Literature DB >> 18555918

Empowerment of patients: lessons from the rare diseases community.

Ségolène Aymé1, Anna Kole, Stephen Groft.   

Abstract

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Mesh：

Year:  2008        PMID： 18555918     DOI： 10.1016/S0140-6736(08)60875-2

Source DB:  PubMed          Journal:  Lancet        ISSN： 0140-6736            Impact factor:   79.321


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  61 in total

1.  When patients march in.

Authors:  Virginia Hughes
Journal:  Nat Biotechnol       Date:  2010-11       Impact factor: 54.908

Review 2.  Close to the bench as well as at the bedside: involving service users in all phases of translational research.

Authors:  Felicity Callard; Diana Rose; Til Wykes
Journal:  Health Expect       Date:  2011-05-25       Impact factor: 3.377

Review 3.  Rare diseases, orphan drugs, and their regulation in Asia: Current status and future perspectives.

Authors:  Peipei Song; Jianjun Gao; Yoshinori Inagaki; Norihiro Kokudo; Wei Tang
Journal:  Intractable Rare Dis Res       Date:  2012-02

4.  Multi-Method Patient-Engagement Approach: A Case Example from a PCORI-Funded Training Project.

Authors:  Elisabeth M Oehrlein; T Rose Love; Chinenye Anyanwu; Maya L Hanna; Jacqueline Kraska; Eleanor M Perfetto
Journal:  Patient       Date:  2019-04       Impact factor: 3.883

5.  Orphan drug policies and use in pediatric nephrology.

Authors:  Diana Karpman; Peter Höglund
Journal:  Pediatr Nephrol       Date:  2016-10-13       Impact factor: 3.714

Review 6.  Prevalence of osteoarthritis in former elite athletes: a systematic overview of the recent literature.

Authors:  Vincent Gouttebarge; Han Inklaar; Frank Backx; Gino Kerkhoffs
Journal:  Rheumatol Int       Date:  2014-07-19       Impact factor: 2.631

Review 7.  Rare inherited kidney diseases: challenges, opportunities, and perspectives.

Authors:  Olivier Devuyst; Nine V A M Knoers; Giuseppe Remuzzi; Franz Schaefer
Journal:  Lancet       Date:  2014-05-24       Impact factor: 79.321

8.  The Role of European Patient Organizations in Pharmacovigilance.

Authors:  Cristiano Matos; Gerda Weits; Florence van Hunsel
Journal:  Drug Saf       Date:  2019-04       Impact factor: 5.606

9.  The effect of a multifaceted empowerment strategy on decision making about the number of embryos transferred in in vitro fertilisation: randomised controlled trial.

Authors:  Arno van Peperstraten; Willianne Nelen; Richard Grol; Gerhard Zielhuis; Eddy Adang; Peep Stalmeier; Rosella Hermens; Jan Kremer
Journal:  BMJ       Date:  2010-09-30

Review 10.  Effectiveness of web-based interventions on patient empowerment: a systematic review and meta-analysis.

Authors:  David Samoocha; David J Bruinvels; Nieke A Elbers; Johannes R Anema; Allard J van der Beek
Journal:  J Med Internet Res       Date:  2010-06-24       Impact factor: 5.428
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