Literature DB >> 30652585

The HOPE Pilot Study: Harnessing Patient-Reported Outcomes and Biometric Data to Enhance Cancer Care.

Alexi A Wright1, Nikita Raman1, Patrick Staples1, Stephanie Schonholz1, Angel Cronin1, Kenzie Carlson1, Nancy L Keating1, Jukka-Pekka Onnela1.   

Abstract

PURPOSE: Integrating patient-reported outcomes (PROs) into clinical practice is an increasingly promising strategy for improving patients' symptoms, communication, and clinical outcomes. The objective of the current study was to assess the feasibility, acceptability, and perceived effectiveness of a mobile health intervention that was designed to collect PROs and activity data as a measure of health status. PATIENTS AND METHODS: This work was a pilot intervention with 10 patients with gynecologic cancers who received palliative chemotherapy. The HOPE (Helping Our Patients Excel) study used wearable accelerometers to assess physical activity and the Beiwe research platform to collect PROs, stratify patient responses by risk, provide tailored symptom management, and notify patients and clinicians of high-risk symptoms. Feasibility and acceptability were assessed through enrollment and adherence rates, and perceived effectiveness was evaluated by patients and oncologists at study completion.
RESULTS: The approach-to-consent rate was 100%, and participants were 90% and 70% adherent to the wearable accelerometers and smartphone surveys, respectively. Participants' mean daily step count was 3,973 (standard deviation [SD], 2,305 steps) and increased from week 1 (mean, 3,520 steps; SD, 1,937 steps) to week 3 (mean, 4,136 steps; SD, 1,578 steps). Active monitoring of participants' heart rates, daily steps, and PROs throughout the study identified anomalies in participants' behavior patterns that suggested poor health for two patients (20%). Patients and clinicians indicated that the intervention improved physical activity, communication, and symptom management.
CONCLUSION: A mobile health intervention that collects PROs and activity data as a measure of health status is feasible, acceptable, and was perceived to be effective in improving symptom management in patients with advanced gynecologic cancers. A larger, multisite, randomized clinical trial to assess the efficacy of the HOPE intervention on patients' symptoms, health-related quality of life, clinical outcomes, and health care use is warranted.

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Year:  2018        PMID: 30652585      PMCID: PMC6556148          DOI: 10.1200/CCI.17.00149

Source DB:  PubMed          Journal:  JCO Clin Cancer Inform        ISSN: 2473-4276


  36 in total

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Authors:  Antonia V Bennett; Bryce B Reeve; Ethan M Basch; Sandra A Mitchell; Mathew Meeneghan; Claudio L Battaglini; Abbie E Smith-Ryan; Brett Phillips; Thomas C Shea; William A Wood
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6.  Should patient-rated performance status affect treatment decisions in advanced lung cancer?

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7.  Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial.

Authors:  Ethan Basch; Allison M Deal; Mark G Kris; Howard I Scher; Clifford A Hudis; Paul Sabbatini; Lauren Rogak; Antonia V Bennett; Amylou C Dueck; Thomas M Atkinson; Joanne F Chou; Dorothy Dulko; Laura Sit; Allison Barz; Paul Novotny; Michael Fruscione; Jeff A Sloan; Deborah Schrag
Journal:  J Clin Oncol       Date:  2015-12-07       Impact factor: 44.544

8.  Prognostic value of performance status assessed by patients themselves, nurses, and oncologists in advanced non-small cell lung cancer.

Authors:  M Ando; Y Ando; Y Hasegawa; K Shimokata; H Minami; K Wakai; Y Ohno; S Sakai
Journal:  Br J Cancer       Date:  2001-11-30       Impact factor: 7.640

9.  Performance status score: do patients and their oncologists agree?

Authors:  S P Blagden; S C Charman; L D Sharples; L R A Magee; D Gilligan
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10.  Utilizing a Personal Smartphone Custom App to Assess the Patient Health Questionnaire-9 (PHQ-9) Depressive Symptoms in Patients With Major Depressive Disorder.

Authors:  John Torous; Patrick Staples; Meghan Shanahan; Charlie Lin; Pamela Peck; Matcheri Keshavan; Jukka-Pekka Onnela
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  16 in total

Review 1.  Intersection of Digital Health and Oncology.

Authors:  Adam P Dicker; Heather S L Jim
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2.  A Mobile Patient-Facing App for Tracking Patient-Reported Outcomes in Head and Neck Cancer Survivors: Single-Arm Feasibility Study.

Authors:  Sewit Teckie; Jeffrey Solomon; Karthik Kadapa; Keisy Sanchez; David Orner; Dennis Kraus; Dev P Kamdar; Lucio Pereira; Douglas Frank; Michael Diefenbach
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3.  Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies.

Authors:  Lefteris Koumakis; Fatima Schera; Heather Parker; Panos Bonotis; Maria Chatzimina; Panagiotis Argyropaidas; Giorgos Zacharioudakis; Michael Schäfer; Christine Kakalou; Christina Karamanidou; Jana Didi; Eleni Kazantzaki; Lydia Scarfo; Kostas Marias; Pantelis Natsiavas
Journal:  Front Digit Health       Date:  2021-12-17

Review 4.  Artificial Intelligence in Brain Tumour Surgery-An Emerging Paradigm.

Authors:  Simon Williams; Hugo Layard Horsfall; Jonathan P Funnell; John G Hanrahan; Danyal Z Khan; William Muirhead; Danail Stoyanov; Hani J Marcus
Journal:  Cancers (Basel)       Date:  2021-10-07       Impact factor: 6.639

5.  Electronic Patient-Reported Outcome-Based Interventions for Palliative Cancer Care: A Systematic and Mapping Review.

Authors:  Christina Karamanidou; Pantelis Natsiavas; Lefteris Koumakis; Kostas Marias; Fatima Schera; Michael Schäfer; Sheila Payne; Christos Maramis
Journal:  JCO Clin Cancer Inform       Date:  2020-07

6.  What to Do and What Not to Do in the Management of Cancer Pain: A Physician Survey and Expert Recommendations.

Authors:  Paolo Bossi; Andrea Antonuzzo; Grazia Armento; Francesca Consoli; Jacopo Giuliani; Raffaele Giusti; Maurizio Lucchesi; Aurora Mirabile; Loredana Palermo; Sarah Scagliarini
Journal:  Cancer Manag Res       Date:  2021-06-30       Impact factor: 3.989

7.  The Use of Wearables in Clinical Trials During Cancer Treatment: Systematic Review.

Authors:  Ulrikke Lyng Beauchamp; Helle Pappot; Cecilie Holländer-Mieritz
Journal:  JMIR Mhealth Uhealth       Date:  2020-11-11       Impact factor: 4.773

8.  Smartphone measurements of physical activity and fitness are associated with early trial discontinuation of patients in (hemato)oncology phase I/II clinical trials.

Authors:  Joeri A J Douma; Sonja Zweegman; Mieke Alberts; Sandy Kruyswijk; Niels C W J van de Donk; Myra van Linde; Laurien M Buffart; Henk M W Verheul
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Review 9.  Decision Models and Technology Can Help Psychiatry Develop Biomarkers.

Authors:  Daniel S Barron; Justin T Baker; Kristin S Budde; Danilo Bzdok; Simon B Eickhoff; Karl J Friston; Peter T Fox; Paul Geha; Stephen Heisig; Avram Holmes; Jukka-Pekka Onnela; Albert Powers; David Silbersweig; John H Krystal
Journal:  Front Psychiatry       Date:  2021-09-09       Impact factor: 4.157

10.  MyPal ADULT study protocol: a randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies.

Authors:  Lydia Scarfò; Christina Karamanidou; Michael Doubek; Tina Garani-Papadatos; Jana Didi; Charalampos Pontikoglou; Julie Ling; Cathy Payne; Helen Α Papadaki; Richard Rosenquist; Niki Stavroyianni; Sheila Payne; Paolo Ghia; Pantelis Natsiavas; Christos Maramis; Kostas Stamatopoulos
Journal:  BMJ Open       Date:  2021-11-02       Impact factor: 2.692

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