Literature DB >> 29931289

Return of Research Results to Study Participants: Uncharted and Untested.

Charlene A Wong1,2, Adrian F Hernandez2,3, Robert M Califf4,5.   

Abstract

Entities:  

Mesh：

Year:  2018        PMID： 29931289     DOI： 10.1001/jama.2018.7898

Source DB:  PubMed          Journal:  JAMA        ISSN： 0098-7484            Impact factor:   56.272


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  23 in total

1.  Predictive Analytics and the Return of "Research" Information to Participants.

Authors:  Shengzhi Wang; Ellen E Lee; Benjamin Zywicki; Ho-Cheol Kim; Dilip Jeste; Camille Nebeker
Journal:  Appl Hum Factors Ergon Conf       Date:  2020-07-10

2.  You Are Just Now Telling Us About This? African American Perspectives of Testing for Genetic Susceptibility to Kidney Disease.

Authors:  Ebele M Umeukeje; Bessie A Young; Stephanie M Fullerton; Kerri Cavanaugh; Delia Owens; James G Wilson; Wylie Burke; Erika Blacksher
Journal:  J Am Soc Nephrol       Date:  2019-03-11       Impact factor: 10.121

3.  Assessing research participant preferences for receiving study results.

Authors:  Sarah Cook; Stephanie Mayers; Kathryn Goggins; David Schlundt; Kemberlee Bonnet; Neely Williams; Donald Alcendor; Shari Barkin
Journal:  J Clin Transl Sci       Date:  2019-10-04

4.  Understanding What Information Is Valued By Research Participants, And Why.

Authors:  Consuelo H Wilkins; Brandy M Mapes; Rebecca N Jerome; Victoria Villalta-Gil; Jill M Pulley; Paul A Harris
Journal:  Health Aff (Millwood)       Date:  2019-03       Impact factor: 6.301

5.  Cases in Precision Medicine: Should You Participate in a Study Involving Genomic Sequencing of Your Patients?

Authors:  Paul S Appelbaum; Deborah F Stiles; Wendy Chung
Journal:  Ann Intern Med       Date:  2019-10-01       Impact factor: 25.391

6.  Return of Value in the New Era of Biomedical Research-One Size Will Not Fit All.

Authors:  Dmitry Khodyakov; Alexandra Mendoza-Graf; Sandra Berry; Camille Nebeker; Elizabeth Bromley
Journal:  AJOB Empir Bioeth       Date:  2019-10-03

7.  Communicating 5-Year Risk of Alzheimer's Disease Dementia: Development and Evaluation of Materials that Incorporate Multiple Genetic and Biomarker Research Results.

Authors:  Jessica Mozersky; Sarah Hartz; Erin Linnenbringer; Lillie Levin; Marissa Streitz; Kristin Stock; Krista Moulder; John C Morris
Journal:  J Alzheimers Dis       Date:  2021       Impact factor: 4.472

8.  Preferences for Updates on General Research Results: A Survey of Participants in Genomic Research from Two Institutions.

Authors:  Casey Overby Taylor; Natalie Flaks Manov; Katherine D Crew; Chunhua Weng; John J Connolly; Christopher G Chute; Daniel E Ford; Harold Lehmann; Alanna Kulchak Rahm; Iftikhar J Kullo; Pedro J Caraballo; Ingrid A Holm; Debra Mathews
Journal:  J Pers Med       Date:  2021-05-11

9.  Video-based Parkinson's disease assessments in a nationwide cohort of Fox Insight participants.

Authors:  Taylor L Myers; Christopher G Tarolli; Jamie L Adams; Richard Barbano; María Cristina Gil-Díaz; Kelsey L Spear; Jill Lowell; Margaret Daeschler; Lindsey Riley; Ninad Amondikar; Peggy Auinger; Connie Marras; Caroline M Tanner; E Ray Dorsey; Ruth B Schneider
Journal:  Clin Park Relat Disord       Date:  2021-05-24

Review 10.  Toward dynamic phenotypes and the scalable measurement of human behavior.

Authors:  Laura Germine; Roger W Strong; Shifali Singh; Martin J Sliwinski
Journal:  Neuropsychopharmacology       Date:  2020-07-06       Impact factor: 8.294
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