Literature DB >> 30617704

Reliability and between-group stability of a health-related quality of life symptom index for persons with anal high-grade squamous intraepithelial lesions: an AIDS Malignancy Consortium Study (AMC-A03).

Thomas M Atkinson1, Joel Palefsky2, Yuelin Li3, Andrew Webb3, J Michael Berry2, Stephen Goldstone4, Rebecca Levine5, Timothy J Wilkin6, Gary Bucher7, David Cella8, Jack E Burkhalter3.   

Abstract

PURPOSE: The Anal Cancer HSIL Outcomes Research (ANCHOR) trial aims to determine whether treating precancerous anal high-grade squamous intraepithelial lesions (HSIL), versus active surveillance, is effective in reducing anal cancer incidence in HIV-infected individuals. We evaluated the reliability (i.e., internal consistency, test-retest) and between-group stability of a 25-item ANCHOR Health-Related Symptom Index (A-HRSI).
METHODS: ANCHOR participants at least 1-month post-randomization to treatment or active surveillance completed the A-HRSI via telephone. Participants were contacted 7-10 days later to complete the A-HRSI and a participant global impression of change (PGIC) item.
RESULTS: Participants (n = 100) were enrolled (mean age = 51.4, 79% cisgender-male, 73% African American, 9% Hispanic) from five ANCHOR sites. Cronbach's α was good for the physical symptoms (0.82) domain and fair for the physical impacts (0.79) and psychological symptoms (0.73) domains. Intraclass correlation coefficients were good for each of respective domains (i.e., 0.80, 0.85, and 0.82). There were no significant differences in PGIC between the treatment (n = 56) and active surveillance (n = 44) groups (F(1,98) = 2.03, p = 0.16).
CONCLUSIONS: The A-HRSI is able to reliably assess participant-reported symptoms and impacts of anal HSIL across a 7-10 days of timeframe. Future work will involve the establishment of construct and discriminant validity prior to inclusion in the full ANCHOR trial.

Entities:  

Keywords:  ANCHOR trial; Clinical outcome assessments; Health-related quality of life; Neoplasms; Patient-reported outcomes

Mesh:

Year:  2019        PMID: 30617704      PMCID: PMC6472969          DOI: 10.1007/s11136-018-2089-8

Source DB:  PubMed          Journal:  Qual Life Res        ISSN: 0962-9343            Impact factor:   4.147


  13 in total

1.  Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO Good Research Practices Task Force report: part 2--assessing respondent understanding.

Authors:  Donald L Patrick; Laurie B Burke; Chad J Gwaltney; Nancy Kline Leidy; Mona L Martin; Elizabeth Molsen; Lena Ring
Journal:  Value Health       Date:  2011-10-10       Impact factor: 5.725

2.  Content validity--establishing and reporting the evidence in newly developed patient-reported outcomes (PRO) instruments for medical product evaluation: ISPOR PRO good research practices task force report: part 1--eliciting concepts for a new PRO instrument.

Authors:  Donald L Patrick; Laurie B Burke; Chad J Gwaltney; Nancy Kline Leidy; Mona L Martin; Elizabeth Molsen; Lena Ring
Journal:  Value Health       Date:  2011-10-13       Impact factor: 5.725

Review 3.  Screening to prevent anal cancer: Current thinking and future directions.

Authors:  Joel M Palefsky
Journal:  Cancer Cytopathol       Date:  2015-08-03       Impact factor: 5.284

4.  Surgical treatment of high-grade anal squamous intraepithelial lesions: a prospective study.

Authors:  George J Chang; J Michael Berry; Naomi Jay; Joel M Palefsky; Mark L Welton
Journal:  Dis Colon Rectum       Date:  2002-04       Impact factor: 4.585

5.  The psychological impact of being screened for anal cancer in HIV-infected men who have sex with men.

Authors:  Jill Tinmouth; Janet Raboud; Michael Ali; Lindsay Malloch; Desheng Su; Marie Sano; Alice Lytwyn; Sean B Rourke; Linda Rabeneck; Irving Salit
Journal:  Dis Colon Rectum       Date:  2011-03       Impact factor: 4.585

6.  Health-Related Quality of Life and Sexual Functioning of HIV-Positive Men Who Have Sex With Men Who Are Treated for Anal Intraepithelial Neoplasia.

Authors:  Matthijs L Siegenbeek van Heukelom; Olivier Richel; Pythia T Nieuwkerk; Henry J C De Vries; Jan M Prins
Journal:  Dis Colon Rectum       Date:  2016-01       Impact factor: 4.585

7.  Anal Cancer Incidence in the United States, 1977-2011: Distinct Patterns by Histology and Behavior.

Authors:  Meredith S Shiels; Aimée R Kreimer; Anna E Coghill; Teresa M Darragh; Susan S Devesa
Journal:  Cancer Epidemiol Biomarkers Prev       Date:  2015-07-29       Impact factor: 4.254

8.  Quality of life after laparoscopic vs open sphincter-preserving resection for rectal cancer.

Authors:  Simon Siu-Man Ng; Wing-Wa Leung; Cherry Yee-Ni Wong; Sophie Sok-Fei Hon; Tony Wing-Chung Mak; Dennis Kwok-Yu Ngo; Janet Fung-Yee Lee
Journal:  World J Gastroenterol       Date:  2013-08-07       Impact factor: 5.742

9.  Changing patterns of anal canal carcinoma in the United States.

Authors:  Rebecca A Nelson; Alexandra M Levine; Leslie Bernstein; David D Smith; Lily L Lai
Journal:  J Clin Oncol       Date:  2013-03-18       Impact factor: 44.544

10.  Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance.

Authors: 
Journal:  Health Qual Life Outcomes       Date:  2006-10-11       Impact factor: 3.186

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  1 in total

1.  Linguistic validation of the Spanish version of the Anal Cancer High-Grade squamous intraepithelial lesions outcomes Research Health-Related Symptom Index (A-HRSI): AMC-A04.

Authors:  Thomas M Atkinson; Kathleen A Lynch; Jacqueline Vera; Nuria Mendoza Olivares; Andrew Webb; Lisa C Diamond; Javier González; Erica I Lubetkin; Gary Bucher; Isabella Rosa-Cunha; J Michael Berry-Lawhorn; Rebecca Levine; David Aboulafia; Jeffrey Schouten; Susan M Holland; David Cella; Joel M Palefsky
Journal:  J Patient Rep Outcomes       Date:  2022-10-11
  1 in total

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