Considerations for APOL1 Genotyping in the Living Kidney Donor Evaluation.

Authors:  Alejandra M Mena-Gutierrez; Amber M Reeves-Daniel; Colleen L Jay; Barry I Freedman
Journal:  Transplantation       Date:  2020-01       Impact factor: 4.939

2.  Genetic Testing for APOL1 Genetic Variants in Clinical Practice: Finally Starting to Arrive.

Authors:  Jeffrey B Kopp; Cheryl A Winkler
Journal:  Clin J Am Soc Nephrol       Date:  2019-11-18       Impact factor: 8.237

3.  Apolipoprotein L1 Testing in African Americans: Involving the Community in Policy Discussions.

Authors:  Bessie A Young; Erika Blacksher; Kerri L Cavanaugh; Barry I Freedman; Stephanie M Fullerton; Jeffrey B Kopp; Ebele M Umeukeje; Kathleen M West; James G Wilson; Wylie Burke
Journal:  Am J Nephrol       Date:  2019-09-03       Impact factor: 3.754

4.  Apolipoprotein L1 Gene Testing Comes of Age.

Authors:  Barry I Freedman; Chris P Larsen
Journal:  Kidney360       Date:  2020-01-08

5.  Cases in Precision Medicine: APOL1 and Genetic Testing in the Evaluation of Chronic Kidney Disease and Potential Transplant.

Authors:  Y Dana Neugut; Sumit Mohan; Ali G Gharavi; Krzysztof Kiryluk
Journal:  Ann Intern Med       Date:  2019-10-08       Impact factor: 25.391

6.  APOL1 genotyping in kidney transplantation: to do or not to do, that is the question? (pro).

Authors:  Barry I Freedman; Emilio D Poggio
Journal:  Kidney Int       Date:  2021-07       Impact factor: 10.612

7.  Integrating APOL1 Kidney-risk Variant Testing in Live Kidney Donor Evaluation: An Expert Panel Opinion.

Authors:  Mona D Doshi; Elisa J Gordon; Barry I Freedman; Craig Glover; Jayme E Locke; Christie P Thomas
Journal:  Transplantation       Date:  2021-10-01       Impact factor: 4.939

Review 8.  At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.

Authors:  Kathleen M West; Erika Blacksher; Kerri L Cavanaugh; Stephanie M Fullerton; Ebele M Umeukeje; Bessie A Young; Wylie Burke
Journal:  Clin J Am Soc Nephrol       Date:  2020-02-10       Impact factor: 8.237

9.  Variation of ApoL1 Testing Practices for Living Kidney Donors.

Authors:  Tristan McIntosh; Sumit Mohan; Deirdre Sawinski; Ana Iltis; James M DuBois
Journal:  Prog Transplant       Date:  2019-12-16       Impact factor: 1.187

10.  Opinions of African American adults about the use of apolipoprotein L1 (ApoL1) genetic testing in living kidney donation and transplantation.

Authors:  Margaret Berrigan; Jasmine Austrie; Aaron Fleishman; Kenneth P Tercyak; Martin R Pollak; Martha Pavlakis; Vinayak Rohan; Prabhakar K Baliga; Liise K Kayler; Thomas H Feeley; James R Rodrigue
Journal:  Am J Transplant       Date:  2020-08-29       Impact factor: 8.086
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