Literature DB >> 30390238

Multi-Method Patient-Engagement Approach: A Case Example from a PCORI-Funded Training Project.

Elisabeth M Oehrlein1,2, T Rose Love3, Chinenye Anyanwu4, Maya L Hanna1, Jacqueline Kraska5, Eleanor M Perfetto1,2.   

Abstract

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Year:  2019        PMID： 30390238     DOI： 10.1007/s40271-018-0341-5

Source DB:  PubMed          Journal:  Patient        ISSN： 1178-1653            Impact factor:   3.883


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  13 in total

1.  Continuous patient engagement in comparative effectiveness research.

Authors:  C Daniel Mullins; Abdulla M Abdulhalim; Danielle C Lavallee
Journal:  JAMA       Date:  2012-04-18       Impact factor: 56.272

2.  Empowerment of patients: lessons from the rare diseases community.

Authors:  Ségolène Aymé; Anna Kole; Stephen Groft
Journal:  Lancet       Date:  2008-06-14       Impact factor: 79.321

Review 3.  A systematic review of approaches for engaging patients for research on rare diseases.

Authors:  Laura P Forsythe; Victoria Szydlowski; Mohammad Hassan Murad; Stanley Ip; Zhen Wang; Tarig A Elraiyah; Rachael Fleurence; David H Hickam
Journal:  J Gen Intern Med       Date:  2014-08       Impact factor: 5.128

Review 4.  Patient engagement--what works?

Authors:  Angela Coulter
Journal:  J Ambul Care Manage       Date:  2012 Apr-Jun

5.  Continuous patient engagement in cardiovascular disease clinical comparative effectiveness research.

Authors:  Joseph Vandigo; Ebenezer Oloyede; Abdalla Aly; Aurelia L Laird; Catherine E Cooke; C Daniel Mullins
Journal:  Expert Rev Pharmacoecon Outcomes Res       Date:  2016       Impact factor: 2.217

Review 6.  A systematic review of the impact of patient and public involvement on service users, researchers and communities.

Authors:  Jo Brett; Sophie Staniszewska; Carole Mockford; Sandra Herron-Marx; John Hughes; Colin Tysall; Rashida Suleman
Journal:  Patient       Date:  2014       Impact factor: 3.883

7.  The need for worldwide policy and action plans for rare diseases.

Authors:  John Forman; Domenica Taruscio; Virginia A Llera; Luis A Barrera; Timothy R Coté; Catarina Edfjäll; Désirée Gavhed; Marlene E Haffner; Yukiko Nishimura; Manuel Posada; Erik Tambuyzer; Stephen C Groft; Jan-Inge Henter
Journal:  Acta Paediatr       Date:  2012-05-11       Impact factor: 2.299

8.  Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned.

Authors:  Laura P Forsythe; Lauren E Ellis; Lauren Edmundson; Raj Sabharwal; Alison Rein; Kristen Konopka; Lori Frank
Journal:  J Gen Intern Med       Date:  2015-07-10       Impact factor: 5.128

9.  Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases.

Authors:  Caron Molster; Leanne Youngs; Emma Hammond; Hugh Dawkins
Journal:  Orphanet J Rare Dis       Date:  2012-08-10       Impact factor: 4.123

10.  The partnership of patient advocacy groups and clinical investigators in the rare diseases clinical research network.

Authors:  Peter A Merkel; Michele Manion; Rashmi Gopal-Srivastava; Stephen Groft; H A Jinnah; David Robertson; Jeffrey P Krischer
Journal:  Orphanet J Rare Dis       Date:  2016-05-18       Impact factor: 4.123
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